A comparison of two approaches to education about carrier testing for cystic fibrosis |
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Authors: | Katie P Leonard L Kay Bartholomew Paul R Swank Guy S Parcel |
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Institution: | (1) Department of Molecular and Human Genetics, Baylor College of Medicine, Houston, Texas;(2) Department of Educational Psychology, College of Education, University of Houston, Houston, Texas;(3) Center for Health Promotion Research and Development, University of Texas Houston Health Science Center, Houston, Texas;(4) Department of Health Education, Texas Children's Hospital MC 4-3250, P.O. Box 300630, 77230-0630 Houston, Texas |
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Abstract: | We tested the efficacy of two types of educational materials for genetic counseling: a traditional information brochure and one adding a role model story. Brochures were alternated weekly at a prenatal genetics center. Subjects were asked to read the brochure and fill out a questionnaire covering demographics and variables from the health belief model (impact, barriers, motivation, susceptibility, knowledge, severity). A group of 409 pregnant women and 251 male partners participated. Study design was quasiexperimental, using a post-test only comparison group. The brochure with modeling enhanced the perception of both risk and the severity of the disease and was inversely associated with the assessment of barriers, but did not directly impact on the decision to pursue testing; only 12% chose to be tested, with no significant differences between groups. While suggestive, the study is not confirmatory and should be repeated with a more heterogenous group of women. |
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Keywords: | social cognitive theory role modeling health belief model carrier screening cystic fibrosis |
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