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Quality of Life in Flemish Families with a Child with an Intellectual Disability: a Multilevel Study on Opinions of Family Members and the Impact of Family Member and Family Characteristics
Authors:Lien Vanderkerken  Mieke Heyvaert  Patrick Onghena  Bea Maes
Affiliation:1.Parenting and Special Education Research Unit, Faculty of Psychology and Educational Sciences,KU Leuven,Leuven,Belgium;2.Humanities and Social Sciences Research Coordination,KU Leuven,Leuven,Belgium;3.Faculty of Psychology and Educational Sciences, Methodology of Educational Sciences Research Unit,KU Leuven,Leuven,Belgium
Abstract:This study examined family members’ opinions regarding their family quality of life (FQOL). Parents (n = 97) and youngsters (n = 24) of 63 families with a child with an intellectual disability (ID) receiving home-based support completed the Beach Center FQOL Scale. Multilevel models detected substantial variability in FQOL scores and in most subscale scores both within and between families. The observed differences were partly explained by the respondent’s age, the parents’ employment situation, and the support needs of the child with an ID. Role of the family member and gender of the parent could not explain this variability. By including and comparing multiple family members’ opinions, this study contributes to the methodological and conceptual discussions about measuring FQOL.
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