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Why Patients Decline Genomic Sequencing Studies: Experiences from the CSER Consortium
Authors:Laura M. Amendola  Jill O. Robinson  Ragan Hart  Sawona Biswas  Kaitlyn Lee  Barbara A. Bernhardt  Kelly East  Marian J. Gilmore  Tia L. Kauffman  Katie L. Lewis  Myra Roche  Sarah Scollon  Julia Wynn  Carrie Blout
Affiliation:1.Division of Medical Genetics, Department of Medicine,University of Washington,Seattle,USA;2.Center for Medical Ethics and Health Policy,Baylor College of Medicine,Houston,USA;3.Department of Pediatrics,The Children’s Hospital of Philadelphia,Philadelphia,USA;4.Division of Translational Medicine and Human Genetics, Department of Medicine,Perelman School of Medicine at The University of Pennsylvania,Philadelphia,USA;5.HudsonAlpha Institute for Biotechnology,Huntsville,USA;6.Department of Medical Genetics,Kaiser Permanente Northwest,Portland,USA;7.Center for Health Research,Kaiser Permanente Northwest,Portland,USA;8.Medical Genomics and Metabolic Genetics Branch,National Human Genome Research Institute,Bethesda,USA;9.Departments of Pediatrics and Genetics,University of North Carolina-Chapel Hill,Chapel Hill,USA;10.Department of Pediatrics,Baylor College of Medicine,Houston,USA;11.Department of Pediatrics,Columbia University,New York,USA;12.Division of Genetics, Department of Medicine,Brigham and Women’s Hospital,Boston,USA
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