排序方式: 共有2条查询结果,搜索用时 0 毫秒
1
1.
Kaimal G Steinberg AG Ennis S Harasink SM Ewing R Li Y 《Journal of genetic counseling》2007,16(6):775-787
Few studies examine whether and how parental attitudes towards genetic testing change over time. In this study we interviewed
parents of 14 children with newly identified hearing loss at two time points: after referral to genetics and 1 year later.
Qualitative analyses of parental narratives indicate that parental attitudes did not change significantly over this time.
Parents who perceived genetic testing to be useful continued to value it after testing, while parents who did not perceive
it as being useful for their child’s future held the same view a year later. The only parents who changed their views regarding
the usefulness of genetic testing for hearing loss were those who reported that their children underwent significant changes
in their hearing loss or were faced with other life threatening conditions. Parents were also often unaware of the role of
the genetic counselor and how genetic counseling could help address many of their lingering questions and concerns. These
emergent themes indicate the need for geneticists and genetic counselors to be aware of and sensitized to the questions and
attitudes that bring parents to a genetic evaluation, as well as the reasons why parents may not follow up with genetic testing
for hearing loss when recommended. 相似文献
2.
1