Genetic Counseling: Clinical Geneticists' Views |
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| Authors: | Susan Michie Jonathan A. Smith Jonty Heaversedge Simon Read |
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| Affiliation: | (1) Guy's, King's, and St Thomas', Medical School (King's College, London). Susan Michie, Guy's, King's, and St Thomas' Medical School (KCL), Psychology and Genetics Research Group, Thomas Guy House, Guy's Campus, London, SE1 9RT, United Kingdom;(2) Psychology Department, University of Sheffield, Sheffield, United Kingdom |
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| Abstract: | Evaluation of genetic counseling requires a clear consensus about its objectives, which is not evident in published definitions and guidelines. This study aims to investigate clinical geneticists' beliefs and thoughts about their practice.Structured interviews with eight clinical geneticists addressed the aims, skills, and expectations of genetic counseling. Analysis of transcribed interviews revealed four key themes, with contradictory aspects:1. Providing information that is objective, full, and accurate versus information that is contingent on circumstances and tailored to individual needs.2. Eliciting emotion and dealing with it directly versus dampening down and containing emotion.3. Communicating nondirectively versus directively.4. Expecting to perform a range of sophisticated tasks while having minimal training in the necessary skills to achieve these.These results have implications for the nature of the professional role, the development of training required for it, and the evaluation of genetic counseling. |
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| Keywords: | Genetic counseling nondirective counseling doctor-patient communication health professionals attitudes |
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