Kinship Foster Care from the Perspective of Quality of Life: Research on the Satisfaction of the Stakeholders

A quality of life studies perspective has guided the design and implementation of research on kinship care as a placement resource within the child protection system in Catalonia (Spain). This research was carried out gathering the points of view of the three main stakeholders: kinship caregivers, children who are placed in extended family and practitioners of the EAIAs (Childhood and Adolescence Interdisciplinary Care Teams). Satisfaction involved in kinship care has been explored. In this article the main stakeholders’ satisfaction with kinship care is presented, and on the other hand, children’s satisfaction with life as a whole and with five specific domains in life is analysed: Education received from their caregiver, their school, their friends, their time enjoyment and their health. As expected, practitioners show the lowest evaluations with this kind of service. Surprisingly, evaluations by children referred to kinship care and to education received by caregivers are higher than those in the normative population aged 12–16 in relation to their own natural family. The findings show implications for practice and they imply challenges for quality-of-life research.     

降压达标对器官保护的作用

高血压作为心血管事件的重要危险因素,长期发展可导致重要器官的损害及心脑血管事件的发生。目前提倡理想的降压药物除了具有良好的降压作用外,应当具有一定的器官保护作用,降压的获益体现在对器官的保护及对心脑血管事件的降低方面。     

论基因检测之应用及其ELSI议题的文化意涵

在基因科技的革命性发展过程中,整体社会似乎未能提供一个充分保障研究参与者与科学研究之完整性的机制。以台湾面临基因检测之挑战的经验为例,探讨了伦理、法律与社会意涵（Ethical,Legal and Social Implications,ELSI）研究如何完善规范体制的实务应用需求,并兼顾人权团体所期待的妥善保护研究参与者。     

催产素对社会决策行为的影响

大量的研究已经证明催产素对人类社会决策起着重要的调节作用。以往研究者采用多种实验范式用于探讨催产素对社会决策的影响, 研究内容主要包括合作与保护行为、道德行为、信任行为和慷慨行为。研究者已提出三种关于催产素的可能的作用机制用来解释观察到的实验结果, 三种理论各有侧重。未来的研究中应关注鼻喷催产素和受体基因多态性等生理机制、并考虑催产素影响社会决策行为的性别差异、建立更完善并可供检验的理论模型。     

Recherche en santé et protection des données personnelles à l’heure du Règlement général relatif à la protection des données

France has a very rich legal framework, which defines the conditions of access and use of health data for scientific research purposes and ensures their protection. Currently, this legal framework is undergoing revision. The European regulation of April 27th 2016 on protection of natural persons in relation to the processing of personal data came into effect in EU member states since 25th May 2018 and substitute a rationale of administrative process for a rationale that empowers the researchers to document and prove compliance with the regulation (“accountability”). This regulation must be coordinated with the other regulation applicable to research in UE and with national law.     

Mars: Science Before Settlement

I review Mars science goals, including those associated with the study of Mars’ past and present habitability, as well as those associated with understanding Mars’ atmosphere and climate. I argue that Mars settlement initiatives would likely frustrate attempts to satisfy many of these goals, and therefore that it would be prudent for the Mars science community to prioritize those investigations most threatened by human settlement of Mars.     

医护人员对患者权利的保护情况调查分析

采用现场问卷方式调查统计结果表明:大部分医护人员了解患者的相应权利,对患者权利具有一定的保护意识,但部分患者权利保护不足,存在易发生医患纠纷隐患,需要引起临床医护人员的重视,不断加强法制观念教育.     

Protection of Life and Human Dignity: The German Debate between Christian Norms and Secular Expectations

The German debate on bioethics and medical ethics turns on achange in the meaning of human dignity. Such dignity is increasinglyrendered contingent upon a person's empirically assessable qualityof life. In contrast to such dignity-endowed human life, a merelybiological human life is taken to disqualify its bearer fromsuch dignity, depriving his life of the protection "respectfor human dignity" would otherwise guarantee. The idea of a"life not worth living" or "undignified life" evokes categories,which were developed at the beginning of the 20th century, andlater informed the crimes of National Socialist medicine inGermany. Against this secular development, this article analysesthe theological and church-based discussion of basic bioethicalquestions in Germany, especially the controversy among Protestants:once Protestant ethicists abandon an explicitly theologicalbasis for their arguments, their conclusions come to closelyresemble those of the secular participants in the debate. Asa result, such Protestants relativize fundamental ethical norms.They subordinate, along with their secular environment, theprotection of life to respect for autonomy. They thus preparethe ground for a revival of the risky concepts of the past.