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An Assessment of Risk Understanding in Hispanic Genetic Counseling Patients
Authors:Jennifer?N.?Eichmeyer,Hope?Northrup,Michael?A.?Assel,Thomas?J.?Goka,Dennis?A.?Johnston,Aimee?Tucker?Williams  author-information"  >  author-information__contact u-icon-before"  >  mailto:aimee.j.tucker@uth.tmc.edu"   title="  aimee.j.tucker@uth.tmc.edu"   itemprop="  email"   data-track="  click"   data-track-action="  Email author"   data-track-label="  "  >Email author
Affiliation:(1) Division of Medical Genetics, Department of Pediatrics, The University of Texas Medical School at Houston, Texas;(2) Division of Developmental Pediatrics, Department of Pediatrics, The University of Texas Medical School at Houston, Texas;(3) Dean’s Office, Graduate School of Biomedical Sciences, The University of Texas—Houston Health Science Center, Texas;(4) Department of Biomathematics, M.D. Anderson Cancer Center, Houston, Texas;(5) 6431 Fannin, Houston, Texas, 77030
Abstract:This study sought to identify if differences existed in risk comprehension and risk format understanding between genetic counseling patients of Hispanic and Caucasian ethnicity. A total of 107 questionnaires were collected, 56 from Hispanic patients, and 51 from Caucasian controls. Of the total population 41.1% (44/107) could not demonstrate sufficient risk understanding, which was 71.4% (40/56) of Hispanics and 7.8% (4/51) of Caucasians. Fractions were the best-understood format for all participants. However, both Hispanics and Caucasians had difficulties with the percentage risk format. Discrepancies were also noted in qualitative word format understanding. Awareness of differences in risk comprehension may affect the selection of counseling techniques and strategies utilized by genetic counselors when educating patients about risk related information.
Keywords:genetic counseling  decision-making  comprehension  multiculturalism  risk  cross-cultural comparison
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