Psychosocial effects on parents of raising a physically handicapped child

The present study assessed the personality styles, attitudes, perspectives, and coping strategies of 133 mothers and 93 fathers of diabetic, asthmatic, crystic fibrotic, and hearing-impaired children. Across measures, both the essential positive adjustment levels and special problems of the sample were demonstrated, such that they formed a distinct group whose functioning fell between that reported for either normal or poorly-adjusted parents. Furthermore, the presence of the ill child served as the primary contributor to these patterns, with types of illness providing a secondary but significant thrust to its exact extent and scope. Mothers consistently reported more problems and more involvement than fathers, which illustrated their differential roles within these particular families as well as their typical modes of response to the stress of the ill child. Without a doubt, the stress was taking its toll on the parents. Even though they still managed to cope, a focus on the parental needs is necessary in the total management program for the physically ill child.This research was partially supported by NSF Grant GY11537 and NIMH Grant 1 R03-MH26160-01. Their support is gratefully acknowledged. Portions of this paper were presented at the American Psychological Association meetings Chicago, Illinois, September 1975.