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121.
122.
Myra Parker Cynthia Pearson Caitlin Donald Celia B. Fisher 《American journal of community psychology》2019,64(1-2):9-20
Individuals responsible for carrying out research within their diverse communities experience a critical need for research ethics training materials that align with community values. To improve the capacity to meet local human subject protections, we created the research Ethics Training for Health in Indigenous Communities (rETHICS), a training curriculum aligned within American Indian and Alaska Native (AI/AN) context, culture, and community‐level ethical values and principles. Beginning with the Belmont Report and the Common Rule that defines research with human subjects (46 CFR 45), the authors convened three different expert panels (N = 37) to identify Indigenous research values and principles common across tribal communities. The resulting culturally grounded curriculum was then tested with 48 AI/AN individuals, 39 who also had recorded debriefing interviews. Using a thematic analysis, we coded the qualitative feedback from the expert panel discussions and the participant debriefings to assess content validity. Participants identified five foundational constructs needed to ensure cultural‐grounding of the AI/AN‐specific research training curriculum. These included ensuring that the module was: (a) framed within an AI/AN historical context; (b) reflected Indigenous moral values; (c) specifically linked AI/AN cultural considerations to ethical procedures; (d) contributed to a growing Indigenous ethics; and (e) provided Indigenous‐based ethics tools for decision making. Using community‐based consultation and feedback from participants led to a culturally grounded training curriculum that teaches research ethical principles and procedures for conducting research with AI/ANs. The curriculum is available for free and the community‐based process used can be adapted for other cultural groups. 相似文献
123.
ABSTRACTIn 2005 India changed its pharmaceutical and innovation policy that facilitated a dramatic increase in international clinical trials involving study sites in India. This policy shift was surrounded by controversies; civil society organisations (CSOs) criticised the Indian government for promoting the commercialisation of pharmaceutical research and development. Health social movements in India fought for social justice through collective action, and engaged in normative reasoning of the benefits, burdens and equality of research. They lobbied to protect trial participants from structural violence that occurred especially in the first 5–6 years of the new policy. CSOs played a major role in the introduction of new regulations in 2013, which accelerated a decline in the number of global trials carried out in India. This activism applied interpretations of global social justice as key ideas in mobilisation, eventually helping to institutionalise stricter ethical regulation on a national level. Like government and industry, activists believed in randomised controlled trials and comparison as key methods for scientific knowledge production. However, they had significant concerns about the global hierarchies of commercial pharmaceutical research, and their impact on the rights of participants and on benefits for India overall. Pointing to ethical malpractices and lobbying for stricter ethical regulations, they aimed to ensure justice for research participants, and developed effective strategies to increase controls over the business side of clinical research. 相似文献
124.
Joe Moran 《Journal of Contemporary Religion》2019,34(1):173-191
The Irish Roman Catholic Church has been a dominant institution in Irish society for generations but this dominance has declined in recent decades due to modernisation and secularisation. Since the mid-1990s, the Church has been rocked by scandals of clerical and religious sex abuse of children, which has had a negative impact on its moral standing in Irish society. As a result of the economic crash in 2008, a programme of severe austerity was introduced by the Irish government. In this article, the response of the Irish Catholic Bishops to the recession and austerity measures is assessed through the analysis of their public statements which are available through the news archive of the Irish Bishops’ Conference. The findings show that the Bishops did criticise the socio-economic policies of the Irish government but this was limited due to a range of institutional barriers. 相似文献
125.
Citizen science models of public participation in scientific research represent a growing area of opportunity for health and biomedical research, as well as new impetus for more collaborative forms of engagement in large-scale research. However, this also surfaces a variety of ethical issues that both fall outside of and build upon the standard human subjects concerns in bioethics. This article provides background on citizen science, examples of current projects in the field, and discussion of established and emerging ethical issues for citizen science in health and biomedical research. 相似文献
126.
Mercedes V. Ingram Stacy Speedlin Yuliya Cannon Ashley Prado Joe Avera 《Journal of Creativity in Mental Health》2017,12(3):289-304
Transgender, gender variant, and/or gender nonconforming persons are marginalized and pathologized in society and communities. The advent and widespread use of social media introduce an entirely new avenue of expression where cyber bullying and verbal assaults are common. Yet, social media also has the capacity to reach more people in more places, thus presenting a potentially powerful platform for advocacy. Grounded in digital critical participatory action research, the authors present a multimedia advocacy project that highlights advocacy strategies in which counselors can utilize social media to raise awareness, promote inclusion, and resolve microaggressions toward transgender persons. 相似文献
127.
Joseph Perfect-Mrema 《Journal of Global Ethics》2017,13(2):221-240
The majority of studies on natural resources management in both developed and developing countries are silent on the issue of analysis of corruption – or they treat it tangentially, as an annoying anomaly, or simply deviance from the rules. As a result, the issue has hardly been subjected to in-depth characterisation or reforms. This study employed and integrated mainstream principal-agent theory and more recently developed collective action theory to enhance our understanding – in different but complementary ways ? of the socio-political underpinnings of corruption. A supposed ‘best case’ participatory forest management scheme in Tanzania reveals significant forest-related corrupt undertakings, which led to forest encroachment in the form of charcoal and timber exploitation. The findings point to contextual grounds for corruption, namely: undermined assumptions of the mainstream principal-agent institutions; the presence of alternative informal principal-agent institutions; the presence of immediate and substantial benefits that flow to such alternative institutions; and the huge market demands for their forest products and services. Through such a nuanced approach that blends the two above-mentioned theories in meaningful ways, more appropriate options for policy formulation and implementation are proposed. 相似文献
128.
José A. Bauermeister Emily S. Pingel Triana Kazaleh Sirdenis Jack Andrzejewski Gage Gillard Gary W. Harper the Michigan Forward in Enhancing Research Community Equity Coalition 《American journal of community psychology》2017,60(1-2):215-228
HIV/STI incidence has shifted to a younger demographic, comprised disproportionately of gay and bisexual men, transgender women, and people of color. Recognizing the importance of community organizing and participatory engagement during the intervention planning process, we describe the steps taken to engage diverse constituents (e.g., youth and practitioners) during the development of a structural‐level HIV/STI prevention and care initiative for young sexual and gender minorities in Southeast Michigan. Our multi‐sector coalition (MFierce; Michigan Forward in Enhancing Research and Community Equity) utilized a series of community dialogues to identify, refine, and select programmatic strategies with the greatest potential. Evaluation data (N = 173) from the community dialogues highlighted constituents’ overall satisfaction with our elicitation process. Using a case study format, we describe our community dialogue approach, illustrate how these dialogues strengthened our program development, and provide recommendations that may be used in future community‐based program planning efforts. 相似文献
129.
Maryam Kia‐Keating Diana Santacrose Sabrina Liu 《American journal of community psychology》2017,60(3-4):375-384
Community‐based participatory researchers increasingly incorporate photography and social media into their work. Despite its relative infancy, social media has created a powerful network that allows individuals to convey messages quickly to a widespread audience. In addition to its potential benefits, the use of social media in research also carries risk, given the fast pace of exchanges, sharing of personal images and ideas in high accessibility, low privacy contexts and continually shifting options and upgrades. This article contributes to the literature examining ethical considerations for photography and social media use in community‐based participatory research. We describe three key ethical dilemmas that we encountered during our participatory photography project with Latina/o youth: (a) use and content of images and risk; (b) incentives and coercion; and (c) social media activity and confidentiality. We provide our responses to these challenges, contextualized in theory and practice, and share lessons learned. We raise the question of how to contend with cultural shifts in boundaries and privacy. We propose that evaluating participant vulnerability versus potential empowerment may be more fitting than the standard approach of assessing risks and benefits. Finally, we recommend upholding the principles of participatory research by co‐producing ethical practices with one's participants. 相似文献
130.
Urmitapa Dutta 《Journal of community & applied social psychology》2017,27(6):476-488
This paper describes the process and outcomes of Voices, a participatory action research project aimed to disrupt divisive ethnic identity narratives among youth living amidst protracted ethnic conflict. The project took place in the Garo Hills region of Northeast India, a site of protracted ethnic conflict. Moving away from crisis‐based approaches, this paper explores the conflict transformative potential of participatory action research, specifically its effectiveness in facilitating civic engagement across ethnic lines. The findings indicate that young people's involvement in the project afforded them an opportunity to engage with local community concerns outside of polarized ethnic identity narratives. This involvement facilitated three critical outcomes: engagement in social critique, reconfiguration of a more inclusive researcher identity, and adoption of a language of possibility. Based on these findings, it is argued that opportunities for critical community engagement could interrupt divisive ethnic identity narratives and provide turning points for youth to reimagine inclusive social identities. 相似文献