首页 | 本学科首页   官方微博 | 高级检索  
     


The Quality of Genetic Counseling and Connected Factors as Evaluated by Male BRCA1/2 Mutation Carriers in Finland
Authors:Outi Kajula  Maria Kääriäinen  Jukka S. Moilanen  Helvi Kyngäs
Affiliation:1.Research Unit of Nursing Science and Health Management,University of Oulu,Oulu,Finland;2.Medical Research Center,Oulu University Hospital and University of Oulu,Oulu,Finland;3.Department of Clinical Genetics,Oulu University Hospital,Oulu,Finland;4.Northern Ostrobothnia Hospital District,Oulu,Finland
Abstract:There is little written about the quality of genetic counseling for men with the BRCA1/2 mutation. The purpose of this study was to describe the quality of genetic counseling and connected factors according to Finnish male BRCA1/2 mutation carriers’ (n?=?35) perspectives and reasons for seeking genetic counseling. Data were collected from the Departments of Clinical Genetics at five Finnish university hospitals. The exploratory study design was conducted using a 51-item questionnaire based on a previously devised quality of counseling model and analyzed using non-parametric tests and principle content analysis. The satisfaction level with genetic counseling was high, especially with regard to the content of genetic counseling. The benefit of genetic counseling on the quality of life differed significantly (p?
Keywords:
本文献已被 SpringerLink 等数据库收录!
设为首页 | 免责声明 | 关于勤云 | 加入收藏

Copyright©北京勤云科技发展有限公司  京ICP备09084417号