Perception of social support among family caregivers of vegetative patients: A qualitative study |
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| Affiliation: | 1. Melbourne School of Psychological Sciences, The University of Melbourne, Melbourne, Victoria, Australia;2. Epilepsy Research Centre, Department of Medicine (Austin Health), University of Melbourne, Australia;3. Department of Neurosciences, Medicine, Nursing and Health Sciences, Monash University, Australia;4. Melbourne Brain Centre, The Royal Melbourne Hospital, Department of Medicine, University of Melbourne, Australia;1. University of Colorado, College of Nursing, 13120 E 19th Ave., Aurora, CO 80045, United States;2. Columbia University, School of Nursing, 560 W 168th street, New York, NY 10032, United States;3. University of Iowa, College of Nursing, 50 Newton Road Iowa City, Iowa City, Iowa, IA 52242, United States |
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| Abstract: | A vegetative state (VS) is the probable result after brain damage. After VS patients are discharged from the hospital, the responsibility of caring of them is transferred to their families, which impacts a caregiver’s physical and psychological health. Social support as a valuable resource reduces the negative effects of stressful events. This study aimed to explore the perception of social support among family caregivers of VS patients.This study is a part of a larger qualitative study which used the descriptive and qualitative method. Purposeful and theoretical sampling was done, and data was gathered through face-to-face, in-depth interviews. The four categories of “Family, a supporter in all aspects,” “Beautiful emanation of the nurse’s role,” “Revitalization via empathy and companionship,” and “Defects in support,” were extracted. The primary concern of participants was receiving social support which can facilitate caregiving and coping with difficulties, but there are many shortcomings in supporting these caregivers. |
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| Keywords: | Family caregivers Social support Vegetative state Qualitative study |
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