Embedded evaluation of preferences sampled from person-centered plans for people with profound multiple disabilities

We investigated a brief, embedded assessment for evaluating preferences sampled from person-centered plans. After developing person-centered plans for individuals with multiple disabilities, systematic assessments were conducted with preferences sampled from the plans. An assessment of sampled preferences was then embedded within the participants' daily routines. The two assessments identified similar preferences based on participant approach responses. Both assessments also indicated inconsistencies with reported preferences in the person-centered plans. Overall, results suggested the embedded assessment may be an alternative means of evaluating some preferences reported through person-centered planning.     

Increasing the happiness of individuals with profound multiple disabilities: replication and extension

A multielement design was used to compare the effects of three treatments on the happiness of 3 individuals with profound multiple disabilities. The conditions were typical programming using materials selected by staff, presentation of preferred materials plus social interaction, and social interaction alone with no materials present. Both the presentation of the preferred items with social interaction and social interaction alone resulted in higher happiness indicators than typical programming. The combination of preferred items and social interactions was somewhat superior to social interaction alone.     

Fluency disorders in genetic syndromes

The characteristics of various genetic syndromes have included “stuttering” as a primary symptom associated with that syndrome. Specifically, Down syndrome, fragile X syndrome, Prader-Willi syndrome, Tourette syndrome, Neurofibromatosis type I, and Turner syndrome all list “stuttering” as a characteristic of that syndrome. An extensive review of these syndromes indicated clients diagnosed with these syndromes do show evidence of nonfluency patterns, but not all would be considered stuttering. Many of the syndromes are marked by degrees of mental retardation that probably contribute to a higher than average prevalence of stuttering, as well as a higher than average prevalence of other fluency disorders (when compared to the population at large).

An in-depth analysis of the available data indicates that some of these genetic syndromes show patterns of stuttering that may be indicative of only that syndrome (or similar syndromes) that can be differentially diagnosed from developmental stuttering. Among these patterns are the word-final nonfluencies noted in Prader-Willi syndrome; the presence of stuttering in the absence of secondary behaviors noted in Prader-Willi syndrome and; the presence of palilalia, word-final and word-medial nonfluencies, and word-medial and word-final nonfluencies in Tourette syndrome. Implications for future research are discussed in light of these findings.

Educational objectives: The reader will be able to: (1) describe the various different genetic syndromes that are associated with fluency disorders; (2) describe the types of nonfluencies that are associated with the major types of genetic syndromes that have fluency disorders; (3) describe the behaviors that may assist in differentially diagnosing different types of speech characteristics associated with various genetic syndromes.     

轻度智障学生心理健康教育干预的形式与方法

轻度智障学生具有学习焦虑、孤独感、好责备自己、缺乏主动性和积极性等心理健康方面的问题。产生这些问题的原因有个体因素、父母教养因素和学校教育因素等。针对这些问题,教育者使用多种辅导形式和方法进行干预,使轻度智障学生的心理健康水平得以提高与改善。本文最后提出了在进行教育干预时需注意的一些问题,为学校开展该方面工作提供参考。     

INTRODUCTION: RETHINKING PHILOSOPHICAL PRESUMPTIONS IN LIGHT OF COGNITIVE DISABILITY

Abstract: This Introduction to the collection of essays surveys the philosophical literature to date with respect to five central questions: justice, care, agency, metaphilosophical issues regarding the language and representation of cognitive disability, and personhood. These themes are discussed in relation to three specific conditions: intellectual and developmental disabilities, Alzheimer's disease, and autism, though the issues raised are relevant to a broad range of cognitive disabilities. The Introduction offers a brief historical overview of the treatment cognitive disability has received from philosophers, and explains the specific challenges that cognitive disability poses to philosophy. In briefly summarizing the essays in the collection, it highlights the distinctive contributions the collection makes to ethics, political philosophy, bioethics, and the philosophy of disability. We hope that the richness of the topics explored by these essays will be a spur to further investigation.     

THE PERSONAL IS PHILOSOPHICAL IS POLITICAL: A PHILOSOPHER AND MOTHER OF A COGNITIVELY DISABLED PERSON SENDS NOTES FROM THE BATTLEFIELD

Abstract: Having encountered landmines in offering a critique of philosophy based on my experience as the mother of a cognitively disabled daughter, I ask, "Should I continue?" I defend the idea that pursuing this project is of a piece with the invisible care labor that is done by people with disabilities and their families. The value of attempting to influence philosophical conceptions of cognitive disability by virtue of this experience is justified by an inextricable relationship between the personal, the political, and the philosophical. If one grants that the "special relationship" between mother and child requires moral recognition, then I need first to make vivid the case that this relationship in the case of a child who lacks some "normal capacities" is indistinguishable from any mother-child relationship. If this is so, then I believe I can make a case that has as its conclusion that the moral personhood of even the severely cognitively disabled must be granted. Moreover, such recognition, I argue, necessitates the recognition of others who bear no special relationships to the child.     

The Stanford Binet Profiles of Young Children with Autism

Twenty-four young children with autism were assessed with the Fourth Edition of the Stanford Binet Intelligence Scale as part of the routine assessment procedure at the Douglass Developmental Disabilities Center. Inspection of the pattern of their responses yielded an distinctive profile with the subscale of Absurdities being consistently the lowest and Pattern Analysis the highest subtest. Comparisons of the profiles for the subjects with the highest and lowest overall IQs showed essentially the same profile patterns. These data are consistent with what we know about autism as a disorder and provide support for the notion that traditional psychometric assessment can be useful in evaluating children with autism.     

The rise and fall of IQ in special ed: Historical trends and their implications

Using IQ records from 10 sites around the country, we examined longitudinal trends in IQ among mental retardation (MR) students during the Wechsler Intelligence Scale for Children (WISC) to WISC-Revised (R) transition in the 1970s and learning disability (LD) students during the WISC-R to WISC-3rd Revision (III) transition in the 1990s. Based on the work by Flynn [American Journal of Mental Deficiency 90 (1985) 236; Psychology, Public Policy, and Law 6 (2000) 191], we predicted a rise in IQ followed by a fall each time a newly normed IQ test is introduced into the schools and used to diagnose children as MR or LD. As expected, we found that mean IQs of MR and LD students followed a nearly identical parabolic trajectory, and differed depending on what year they were tested. IQs from the older norms were higher than IQs from the newly introduced norms. This systematic shift had a significant impact on the likelihood of a MR diagnosis. The broader implications of this pattern are discussed.     

‘They were brilliant,I don't know what I would've done if they hadn't been here’: the group concept problem revisited

This article concerns the group concept problem in people labelled as having learning disabilities, described in a series of papers by Gibbons and colleagues (Gibbons, 1981 , 1985a , 1985b ; Gibbons & Gibbons, 1980 ; Gibbons & Kassin, 1982 ). We argue that the interpretations of these studies are questionable, and alternative explanations for the patterns of results found are possible. Examples from a study in which people with the label talked about particular others who also have the label are presented. In these examples, the category was not represented as homogeneous, relationships with others were valued, and a desire for distance was only found when participants talked about people who behaved aggressively. The findings are discussed with reference to the social model of disability. Copyright © 2003 John Wiley & Sons, Ltd.     

智力落后儿童适应行为发展特点的研究

本研究用儿童适应行为评定量表对4～12岁中、轻度智力落后儿童适应行为发展特点进行探讨,结果发现：他们的适应行为与智力有显著性相关;智力落后儿童适应行为发展落后,其中认知技能发展严重滞后是一个重要原因,但他们的适应行为仍有着相当的发展潜力。