警惕啊!基因决定论

基因已经成为２０世纪遗传学中的一个关键词基因决定论也正在走近我们的生活本文从遗传学的角度阐述了基因决定论的种种不当之处,并且指出基因的作用与人类的生活方式密切相关,而人类的全部文明史就在于克服单纯的基因决定论所带来的局限。     

Genes, religion and society: The developing views of the churches

This paper (1) reviews and analyzes the positions on genetics taken in the official statements of Christian churches in the United States, together with church institutions of global status, and 2) offers suggestions about possible future responses of the churches to genetics and biotechnology.     

Grey Matter: Ambiguities and Complexities of Ethics in Research

Ethical dilemmas are often not discussed in the dissemination of educational research. While the ethical guidelines for research seem clear at first glance, a closer look at the intimate nature of qualitative research reveals that there are many ambiguities or ‘grey’ areas where researchers must rely on their personal value systems. This article discusses the challenges faced by an experienced educator, although novice researcher, in considering the ethical parameters of her own research with adolescents with hearing loss. In particular, the grey ethical areas identified by the researcher include: (a) vulnerable population; (b) researcher role confusion; (c) consent; (d) privacy, confidentiality, and anonymity; as well as (e) the nature of risk. Based on the author’s own reflections on beginning the research process, the article presents possible pitfalls and ways of overcoming the possibility of becoming immobilized by the ethical enigmas of research.     

Psychometric examination and normative data for the narcissistic personality inventory 29 item version

The Narcissistic Personality Inventory (NPI) is commonly used in empirical studies of narcissism. Few population-based studies have been published. Our aim was to do a confirmatory factor analysis (CFA) of the NPI 29 item version with a four-factor structure, in two population-based samples and in a patient sample, and present normative population-based data. The NPI-29 was filled in by 324 respondents from the Norwegian population, 231 from the Swedish population and 167 Norwegian psychiatric patients. The four-factor structure of the NPI-29 with Leadership/Power, Exhibitionism/Self-admiration, Superiority/Arrogance and Uniqueness/Entitlement was reproduced in these samples. The CFA models showed good fit indices in all samples. Mean scores on the NPI-29 and four subscales hardly differed between the samples. For the NPI-29 total score and factors, few significant differences were observed. CFA of the samples supported the factor structure of the NPI-29 formerly identified by principal component analysis of the Swedish population sample.     

Writing and reading skills as assessed by teachers in 7-year olds: A behavioral genetic approach

A behavioral genetic analysis of general writing ability was conducted using teacher assessments based on UK National Curriculum criteria for a sample of 3296 same-sex pairs of 7-year-old twins. Writing was highly heritable within the normal range (0.66) and at the low extreme (0.70). Environmental influences were almost all non-shared, with shared environmental estimates negligible (0.07 normal range, 0.06 low extreme). Bivariate genetic analyses of teacher assessments of writing and reading indicated that 69% of the genetic influences on writing were in common with those on reading, and that the two skills shared all of their shared environmental influences. In contrast, non-shared environmental factors are largely specific, with 86% independent of those on reading.     

Improving Service Evaluation in Clinical Genetics: Identifying Effects of Genetic Diseases on Individuals and Families

Outcome measurement in clinical genetics is challenging. Outcome attributes used currently have been developed by service providers or adapted from measures used in other areas of healthcare. Many of the ‘patients’ in clinical genetics are healthy but at risk of developing or transmitting a condition. Usually no pharmacological or surgical treatment is offered, although information-giving is an objective of most consultations. We argue that services should be evaluated on the basis of how well they alleviate the effects of disease, from a patient perspective. This paper describes a qualitative study using seven focus groups with health professionals, patients and patient representatives. Social and emotional effects of genetics diseases were identified. Some differences emerged between the effects identified by health professionals and those identified by patients. These findings will be used to inform the evaluation of existing outcome measures and develop robust measures of outcome for clinical genetics services.     

健康的现代诠释:基于农村流动人口的研究

现代语境里的健康不仅指涉生理与心理健康,社会与文化健康亦为不可或缺的维度,以农村流动人口为研究对象,结合健康这一研究主体,既对健康予以现代诠释,又对农村流动人口给以高度人文关注,力使他们在健康的现代话语中逐步向新市民转型。     

印度干细胞及遗传学研究的途径

在印度,科学家和政府对印度的基因组研究了干细胞研究充满了热情。而有关的伦理准则就显得尤为重要。印度在2000年颁布的准则是针对胎儿研究结果的保密性,以研究为目的而剩余的胚胎不能用于商业用途。辅助生殖技术应确保参与者的知情同意。保密性和遗传学秘密对遗传学研究是非常重要的。专家认为在干细胞与基因组研究领域中,伦理学及政府的阻碍并不是主要的负担,而主要的问题在于科技的发展与应用中的经济问题。同时,公众的积极参与也是非常重要的。     

The Religion of Genetics in Epistemology and Ethics

In the dialog between genetics and religion, the genetics of religion has received thoughtful attention from the possibility of free will to the evolution of human religious behavior. In this article, the author focuses on the reverse, the religion of genetics – specifically, two aspects of how religion shapes our understanding and use of genetics. If religion is (as often argued) whatever our ultimate concern or worldview is, it gives context and direction for the study and application of genetics. Some of the implications are traced through two examples of interaction with one religion, the varied Christian tradition.