A Survey of Genetic Counselors' Use of Informed Consent Documents for Prenatal Genetic Counseling Sessions |
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Authors: | Gretchen M Jacobson Patricia McCarthy Veach Bonnie S LeRoy |
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Institution: | (1) Children's Hospital Regional Genetics Center, Columbus, Ohio;(2) Department of Educational Psychology, University of Minnesota, Minneapolis, Minnesota;(3) Department of Genetics, Cell Biology and Development, Institute of Human Genetics, University of Minnesota, Minneapolis, Minnesota |
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Abstract: | Thirty six members of the Prenatal Diagnosis Special Interest Group of the National Society of Genetic Counselors were interviewed about their use of informed consent documents for the genetic counseling component of their prenatal genetic counseling sessions and their perceptions of the utility and feasibility of such documents. Major findings include (1) None of the genetic counselors currently used a consent document describing the genetic counseling component of the session itself; (2) Only three participants stated that they had ever used an informed consent document for this component of the session; (3) They disagreed about the importance and usefulness of such a document; (4) There was variability in their reported likelihood of using a document if one were available; (5) There was a fair amount of agreement about the types of information to include on an informed consent document for genetic counseling; over half of the sample endorsed 8 of 10 topics; and (6) Participants identified 10 obstacles to using such a document. Recommendations for genetic counseling practice, policy, and research are given. |
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Keywords: | informed consent prenatal genetic counseling |
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