首页 | 本学科首页   官方微博 | 高级检索  
   检索      


The Colored, Eco-Genetic Relationship Map (CEGRM): A Conceptual Approach and Tool for Genetic Counseling Research
Authors:Regina Kenen  June Peters
Institution:(1) Department of Sociology and Anthropology, The College of New Jersey, Ewing, New Jersey;(2) Clinical Genetics Branch, Genetic Epidemiology Division, National Cancer Institute, Rockville, Maryland
Abstract:The Colored Ecological and Genetic Relational Map (CEGRM) pronounced see-gram] is a conceptual approach and tool for presenting information about family and nonkin relationships and stories about inherited diseases in a simple, understandable form. It combines information that can be derived from pedigrees, genograms, ecomaps, and social network analysis in a single, or series of, pictorial maps based on colors and shapes. The CEGRM is based on a social systems perspective, particularly emphasizing social exchange and resource theories. The CEGRM should be particularly useful in genetic counseling research with members of suspected cancer-risk families or families with other late-onset inherited diseases. A genetic counseling client comes with a social history and context as well as a genetic one. Client decision-making in terms of reproductive plans, therapeutic intervention, lifestyle behavior and sharing or withholding of genetic information frequently becomes enmeshed with preexisting psycho-social relationships among biological kin, affinal kin (in-laws) and fictive kin (friends who act as family). The CEGRM makes it easier to compare different types of social interactions between the client and his/her significant others and among family members on the same dimensions.
Keywords:cancer genetics  late-onset genetic disorders  genetic counseling  genograms  social network analysis  family relationships  nonkin relationships
本文献已被 SpringerLink 等数据库收录!
设为首页 | 免责声明 | 关于勤云 | 加入收藏

Copyright©北京勤云科技发展有限公司  京ICP备09084417号