My Identical Twin Sequenced our Genome |
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Authors: | Samantha LP Schilit Arielle Schilit Nitenson |
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Institution: | 1.Department of Genetics,Harvard Medical School,Boston,USA;2.Department of Neuroscience,Brown University,Providence,USA |
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Abstract: | With rapidly declining costs, whole genome sequencing is becoming feasible for widespread use. Although cost-effectiveness is driving increased use of the technology, comprehensive recommendations on how to handle ethical dilemmas have yet to reach a consensus. In this article, Sam shares her experience of undergoing whole genome sequencing. Despite the deeply private nature of the test, the results do not solely belong to Sam; her identical twin sister, Arielle, shares virtually the same genome and received results without a formal consent process. This article explores their parallel experiences as a way of highlighting the controversial ethics of a private test with familial implications. |
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