Illness Perception and Well-Being Among Persons with Multiple Sclerosis and Their Caregivers |
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| Authors: | Marta Bassi Monica Falautano Sabina Cilia Benedetta Goretti Monica Grobberio Marianna Pattini Erika Pietrolongo Rosa Gemma Viterbo Maria Pia Amato Miriam Benin Alessandra Lugaresi Eleonora Minacapelli Enrico Montanari Francesco Patti Maria Trojano Antonella Delle Fave |
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| Affiliation: | 1.Department of Biomedical and Clinical Sciences L. Sacco,University of Milano,Milan,Italy;2.Neurological Department,Hospital San Raffaele,Milan,Italy;3.Multiple Sclerosis Center,University Polyclinic Hospital G. Rodolico,Catania,Italy;4.Department of NEUROFARBA, Section Neurosciences,University of Florence,Florence,Italy;5.Department of Neurology,S. Anna Hospital,Como,Italy;6.Multiple Sclerosis Center – UOC Neurology Unit,Hospital of Vaio-Fidenza,Fidenza,Italy;7.Department of Neuroscience, Imaging and Clinical Sciences,University “G. d’Annunzio”,Chieti,Italy;8.Department of Basic Medical Sciences, Neurosciences and Sense Organs,University of Bari,Bari,Italy;9.Department of Pathophysiology and Transplantation,University of Milano,Milan,Italy |
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| Abstract: | This study jointly examined illness beliefs held by persons with multiple sclerosis (PwMS) and caregivers in relation to well-being. A group of 68 PwMS and their caregivers completed the Revised Illness Perception Questionnaire, Psychological Well-being Scales, Satisfaction with Life Scale and Positive Affect and Negative Affect Schedule. Findings revealed that PwMS’ well-being was primarily predicted by their own illness beliefs, and that also caregivers’ well-being was primarily predicted by their own beliefs. Across the two groups, well-being was positively associated with their belief that they understood the disease, and inversely associated with their representations of negative emotions. In addition, among PwMS, well-being was inversely associated with the number of symptoms they specifically attributed to their illness, while among caregivers, well-being was positively associated with beliefs that treatment could control the disease. Based on the study findings, psychoeducational and cognitive-behavioral strategies are suggested to promote well-being among PwMS and caregivers. |
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