The Study of Language in the Amyotrophic Lateral Sclerosis - Frontotemporal Spectrum Disorder: a Systematic Review of Findings and New Perspectives

Amyotrophic Lateral Sclerosis is a neurodegenerative disorder characterized primarily by motor network disruption. Extra-motor manifestations including executive functions, social cognition, and behavioral changes are now well recognized as important features of ALS, and are associated with frontotemporal and frontostriatal network disruption. However, the presence and characterization of language changes has received less attention. This systematic review characterizes the profile of reported language dysfunction in ALS. PRISMA guidelines were implemented to carry out and report the review. Current evidence suggests that areas of neuroanatomical disruption in ALS spread to language centers such as posterior, inferior frontal and superior temporal areas leading to deficits in word retrieval, syntactic and grammatical processing, and spelling. However, the majority of studies of language in ALS have been limited by the recruitment of small clinic-based prevalent samples and important questions remain regarding the incidence and progression of language impairment in ALS. Further studies from population-based incident cohorts will help to determine the range of language deficits in ALS, and how these relate to previously defined executive and behavioral sub-phenotypes.     

Reclaiming “Mydentity”: Counterstorytelling to challenge injustice for racially and economically marginalized emerging adults

Emerging adulthood is an important period for identity development, the development of sociopolitical beliefs, and establishment of social roles and responsibilities. As a part of this development, counterstorytelling—narrative processes that contrast and challenge dominant oppressive narratives—may be used within counterspaces to facilitate positive identity development and to challenge injustice. In this qualitative study, we analyse interviews with and poetry from 12 emerging adults who were facilitators within a youth critical literacy program to understand how counterstorytelling functions to both facilitate identity development and challenge injustice. We found evidence of two superordinate themes: reclaiming identity, taking ownership of identity through counterstorytelling; and co-creating a narrative community, collectively building community through counterstorytelling. Findings support counterstorytelling promotes emergent identity development and works as a strategy for challenging injustice and oppression for marginalized emerging adults. Implications for practitioners and future research are discussed.     

Engaged Against the Machine: Institutional and Cultural Racial Discrimination and Racial Identity as Predictors of Activism Orientation among Black Youth

The current study examines how experiences of institutional and cultural racial discrimination relate to orientations toward activism in the Black community among Black adolescents and emerging adults. Furthermore, we investigate the role of racial identity (centrality, public regard, nationalism) as moderators of those relations. In a national sample of 888 Black adolescents and emerging adults, we found that experiences of cultural racial discrimination, racial centrality, and nationalism ideology were related to a greater orientation toward low‐risk Black community activism. For high‐risk activism, nationalism was associated with a greater likelihood to participate in future social action in the Black community. The relation between experiences of institutional racial discrimination and high‐risk activism orientation was moderated by public regard. For Black adolescents and emerging adults who believe others view Black people negatively, more experiences of institutional racial discrimination were related to a greater high‐risk activism orientation. Findings highlight the importance of investigating racial discrimination as a multidimensional construct that extends beyond individual interactions and microaggressions. Furthermore, these findings underscore how phenomenological variation in experiences of racial discrimination and racial identity differentially influence adolescent and emerging adult orientations toward social action in and for the Black community.