Conducting community‐based participatory research in an urban Malaysian community: Lessons learned and challenges in establishing partnerships

This paper presents the process of how partnerships are established between an urban residential community and an academic institution in Malaysia by employing community‐based participatory research, which involves researchers, community members, and organizational representatives as coresearchers. The research process encompasses colearning, power sharing, and coconstructing of knowledge, with the community members driving the research direction. The research paradigm is grounded on conducting research with the community. This paper highlights the experience and lessons learned while applying the principles of community‐based participatory research that promotes social participation of older persons living in a residential community. Two pertinent challenges surface in the research process. The first challenge involves the complexity noted in the gap between the emancipation of community‐based participatory research and the hierarchical social structure of the society. The second challenge is the prevalence of unspoken yet subtle domination that undermines the local cultural values affecting the process of coconstructing knowledge with the community. Recommendations for addressing these challenges include future partnerships with other Malaysian communities as well as cross‐border research partnerships.     

Sexual Health Research Among Youth Representing Minority Populations: To Waive or Not to Waive Parental Consent

Human immunodeficiency virus (HIV) and other sexually transmitted infections (STIs) significantly burden youth 13–24 years of age in the United States. Directly engaging youth in sexual health research is a public health priority and urgently needed to develop targeted, youth-friendly, and culturally relevant HIV/STI prevention interventions. Controversies arise, however, regarding informed assent and consent, parental permission or consent, and the definition of “child”/“minor” as it relates to medical, legal, and ethical issues. In this article, we describe challenges in the human subjects review processes that were undertaken before beginning an HIV/STI prevention research project with sexually active youth in an urban setting. These findings provide important contextual information to facilitate youth sexual health research and care, and Institutional Review Board approval processes with fewer delays.     

Argentine validation of the Purpose in Life Test / Validación argentina del Test de Propósito en la Vida

Despite the fact that the Purpose in Life Test developed by James Crumbaugh and Leonard Maholick in the 1960s is considered to be one of the most commonly used measures in positive psychology, there are no validations of it into the Argentine context. This paper aims to assess the psychometric properties of PIL in a sample of 336 university students residing in Buenos Aires. The results suggest that PIL has adequate psychometric properties for the Argentine context. The confirmatory factor analysis presents a good fit of the data as proposed by the authors. These results favour the assessment of psychological well-being in this local context. Future studies should use different samples in order to provide more robust support to the construct.     

A Couple-Based Psychological Treatment for Chronic Pain and Relationship Distress

Chronic pain impacts individuals with pain as well as their loved ones. Yet, there has been little attention to the social context in individual psychological treatment approaches to chronic pain management. With this need in mind, we developed a couple-based treatment, “Mindful Living and Relating,” aimed at alleviating pain and suffering by promoting couples’ psychological and relational flexibility skills. Currently, there is no integrative treatment that fully harnesses the power of the couple, treating both the individual with chronic pain and the spouse as two individuals who are each in need of developing greater psychological and relational flexibility to improve their own and their partners’ health. Mindfulness, acceptance, and values-based action exercises were used to promote psychological flexibility. The intervention also targets relational flexibility, which we define as the ability to interact with one’s partner, fully attending to the present moment, and responding empathically in a way that serves one’s own and one’s partner’s values. To this end, the intervention also included exercises aimed at applying psychological flexibility skills to social interactions as well as emotional disclosure and empathic responding exercises to enhance relational flexibility. The case presented demonstrates that healthy coping with pain and stress may be most successful and sustainable when one is involved in a supportive relationship with someone who also practices psychological flexibility skills and when both partners use relational flexibility skills during their interactions.     

Life stories managing chronic illness: Young adults’ lived experiences with type 1 diabetes

This study aimed to characterise diabetes management experiences of South African young adults living with well-controlled type 1 diabetes (n = 8, female = 5, male = 3, age range = 20–25). The young adults told life stories managing their type 1 diabetes. Thematic analysis revealed the young adults to construct personal identities as people living with type 1 diabetes, to mostly utilise emotion-focused management strategies and social support for successful living with type 1 diabetes. Behavioural health strategies appear important for living well with this chronic insulin deficiency condition.     

Authentic leadership,followership, and psychological capital as antecedents of work engagement

The present study investigated authentic leadership, psychological capital, and followership behaviour influences on work engagement of employees. Respondents were 901 South African employees within the healthcare industry organisation (n = 647) and mining industry (n = 254). The employees completed questionnaires on authentic leadership, psychological capital, and followership behaviour, and work engagement. Results following structural equation modelling and mediation analysis suggest work engagement to be explained by the psychological capital of the employee rather than by authentic leadership qualities. Improving employee psychological capital has the potential to enhance the levels of work engagement of employees.     

Learning and growing from ‘communities of practice’: autoethnographic narrative vignettes of an aspiring educational researcher’s experience

This is an autoethnographic study that inquiries into my own journey as an aspiring educational researcher throughout the second course of my Master’s Program at the University of Gothenburg in Sweden. My experiences take place in the context of a group of real educational researchers and their on-going research project at the faculty of education called ‘Beyond Plant Blindness: Seeing the importance of plants for a sustainable world’ (BPB). All of the experiences included in this study are expressed in the form of chronologically ordered narrative vignettes. In order to bring theoretical meaning to these experiences, the vignettes were critically reflected upon and interpreted through the concept Communities of Practice (CoP), which is central to situated learning theory. Through this conceptual lens, my experiences revealed that an aspiring educational researcher may feel emotional and intellectual growth as a newcomer who is granted legitimate peripheral participation in the ‘real’ researcher CoP. Consequently, this study sheds light on ways that real researchers may play a part in shaping the identities of aspiring educational researchers through learning experiences. However, more generally, this study may facilitate fresh conversations about the complexities of learning, identity, and inclusion in the field of educational research.     

Writing life narratives through art practice

This article shares some of my doctoral experiences in a practice-based PhD research in arts developed at the Chelsea College of Arts, University of the Arts London. It locates art practice within the academic research realm and contributes to researchers working on autobiographical studies and practice-based research methods. By offering an overview on my research topic focusing on the relationship between language and place in the life of Brazilian women living in London, I reflect on the relevance of “not-knowing” as a fruitful space for researching autobiographical and situated life narratives through art practice. The article concludes that qualitative methods are relevant for building passages from the individual to the collective sphere of an art practice developed within geographical displacement and in the context of academic research.     

Beyond Consent: Building Trusting Relationships With Diverse Populations in Precision Medicine Research

With the growth of precision medicine research on health data and biospecimens, research institutions will need to build and maintain long-term, trusting relationships with patient-participants. While trust is important for all research relationships, the longitudinal nature of precision medicine research raises particular challenges for facilitating trust when the specifics of future studies are unknown. Based on focus groups with racially and ethnically diverse patients, we describe several factors that influence patient trust and potential institutional approaches to building trustworthiness. Drawing on these findings, we suggest several considerations for research institutions seeking to cultivate long-term, trusting relationships with patients: (1) Address the role of history and experience on trust, (2) engage concerns about potential group harm, (3) address cultural values and communication barriers, and (4) integrate patient values and expectations into oversight and governance structures.