A Comparative Analysis of Ethical and Professional Challenges Experienced by Australian and U.S. Genetic Counselors |
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| Authors: | Sarah Alliman Patricia McCarthy Veach Dianne M. Bartels Fengqin Lian Carolyn James Bonnie S. LeRoy |
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| Affiliation: | (1) Signature Genomics, Spokane, WA, USA;(2) Department of Educational Psychology, University of Minnesota, Minneapolis, MN, USA;(3) Center for Bioethics, University of Minnesota, Minneapolis, MN, USA;(4) Department of Educational Psychology, University of Minnesota, Minneapolis, MN, USA;(5) Royal Children’s Hospital and Health Service District, Queensland, Australia;(6) Department of Genetics, Cell Biology, and Development, Institute of Human Genetics, University of Minnesota, Minneapolis, MN, USA; |
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| Abstract: | Ethical issues are an inevitable part of genetic counseling practice. Prior research identified 16 domains of ethical and professional challenges encountered by practitioners in the United States. In order to further validate these domains, the present study surveyed Australian genetic counselors. Sixty-three respondents rated the frequency with which they encountered each domain, and 39 individuals also provided personal anecdotes detailing their most challenging ethical and professional dilemmas. Every domain reportedly was experienced by the Australian sample. However, there were some differences between Australian respondents and U.S. genetic counselors in frequencies of domain occurrence, and in strategies recommended for resolving them. Several anecdotes illustrate challenging situations due to Australia’s geography, universal healthcare system, and the genetic counseling profession’s evolution in that country. The results generally validate domains identified for U.S. genetic counselors. They further suggest that certain ethical issues may manifest in ways unique to a given country, and therefore they must be addressed in a culturally-appropriate manner. |
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