Mentally retarded persons as parents: Prevalence and the situation of their children

This paper describes a research program on mentally retarded parents and their children. For this nation-wide study, two structured questionnaires were sent to all municipalities in Norway. Both questionnaires were sent to public health nurses and were followed-up by a structured telephone interview based on the questionnaires. The primary aim of the study was to survey the number of children born to mentally retarded parents. In addition, the children's needs and functional abilities were to be assessed. Twenty-three mentally retarded persons had given birth in the course of the past twelve months. A total of 126 children with mentally retarded parents were identified, with an incidence of 27 children per year, and a prevalence of approximately 430 children under 16 years of age in a population of 4 mill. People with a mean of 1.05 child per family. About 43% of the children of mentally retarded parents appeared to have learning difficulties. Forty percent of the children suffered from failures of care. Between 25% and 68% of the children with learning problems had poorly developed motor or language abilities, sense modalities or psycho-social status.     

Informal Caregiving to Persons with AIDS in the United States: Caregiver Burden Among Central Cities Residents Eighteen to Forty-Nine Years Old

Characteristics and caregiving experiences of friends and family members caring for people with AIDS (PWAs) were examined. Based on a probability sample of informal AIDS caregivers ages 18–49 living in central cities of the United States (n = 260), analyses were conducted to (a) identify the sociodemographic characteristics of young central city caregivers; and (b) examine the effects of caregiver characteristics (relationship to PWA, gender, race/ethnicity, income, sexual orientation, HIV status, perceived susceptibility), and level of objective caregiving demands, on subjective caregiver burden. Results indicate that the largest group of caregivers in this age category are male friends of the PWA—a group not typically found among caregivers to persons with other types of illnesses. In general, gay or bisexual caregivers, caregivers who have traditional family ties to the PWA, men relative to women, and lower income caregivers, report the greatest burden. While level of caregiving demands represents the most influential predictor of caregiver burden, white and male caregivers experience greater burden, independent of level of involvement and other caregiver characteristics. Receiving instrumental support with caregiving buffers the impact of high objective demands on subjective burden.     

Adverse caregiving in early life: The trauma and deprivation distinction in young children

Knowledge and understanding about the impact of cumulative adverse experiences on the health and wellbeing of children, adolescents, and adults has rapidly expanded over the past 30 years. Despite the invaluable attention and support this proliferation has drawn to the importance of early childhood experiences, we believe that it is time to move beyond broad indices of risk and toward more specific and individualized understanding of how risk exposures are linked to clinical outcomes in young children. Within infant and early childhood mental health, there is a need for greater specificity in linking adverse caregiving experiences in early life to psychopathology in children. We highlight a framework distinguishing experiences of trauma from experiences of deprivation and use the examples of posttraumatic stress disorder and reactive attachment disorder to demonstrate how greater specificity in our understanding of early adverse caregiving can lead to more accurate and targeted diagnosis and treatment for young children. Both researchers and clinicians benefit from an approach to gain a greater appreciation of the links between specific types of experiences and outcomes in the children that we serve.     

Antenatal caregiving representations and perinatal behavior in mothers with severe lifetime psychopathology

Psychopathology poses a risk for optimal parenting. The current study explored antenatal caregiving representations as markers for later risk of nonoptimal maternal behavior among mothers with severe mental illness. Sixty-five mothers diagnosed with psychosis, bipolar disorder, depression (psychopathology group), and nonclinical controls participated in a longitudinal study from pregnancy to 16 weeks after birth. Mental health diagnoses and caregiving representations were assessed during pregnancy. Maternal behavior was assessed during the 5-min recovery phase of the still-face paradigm at 16 weeks. Mothers with psychopathology reported significantly higher levels of “heightened” caregiving representations (i.e., separation anxiety from the child) than did controls. The only significant diagnostic group difference in perinatal maternal behavior was that mothers diagnosed with depression exhibited more overriding-intrusive behavior than did nonclinical control mothers. Regression modeling results showed that antenatal caregiving representations of “role reversal” predicted significantly lower levels of sensitivity and higher levels of overriding-intrusive behavior independent of the effect of psychopathology. The findings can be interpreted in the context of representational transformation to motherhood during pregnancy. The results provide preliminary evidence for the potential of a new questionnaire measure of caregiving representations as a screening instrument for antenatal representational risk.     

Relations Between Coping and Positive and Negative Outcomes in Carers of Persons with Multiple Sclerosis (MS)

This study examined relations between stress and coping predictors and negative and positive outcomes in MS caregiving. A total of 222 carers and their care-recipients completed questionnaires at Time 1 and three months later, Time 2 (n = 155). Predictors included care-recipient characteristics (age, time since diagnosis, course and life satisfaction), and Times 1 and 2 carer problems, stress appraisal and coping. Dependent variables were Time 2 negative (anxiety, depression) and positive outcomes (life satisfaction, positive affect, benefits). Regressions indicated that, overall, the hypothesised direct effects of stress appraisal and coping strategies on positive and negative outcomes were supported. The hypothesised stress-buffering effects of positive reframing coping were also supported. All but one of the coping strategies were related to both positive and negative outcomes; specifically, practical assistance coping emerged as a unique predictor of distress. Of the model predictors, care-recipient life satisfaction emerged as the strongest and most consistent predictor of both positive and negative outcomes except benefit finding. Findings support the role of care-recipient characteristics and the carers appraisal and coping processes in shaping both positive and negative outcomes. The guiding framework and findings have the potential to inform interventions designed to promote well-being in carers.     

Making space for India in post-apartheid South Africa: Narrating diasporic subjectivities through classical song and dance

Background/purposeDiasporic associations and hometown groups fuel transnational exchanges and circulations. Their role has mostly been understood in terms of broader calculative agendas related to ethnic and national cultural politics. In South Africa, classical Indian singers, dancers and instrumentalists are an important part of these transnational landscapes. This paper focuses on the individual actors giving shape to these flows, and explores how a range of subjectivities is entangled with the materialities and forces present in classical performance spaces.Methods and resultsDrawing on fieldwork in Durban, South Africa, it explores how, and why organising actors assemble the matter of classical performance spaces. The paper also explores interconnections to Bollywood as another emergent diasporic site both in tension and accord with classical Indian performances.ConclusionDrawing from a feminist social practice approach, this paper argues that diaspora associational life is assembled through agents negotiating different gaps and discrepancies arising from the material and affective inhabitation of diasporic worlds.     

Experimentally enhancing self-compassion: Moderating effects of trait care-seeking and perceived stress

Social mentality theory suggests that the ability to be reassuring and compassionate to oneself relies on the activation of care-seeking and caregiving mentalities. In this experimental study, college students were randomly assigned to recall memories of care-seeking, caregiving, a combination of care-seeking and caregiving, having fun (active control group), or a no-treatment control group. Participants completed the memory recall task twice per day for four days and were assessed on pre- and post-test levels of self-reassurance. Findings showed a moderating effect of individual differences in trait care-seeking and perceived stress. In response to the caregiving interventions, high care-seekers exhibited increased self-reassurance whereas low care-seekers exhibited decreased self-reassurance. In response to the care-seeking interventions, highly stressed individuals showed increased self-reassurance. Findings suggest that fostering self-compassion/reassurance can be achieved for certain individuals by activating the interpersonal processes involved in care-seeking and caregiving with others.     

Constructing the boundaries of Anglican orthodoxy: An analysis of the Global Anglican Future Conference (GAFCON)

This article examines the evolution of the transnational orthodox Anglican movement through the lens of the Global Anglican Future Conference (GAFCON)—the movement’s most significant public expression to date. GAFCON represented the first large-scale event at which a sizable number of Anglicans (ordained and lay) from both the global North and global South gathered to galvanise an ‘orthodox’ response to the current ‘crisis’ in the Anglican Communion (a crisis precipitated by debates over the status of homosexuality). The analysis is based upon fieldwork conducted at GAFCON, a review of a range of documentary sources, and retrospective interviews with several attendees. The article argues that GAFCON constituted a key moment for the attempted framing of movement objectives for participants, other Anglicans, and outside observers, fixing a standard of orthodoxy in the final Jerusalem Declaration. While attempting to project an image of orthodox unity to outsiders, GAFCON leaders also made the negotiation of certain aspects of cultural difference central to the event’s purpose. Detailed examinations are provided of two topics (homosexuality and female ordination) that exemplify the ongoing negotiation of the boundaries of orthodoxy within the movement. The article concludes with reflections on the significance and further development of the movement.     

Exploring Sensory Integrative Treatment in Chronic Schizophrenia

An investigation of the efficacy of sensory integrative treatment of the psychiatric status and physical functioning of patients with chronic schizophrenia is reported. Patients were involved in sequenced sensory integrative treatment over a seventeen week period. Significant improvement was found in scores of the NOSIE-30 as well as on some of the usual idicators of sensory integrative status: thumb-finger opposition, diadochokinesis, eye pursuits and balance. Length of treatment time was linearly related to amount of improvement.