The human genome project: A public forum. Report on a model conference for genetics professionals and consumers |
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Authors: | Eunpu Deborah L. Weiss Joan O. |
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Affiliation: | (1) Department of Pediatrics, Albert Einstein Medical Center and Tempie University School of Medicine, USA;(2) Alliance of Genetic Support Groups, USA;(3) Developmental Medicine and Genetics, Levy 2 West, Albert Einstein Medical Center, 5501 Old York Road, 19141-3098 Philadelphia, Pennsylvania |
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Abstract: | This paper reports on the rationale, objectives, and outcome of a conference titled The Human Genome Project: A Public Forum. One of the distinguishing features of this conference was that it included both genetics professionals and consumers of genetics services in a dialogue about the potential ethical, legal, and social implications of learning more about one's genes. The conference was planned to yield two products: (1) a set of recommendations for planners of future educational, research, and public policy efforts related to the Human Genome Project; and (2) an assessment of participants' pre- and post-conference knowledge and opinions about the Human Genome Project. |
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Keywords: | human genome project genetics education opinions and knowledge about thehuman genome project |
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