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Children and Parents as Members of the Research Team: Fair Employment Practices Without a Union Contract
Authors:Ryan Spellecy  L Eugene Arnold  Thomas May
Institution:1. Medical College of Wisconsin;2. Ohio State University
Abstract:In clinical mental health research with children, both child and parent are essential members of the research team. The 3 R's of parent/child team membership are respect, rapport, and recognition. Respect and recognition include fair reimbursement for time, expense, and inconvenience, but the most important compensation for many families is the appreciation of the other team members for their sacrifice and cooperation. Reimbursement, although honoring the principles of justice and respect for persons, raises difficult issues about appropriate amount, particularly in research involving children. The 3 R's are supported by the investigator 5 A's: attitude, adaptability, availability, attachment, and appreciation. Although the principles seem clear in the abstract, implementation encounters many practical problems. Perhaps the most difficult of these is determining the appropriate amount of compensation that avoids undue inducement but not at the expense of the 3 R's and 5 A's.
Keywords:parents  children  research team  reimbursement  ethics
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