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Parental Problem-Solving Abilities and the Association of Sickle Cell Disease Complications with Health-Related Quality of Life for School-Age Children |
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| Authors: | Lamia P. Barakat Lauren C. Daniel Kelsey Smith M. Renée Robinson Chavis A. Patterson |
| Affiliation: | 1. Division of Oncology, The Children’s Hospital of Philadelphia, 3501 Civic Center Blvd., 10303 CTRB, Philadelphia, PA, 19104, USA 2. Department of Pediatrics, Perelman School of Medicine of the University of Pennsylvania, Philadelphia, PA, USA 3. Department of Psychology, University of South Carolina, Columbia, SC, USA 4. Division of Hematology/Oncology, St. Christopher’s Hospital for Children, Drexel University College of Medicine, Philadelphia, PA, USA 5. Division of Neonatology, The Children’s Hospital of Philadelphia, Philadelphia, PA, USA 6. Department of Psychiatry, Perelman School of Medicine of the University of Pennsylvania, Philadelphia, PA, USA |
| Abstract: | Children with sickle cell disease (SCD) are at risk for poor health-related quality of life (HRQOL). The current analysis sought to explore parent problem-solving abilities/skills as a moderator between SCD complications and HRQOL to evaluate applicability to pediatric SCD. At baseline, 83 children ages 6–12 years and their primary caregiver completed measures of child HRQOL. Primary caregivers also completed a measure of social problem-solving. A SCD complications score was computed from medical record review. Parent problem-solving abilities significantly moderated the association of SCD complications with child self-report psychosocial HRQOL (p = .006). SCD complications had a direct effect on parent proxy physical and psychosocial child HRQOL. Enhancing parent problem-solving abilities may be one approach to improve HRQOL for children with high SCD complications; however, modification of parent perceptions of HRQOL may require direct intervention to improve knowledge and skills involved in disease management. |
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