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Cognitive-Behavioural Therapy Targeting Fear of Progression in an Interdisciplinary Care Program: A Case Study in Systemic Sclerosis
Authors:Linda Kwakkenbos  Linda M. Willems  Frank H. J. van den Hoogen  Wim G. J. M. van Lankveld  Hanneke Beenackers  Toon F. van Helmond  Eni S. Becker  Cornelia H. M. van den Ende
Affiliation:1. Department of Rheumatology, Sint Maartenskliniek, Nijmegen, The Netherlands
2. Department of Psychiatry, McGill University, Montreal, Canada
3. Lady Davis Institute for Medical Research, Jewish General Hospital, 4333 Cote Ste Catherine Road, Montreal, QC, H3T 1E4, Canada
4. Department of Rheumatology, Radboud University Medical Center, Nijmegen, The Netherlands
5. Institute of Health Studies, HAN University of Applied Sciences, Nijmegen, The Netherlands
6. Clinical Psychology, Behavioural Science Institute, Radboud University Nijmegen, Nijmegen, The Netherlands
Abstract:People living with chronic illness often report uncertainty about the future, fear of disease progression, fear of becoming physically disabled, and a reduced life expectancy as important sources of stress. However, little is known about psychological interventions targeting these concerns. The aim of this study is to illustrate an intervention to reduce emotional distress and concerns about the future in a patient with systemic sclerosis (SSc), a rare chronic rheumatic disease with serious consequences for most patients, and to present a preliminary report on its effectiveness using a single-case study design. Because of the complexity of symptoms and complaints due to SSc, the psychological intervention was embedded in an interdisciplinary care program also consisting of physical therapy, occupational therapy, and specialized nurse care.
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