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Exploring Genetic Counseling Communication Patterns: The Role of Teaching and Counseling Approaches
Authors:Lee Ellington  Bonnie J. Baty  Jamie McDonald  Vickie Venne  Adrian Musters  Debra Roter  William Dudley  Robert T. Croyle
Affiliation:(1) University of Utah College of Nursing, 10 South 2000 East, Salt Lake City, 84112, Utah, USA;(2) Division of Medical Genetics, 50 N. Medical Drive, Salt Lake City, 84132, Utah, USA;(3) Department of Radiology, 50 N. Medical Dr, Salt Lake City, 84132, Utah, USA;(4) Huntsman Cancer Institute, 2000 Circle of Hope, Salt Lake City, 84112, Utah, USA;(5) The Johns Hopkins University, 624 North Broadway, Baltimore, 21205, Maryland, USA;(6) National Cancer Institute, 6130 Executive Blvd, Executive Plaza North, Bethesda, 20892, Maryland, USA;(7) University of Utah College of Nursing, 10 South 2000 East, Salt Lake City, 84112, Utah, USA
Abstract:The educational and counseling models are often touted as the two primary professional approaches to genetic counseling practice. Yet, research has not been conducted to examine how these approaches are used in practice. In the present study, we conducted quantitative communication analyses of BRCA1 genetic counseling sessions. We measured communication variables that represent content (e.g., a biomedical focus) and process (e.g., passive listening) to explore whether genetic counselor approaches are consistent with prevailing professional models. The Roter Interaction Analysis System (RIAS) was used to code 167 pre-test genetic counseling sessions of members of a large kindred with an identified BRCA1 mutation. Three experienced genetic counselors conducted the sessions. Creating composite categories from the RIAS codes, we found the sessions to be largely educational in nature with the counselors and clients devoting the majority of their dialogue to providing biomedical information (62 and 40%, respectively). We used cluster analytic techniques, entering the composite communication variables and identified four patterns of session communication: Client-focused psychosocial, biomedical question and answer, counselor-driven psychosocial, and client-focused biomedical. Moreover, we found that the counselors had unique styles in which they combined the use of education and counseling approaches. We discuss the importance of understanding the variation in counselor communication to advance the field and expand prevailing assumptions.
Keywords:communication  patterns  BRCA1  genetic counseling  cluster analysis.
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