The tasks of self-managing hepatitis C: The significance of disclosure

The narratives of those with hepatitis C were viewed through the lens of Corbin and Strauss’ Corbin, J., & Strauss, A. (1988). Unending work and care: Managing chronic illness at home. The Jossey-Bass health series and The Jossey-Bass social and behavioral science series. San Francisco, CA: Jossey-Bass.] self-management model for chronic illness, using qualitative methodology. Fifteen Australian hepatitis C positive interviewees described the challenges and turning points in adjusting to their diagnosis. The data were analysed using open- and closed-coding methods. Support was found for a self-management model encompassing medical, emotional and life role facets for those adjusting to life with hepatitis C. Unique challenges emerged beyond those described by Corbin and Strauss (1988 Corbin, J and Strauss, A. 1988. Unending work and care: Managing chronic illness at home, The Jossey-Bass health series and The Jossey-Bass social and behavioral science series San Francisco, CA: Jossey-Bass.  Google Scholar]), namely that disclosure impacted both positively and negatively on the tasks of self-management. It was concluded that self-management may be compromised by disclosure, particularly distress derived from hepatitis C-related stigma. The self-management tasks described contribute to broadening clinicians’ understanding of the challenges faced by those living with hepatitis C.