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The human genome project: A public forum. Report on a model conference for genetics professionals and consumers
Authors:Eunpu  Deborah L.  Weiss  Joan O.
Affiliation:(1) Department of Pediatrics, Albert Einstein Medical Center and Tempie University School of Medicine, USA;(2) Alliance of Genetic Support Groups, USA;(3) Developmental Medicine and Genetics, Levy 2 West, Albert Einstein Medical Center, 5501 Old York Road, 19141-3098 Philadelphia, Pennsylvania
Abstract:This paper reports on the rationale, objectives, and outcome of a conference titled ldquoThe Human Genome Project: A Public Forum.rdquo One of the distinguishing features of this conference was that it included both genetics professionals and consumers of genetics services in a dialogue about the potential ethical, legal, and social implications of learning more about one's genes. The conference was planned to yield two products: (1) a set of recommendations for planners of future educational, research, and public policy efforts related to the Human Genome Project; and (2) an assessment of participants' pre- and post-conference knowledge and opinions about the Human Genome Project.
Keywords:human genome project  genetics education  opinions and knowledge about thehuman genome project
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