Ethics,policy, and rare genetic disorders: the case of Gaucher disease in Israel

Gaucher disease is a rare, chronic,ethnic-specific genetic disorder affecting Jewsof Eastern European descent. It is extremelyexpensive to treat and presents difficultdilemmas for officials and patients in Israelwhere many patients live. First, high-cost,high-benefit, but low volume treatment forGaucher creates severe allocation dilemmas forpolicy makers. Allocation policies driven bycost effectiveness, age, opportunity or needmake it difficult to justify funding. Processoriented decision making based on terms of faircooperation or decisions invoking the ``rule ofrescue' risk discriminating against minoritieswho may already suffer from inequitabledistribution of heath care resources. Apartfrom cost, Gaucher disease prompts questionsabout abortion. Unlike severe geneticdisorders, Gaucher offers no grounds forabortion and, in many ways, is analogous togender based abortions that are prohibitedregardless of fetal age. Finally, Gaucherraises concerns about the disclosure of geneticinformation. These affect potential carriersasked to participate in population studies andcarriers and patients who must considerdisclosure to others. These concerns weigh theright to privacy against communal interests andbilateral commitments.     

管理心理学的现状与发展趋势

本文在综合分析了国内外管理心理学发展概况的基础上认为,在适应经济全球化和企业不断变革的情况下,组织变革、领导行为、激励机制和组织文化是管理心理学的研究新热点,管理心理学的发展趋势是重视组织层面的变革研究,强调对人力资源的系统开发,研究领域不断拓展,更加关注国家目标.并提出了管理心理学研究的近期目标和中长期发展目标的建议.     

资源两难问题的研究及其新进展

作为多人社会两难问题的基本范式之一,近年来资源两难问题引起了包括社会学家、经济学家和心理学家在内诸多领域研究者越来越多的关注。文章介绍了资源两难问题的定义、特点、研究意义并总结了以往的研究成果,着重介绍了Samuelson和Messick于1994年提出的资源两难决策模型。在此基础上进一步指出以往研究存在的一些不足,如忽视了对不确定性的研究等。文章最后指出了近年来有关资源两难问题的研究在心理学界的发展,并提出了对以后研究的一些建议。     

Are Newborns Morally Different from Older Children?

Policies and position statements regarding decision-making for extremely premature babies exist in many countries and are often directive, focusing on parental choice and expected outcomes. These recommendations often state survival and handicap as reasons for optional intervention. The fact that such outcome statistics would not justify such approaches in other populations suggests that some other powerful factors are at work. The value of neonatal intensive care has been scrutinized far more than intensive care for older patients and suggests that neonatal care is held to a higher standard of justification. The relative value placed on the life of newborns, in particular the preterm, is less than expected by any objective medical data or any prevailing moral frameworks about the value of individual lives. Why do we feel less obligated to treat the premature baby? Do we put newborns in a special and lesser moral category? We explore this question from a legal and ethical perspective and offer several hypotheses pertaining to personhood, reproductive choices, “precious children,” and probable evolutionary and anthropological factors.     

A depleted mind feels inefficacious: Ego‐depletion reduces self‐efficacy to exert further self‐control

Recent research has found that ego‐depletion undermines self‐control by motivating cognition that justifies conservation of mental resource. One potential cognitive mechanism is reduction of self‐efficacy. Specifically, we propose that ego‐depletion might demotivate self‐control by making people believe that they are inefficacious in exerting self‐control in subsequent tasks. Three experiments support the proposal. First, we demonstrated that (a) ego‐depletion can reduce self‐efficacy to exert further control (Experiments 1 to 3) and (b) the temporary reduction of self‐efficacy mediates the effect of depletion on self‐control performance (Experiment 2). Finally, we found that (c) these effects are only observed among participants who endorse a limited (versus non‐limited) theory of willpower and are, hence, more motivated to conserve mental resources (Experiment 3). Taken together, the present findings show that decrease in self‐efficacy to exert further self‐control is an important cognitive process that explains how ego‐depletion demotivates self‐control. This research also contributes to the recent discussion of the psychological processes underlying ego‐depletion.     

Exploration of Mechanisms behind Changes after Participation in a Parenting Intervention: A Qualitative Study in a Low‐Resource Setting

Parenting interventions are effective for preventing psychological difficulties in children. However, their active ingredients have not been comprehensively explored. How do they work? What are the mechanisms operating behind changes? In 2012, a randomized controlled trial of a parenting intervention was conducted in low‐resource communities of Panama. Effects on child behavioral difficulties, parental stress, and parenting practices were large in the short and long term. This was an ideal opportunity to explore potential mechanisms operating behind effects found in this low‐resource setting. Twenty‐five parents were interviewed. Data were analyzed through an inductive semantic thematic analysis. Three themes emerged from the data: (a) psychological mechanisms behind changes, (b) behavioral changes in parent, and (c) changes in the children. Parents described that the intervention triggered changes in emotion regulation, self‐efficacy, and problem solving. Parents also reported behavioral changes such as praising their children more often, who in turn seemed more responsible and better at following instructions. The study offers participant‐driven insight into potential pathways of change after participation in this parenting intervention, pathways that are often overlooked in quantitative studies. Future studies should further explore these pathways, through mediator and moderator analyses, and determine how much is shared across interventions and across different cultural settings.     

Influence of social context on the relationship between guilt and prosocial behaviour

While some previous researchers have found that guilt encourages prosocial behaviour towards a victim at the expense of other people, others have found the opposite, that is, people allocate resources at the expense of themselves. The present research used a hypothetical scenario method to determine which of these patterns would be replicated in the collectivistic context of Japanese society. In addition, we separated the cause of feelings of guilt into having caused harm and being at fault, and examined in more detail the effect of guilt on prosocial behaviour. Our results show that, in line with the second set of previous researchers, participants who were induced to feel guilt for having caused harm were more likely to allocate their resources to their victim at the expense of themselves than were individuals in the no‐harm condition. This suggests that differences in social context influence the effect of guilt on prosocial behaviour in different ways.     

Empowering public service workers to face bystander conflict: Enhancing resources through a training intervention

Public service employees work in occupations that are accompanied with high psychosocial risks. Police, firefighters, and paramedics are increasingly being confronted with argumentative, conflicting bystanders that frustrate them in executing their task. We developed a resource‐enhancement intervention and tested its usefulness for securing employees’ effective functioning and well‐being in bystander conflict. In a simulation‐based pre‐test post‐test control group design, paramedics in the intervention condition received training about how to increase their resources in terms of conflict management efficacy, perspective taking, task support, and emotional support. For those in the control condition, no such training was provided. Comparing pre‐ and post‐test measures (n = 81) of the participants in the intervention and control groups, we found evidence that the intervention successfully increased employees’ resources over time. Moreover, we found considerable support for a positive link between these resources and employees’ affective well‐being and job dedication. Thus, our study suggests that a resource‐enhancing intervention can serve as an important means to protect public service employees against the deleterious effects of bystander conflict.

Practitioner points

• A resource‐enhancing intervention can protect public service employees against the deleterious effects of bystander conflict.
• Resources related to dealing with a hindering bystander, as well as resources facilitating the continuation of the primary task, are positively associated with employees’ affective well‐being, job dedication, and job performance.