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Behavioral Parent Training Engagement Among Young Children With Autism Spectrum Disorder
Affiliation:Medical University of South Carolina;University of Cyprus;University of Milano-Bicocca;University of Cyprus;University of Colorado-Boulder;Vanderbilt University;Vanderbilt University;National Institute on Aging, National Institutes of Health;Office of Behavioral and Social Sciences Research, National Institutes of Health;National Institute on Aging, National Institutes of Health;National Cancer Institute, National Institutes of Health;National Institute on Aging, National Institutes of Health;National Institute on Drug Abuse, National Institutes of Health;National Institute on Aging, National Institutes of Health;Università Vita-Salute San Raffaele;Associazione Gruppo Amici Onlus, Fidenza, Italy;Child in Mind Lab, Università Vita-Salute San Raffaele;University of Washington School of Medicine, Seattle Children’s Research Institute;Florida International University;Center for Children & Families, Florida International University;Florida International University;Center for Child Health, Behavior, and Development, Seattle Children’s Research Institute;Shahid Beheshti University of Medical Sciences;Binghamton University;Triangle Area Psychology Clinic
Abstract:The purpose of the current study was to examine engagement with Behavioral Parent Training (BPT) for families of children with Autism Spectrum Disorder (ASD) and assess openness to novel delivery formats for BPT (e.g., telehealth, group). Participants were caregivers of 501 children with ASD (ages 2–6) enrolled in the SPARK (Simons Foundation Powering Autism Research for Knowledge) online national registry. The study assessed: (1) rates of child disruptive behavior diagnoses, (2) engagement and satisfaction with BPT, (3) parent and child factors (e.g., diagnostic history), and (4) openness to novel delivery formats. Almost 25% of young children with ASD in this sample had disruptive behavior problems rising to the level of a diagnosis of ADHD or ODD and thus would benefit from BPT. However, only one third of these families had actually been referred to BPT. Families indicated high level of interest in participating in BPT, with a particular interest in Parent Child Interaction Therapy (PCIT) as well as novel delivery formats such as telehealth and group. Specific components of the therapy and delivery formats were indicative of parent satisfaction (e.g. groups, longer treatment sessions, longer treatment length). Specific parent and child characteristics were predictive of openness to novel formats (e.g. parental depression, more severe behavioral challenges, lower verbal skills). Results underscore the need for increased referrals and access to BPT programs the ASD population. Both parent and child characteristics are important for determining appropriate delivery formats.
Keywords:autism spectrum disorder  disruptive behavior disorders  behavioral parent training  parent child interaction therapy
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