Participatory action research: The distress of (not) making a difference

Participatory action research (PAR) is alluring for researchers investigating traumatic and sensitive topics. While it is distressing for interviewees to recount these stories – and for researchers to hear them – PAR promises to make the pain worthwhile. Something good will come of it. In this paper, I reflect on a PAR project conducted with Tanzanian child domestic workers. Research vignettes are used to highlight moments of emotional complexity unique to PAR projects. First, the emotional burdens of PAR are distributed across a research team. Researchers need to think carefully about the appropriate ‘level’ of participation to pursue. Second, there is no guarantee that the impacts of PAR projects will be unambiguously positive. The risk of doing more harm than good can weigh heavily on the minds of the research team. Third, when PAR projects are conceived with the intent of producing long-lasting structural changes that benefit marginalised people, ‘failure’ can become a source of great distress. Those attempting PAR need to be prepared for the emotional pitfalls of research endeavours that seek to tangibly intervene in traumatised people's lives.     

Participant Reflexivity in Community‐Based Participatory Research: Insights from Reflexive Interview,Dialogical Narrative Analysis,and Video Ethnography

Focusing on researchers, the predominant discourse on reflexivity has seldom considered the contribution that participants could make to research through their self‐reflections. To bring to light the significance of participants' self‐reflection in participatory inquiries, I develop the concept of participant reflexivity, referring to the process in which participants use insights gained through self‐reflection for data analysis and group discussion. My discussion is based on a community‐based participatory research project conducted with a group of adult learners on their educational experiences. I examined the accounts shared by one of the participants by using insights from the theories of reflexive interview, dialogical narrative analysis and video ethnography, and found that her accounts played a pivotal role in evoking group reflections and drawing the conclusion of the project. I argue that participant reflexivity is a useful construct that can do justice to what participants can uniquely offer in participatory inquiries. The concept can also contribute to advancing knowledge of reflexivity by complementing the researcher‐focused predominant discourse on reflexivity. Copyright © 2015 John Wiley & Sons, Ltd.     

The Balancing Act—Ethical Issues in Parent Training Research: Confidentiality,Harm Reduction,and Methodology

Attention and disruptive behavior disorders present considerable challenges for children and their parents. These challenges have led to the development of parenting programs; however, there is a paucity of literature that discusses the ethical dilemmas parent training researchers face. This article reviews ethical principles and professional standards relevant to parent training research and provides case material to illustrate the challenge of balancing ethical adherence and empirical rigor using three ethical issues that commonly arise in parent training research. In particular, this article focuses on ethical issues surrounding confidentiality in a group setting, use of control groups, and limiting changes in medication/treatment status outside of the treatment protocol.     

From victimhood to sisterhood – A practice-based reflexive inquiry into narrative informed group work with women who have experienced sexual abuse

This paper will present some of the relational contexts and considerations of a female therapist’s role within an island community group for women who have shared experiences of abuse and injustice; her relationship to the group, to her systemic and narrative practices; and to the research that has ensued. Exploring the changing relational contexts as the group moves from a facilitator led to a peer support group; and the associated language shifts from a binary discourse of ‘other than’ to a collective definition of ‘sisterhood’ is part of the story, which also includes the important themes of community engagement, social action and the complexities of insider/practice-based research.     

“Sport is community:” An exploration of urban Aboriginal peoples' meanings of community within the context of sport

ObjectivesThe purpose of this study was to better understand the meanings of community, particularly as it is understood within the context of sport, for urban Aboriginal youth and adults in Edmonton, Alberta.DesignA community-based participatory research (CBPR) approach was used to guide this research.MethodOne-on-one interviews were conducted with 18 Aboriginal youth and adults. Data was analyzed using Elo and Kyngäs' (2008) process of content analysis. The integrated indigenous-ecological model was used as a framework for data analysis and the interpretation of findings.ResultsFindings are represented by five themes that are supported by direct quotes from participants. Participants described community as: (1) belonging, (2) family and friends, (3) supportive interactions, (4) sport, and (5) where you live and come from.ConclusionsFindings from this research suggest that urban Aboriginal youth identify with a number of different communities, and their complex meanings of communities are comprised of various interpersonal level factors. The knowledge shared by participants provides necessary insights into meanings of community, which are necessary for ensuring that community-driven and community-based sport programs are relevant to Aboriginal youth.     

Selecting the Right Tool For the Job

There are competing ethical concerns when it comes to designing any clinical research study. Clinical trials of possible treatments for Ebola virus are no exception. If anything, the competing ethical concerns are exacerbated in trying to find answers to a deadly, rapidly spreading, infectious disease. The primary goal of current research is to identify experimental therapies that can cure Ebola or cure it with reasonable probability in infected individuals. Pursuit of that goal must be methodologically sound, practical and consistent with prevailing norms governing human subjects research. Some maintain that only randomized controlled trials (RCTs) with a placebo or standard-of-care arm can meet these conditions. We maintain that there are alternative trial designs that can do so as well and that sometimes these are preferable to RCTs.     

Patient Perspectives on the Learning Health System: The Importance of Trust and Shared Decision Making

We conducted focus groups to assess patient attitudes toward research on medical practices in the context of usual care. We found that patients focus on the implications of this research for their relationship with and trust in their physicians. Patients view research on medical practices as separate from usual care, demanding dissemination of information and in most cases, individual consent. Patients expect information about this research to come through their physician, whom they rely on to identify and filter associated risks. In general, patients support this research, but worry that participation in research involving randomization may undermine individualized care that acknowledges their unique medical histories. These findings suggest the need for public education on variation in practice among physicians and the need for a collaborative approach to the governance of research on medical practices that addresses core values of trust, transparency, and partnership.     

Some Selected Internet Resources for Novice Researchers of Christian History

SUMMARY

This article attempts to assist novice researchers of Christian history explore the Internet. It contains a helpful starting point and key Web resources for the study of Christian history, with a primary focus on English language and Protestant information.     

Students' Ethical Awareness and Conceptions of Research Ethics

The study focused on university students' understanding and conceptions of ethical issues in research. Domain-specific and domain-transcending measures were developed to gauge the students' awareness of ethical issues. Responses were obtained from 269 undergraduate and graduate students at a U.S. regional university. Participant withdrawal, the debriefing of research participants, the dissemination of findings, and giving credit to co-contributors were the most challenging ethical issues for the students. Ethical awareness was predicted by professional and organizational socialization, and perspective taking. Contextualization greatly improved the students' ability to recognize ethical issues. Simulations and role-taking are suggested as the means with which to teach students about the ethical issues perceived as challenging.     

Believers and Skeptics: Where Social Worker Situate Themselves Regarding the Code of Ethics

Based on individual and focus-group interviews, this article describes how social workers in a variety of settings and geographical areas within Ontario approached ethical issues in their daily practices. Two primary approaches to professional ethics emerge from the data: principle based and virtue based, reflecting the orientation of groups we label believers and skeptics, respectively. The code of ethics appears to be the fulcrum from which our participants swing. The believers show faith in the code of ethics and the skeptics are dubious that codes are necessarily in the best interests of clients. The article describes the thinking behind the actions of the believers and skeptics and explores possibilities for future practice and research with respect to decision-making regarding ethical issues in the social work profession.