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Shared Decision-Making Among Caregivers and Health Care Providers of Youth with Type 1 Diabetes |
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| Authors: | Jessica M Valenzuela Laura B Smith Jeanette M Stafford Ralph B D’Agostino Jr Jean M Lawrence Joyce P Yi-Frazier Michael Seid Lawrence M Dolan |
| Institution: | 1. Center for Psychological Studies, Nova Southeastern University, 3301 College Ave., Fort Lauderdale, FL, 33314, USA 2. Department of Pediatrics, University of South Florida Diabetes Center, Morsani College of Medicine, University of South Florida, Tampa, FL, USA 3. Division of Public Health Sciences, Department of Biostatistical Sciences, Wake Forest School of Medicine, Winston-Salem, NC, USA 4. Department of Research & Evaluation, Kaiser Permanente Southern California, Pasadena, CA, USA 5. Department of Pediatrics, University of Washington School of Medicine, Seattle, WA, USA 6. Division of Pulmonary Medicine, Department of Pediatrics, Cincinnati Children’s Hospital Medical Center, Cincinnati, OH, USA 7. Division of Endocrinology, Department of Pediatrics, Cincinnati Children’s Hospital Medical Center, Cincinnati, OH, USA |
| Abstract: | The present study aimed to examine perceptions of shared decision-making (SDM) in caregivers of youth with type 1 diabetes (T1D). Interview, survey data, and HbA1c assays were gathered from caregivers of 439 youth with T1D aged 3–18 years. Caregiver-report indicated high perceived SDM during medical visits. Multivariable linear regression indicated that greater SDM is associated with lower HbA1c, older child age, and having a pediatric endocrinologist provider. Multiple logistic regression found that caregivers who did not perceive having made any healthcare decisions in the past year were more likely to identify a non-pediatric endocrinologist provider and to report less optimal diabetes self-care. Findings suggest that youth whose caregivers report greater SDM may show benefits in terms of self-care and glycemic control. Future research should examine the role of youth in SDM and how best to identify youth and families with low SDM in order to improve care. |
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