The Colored, Eco-Genetic Relationship Map (CEGRM): A Conceptual Approach and Tool for Genetic Counseling Research |
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Authors: | Regina Kenen June Peters |
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Institution: | (1) Department of Sociology and Anthropology, The College of New Jersey, Ewing, New Jersey;(2) Clinical Genetics Branch, Genetic Epidemiology Division, National Cancer Institute, Rockville, Maryland |
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Abstract: | The Colored Ecological and Genetic Relational Map (CEGRM) pronounced see-gram] is a conceptual approach and tool for presenting information about family and nonkin relationships and stories about inherited diseases in a simple, understandable form. It combines information that can be derived from pedigrees, genograms, ecomaps, and social network analysis in a single, or series of, pictorial maps based on colors and shapes. The CEGRM is based on a social systems perspective, particularly emphasizing social exchange and resource theories. The CEGRM should be particularly useful in genetic counseling research with members of suspected cancer-risk families or families with other late-onset inherited diseases. A genetic counseling client comes with a social history and context as well as a genetic one. Client decision-making in terms of reproductive plans, therapeutic intervention, lifestyle behavior and sharing or withholding of genetic information frequently becomes enmeshed with preexisting psycho-social relationships among biological kin, affinal kin (in-laws) and fictive kin (friends who act as family). The CEGRM makes it easier to compare different types of social interactions between the client and his/her significant others and among family members on the same dimensions. |
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Keywords: | cancer genetics late-onset genetic disorders genetic counseling genograms social network analysis family relationships nonkin relationships |
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