Educating Adolescents with Fetal Alcohol Spectrum Disorder: Caregiver Support Needs

The purpose of this study was to identify caregivers’ needs in helping youth with fetal alcohol spectrum disorder (FASD) succeed in school. Sixteen caregivers raising a youth with FASD participated in telephone interviews that included the question: “What do caregivers need to help youth be successful in school?”. Participants then sorted responses to these questions into piles they believed to be a conceptual fit with one another, and the data was analyzed using multi-dimensional scaling and cluster analysis. Five concepts emerged: (1) Working to meet the needs of the individual, (2) educational accommodations, (3) FASD-literate schools, (4) resources, and (5) therapeutic supports. These concepts were compared and contrasted with the existing literature.