What survivors see: Creative condemnations of total institutionalization

This paper presents a 2013–2016 research project that documented the history of the Huronia Regional Centre from the perspectives of survivors. Located in Ontario Canada, Huronia housed children with intellectual disabilities until its closure in 2009, and is now notorious for its violent history. Our research collective visited Huronia in 2014 to take pictures of the space, and used those photographs in scrapbook art created in monthly workshops. This paper presents pages selected from survivors' scrapbooks to illustrate key spatial conditions and affective experiences of a total institution. Analysis of these images shows that models of institutionalization are designed to produce violence against the institutionalized. Given the collective's commitment to an arts-informed methodology, this paper serves as a clear condemnation of every version of institutionalization. First, this paper situates its argument in geographic and sociological research that has taken up Goffman's concept of the total institution. Next, it lays out a methodological approach that included photovoice adapted for intellectually disabled institutional survivors. Finally, it presents and analyzes key images of art that survivors produced with support in workshop settings—with a focus on photography taken in facility buildings and on facility grounds.     

学习不良儿童孤独感、同伴接受性的特点及其与家庭功能的关系

采用量表法、同伴提名法、访谈法探讨了小学学习不良儿童孤独感、同伴接受性的特点及其与家庭功能的关系。结果表明,４—６年级小学儿童存在孤独感;与一般儿童相比,学习不良儿童孤独感明显偏高,而同伴接受性明显偏低;同伴接受性与孤独感和家庭功能之间存在显著相关。     

Mission and People with Disabilities

This article begins with a few thoughts and some historical and canonical encounters about how lay and ordained people with disabilities have been involved in Orthodox mission work in the past. It then presents two concrete contemporary situations in which people with disabilities are involved in Orthodox ordained ministry work despite the persisting tradition that disabled people not be ordained. The first example is taken from the Eritrean Orthodox Tewahedo Church, where the involvement of people with disabilities in both ordained and lay ministry provides significant support for a church that lives in a delicate situation. The second example is taken from the Romanian Orthodox Church and presents the case of Father Theophilus P?r?ian, one of the most prominent contemporary Romanian Orthodox monastic figures, who served as an ordained priest despite his disability. This article pleads for a deeper involvement of disabled people in both ordained and lay ministry in Orthodox churches.     

Parent and Staff Uncertainties Regarding the Philosophy of Early Intervention in a Preschool Autism Program

This study investigated the influences of dominant paradigms in the field of autism on the attitudes and beliefs of stakeholders in an early intervention (EI) program for children with autism. This EI program is based on a developmental approach with the premise that intensive intervention in young children (ages 2–6 years) can change their developmental trajectory given the brain's plasticity. This study was based on 48 interviews with parents and staff, as well as three focus groups with stakeholders at a program serving young children with autism. Qualitative data analysis revealed that parents and staff were most influenced by the curative aspect of the medical model while they did not commonly demonstrate adherence to the principles of EI. Parents also revealed conflicting attitudes simultaneously, as many of them expressed wishes for their children to be cured of autism while at the same time wanting that interventions would continue indefinitely.     

Influence of social stigma on subjective well‐being of persons with albinism in Ghana

Previous studies have shown that social stigma adversely affects quality of life. However, little research has assessed the influence of social stigma on subjective well‐being (SWB) of persons with albinism (PWA) in Ghana, and the role that perceived social support plays in this relationship. This study investigated the SWB of PWA in Ghana. Participants (N = 105) completed a survey questionnaire on social stigma, social support, and SWB. Results from structural equation modelling showed a significant negative association between social stigma and SWB. Perceived social support partially mediated the negative effect that social stigma has on SWB, with significant other support emerging as a reliable predictor of SWB in this sample. Results suggest that the population with albinism in Ghana is experiencing high levels of social stigma, which is adversely affecting its SWB. Social stigma seems to be preventing PWA from being accorded the needed social support by family and friends. The results highlight the importance of designing stigma‐reduction educational interventions that target social stigma at family, community, and societal levels.     

Application of a self‐management intervention to improve data recording of educational care providers

The present study evaluated the effects of a self‐management intervention on scheduled data recording by classroom instructors at a school for children with intellectual disability and neurodevelopmental disorders. In a multiple baseline design across two classrooms, the instructors recorded student data according to an established protocol at the school and based on earlier training they had received. During intervention, the instructors self‐monitored implementation of data recording procedures that were prompted by a signal from an automated count‐down timer. The self‐management intervention increased scheduled data recording by participants in both classrooms to 90–100%, and these results were maintained at 1‐ and 2‐month follow‐up assessments. These findings add to the small literature concerning self‐managed approaches to training and performance improvement, extend application within educational settings, and suggest practical advantages for supporting competencies of care providers.     

Temperament and Social-Emotional Difficulties: The Dark Side of Learning Disabilities

The authors compared the relations between general psychological difficulties and dimensions of temperament in children with and without learning disability (LD). The main aim was to analyze whether and to what extent children's temperament dimensions contribute to their general psychological difficulties when LD diagnosis, age, and gender are taken into account. Participants were 52 elementary school children 7–11 years old (M age = 8.61 years, SD = 1.21 years). Twenty-six of them had been diagnosed with LD. Six teachers rated their pupils with and without LD in relation to their general psychological difficulties (Strengths and Difficulties Questionnaire) and temperament dimensions (Italian Questionnaires of Temperament). In children with LD, the main dimensions of temperament with the power to predict general psychological difficulties (i.e., emotionality and social orientation) concern these students' relationships with others (teachers and peers). The findings of the current study draw educators' and practitioners' attention to the fact that children's temperamental characteristics may affect how they experience their LD, with significant implications for their later social adjustment.     

Unilateral Fatigue Affects the Unipedal Postural Balance in Individuals With Intellectual Disability

This study aimed to explore the effect of local muscle fatigue on the unipedal stance in men with intellectual disability (ID). The Centre of pressure (CoP) excursions and the isometric maximal voluntary contraction (MVC) were measured before and after a fatiguing exercise. Higher baseline values of CoP excursions and lower MVC values were recorded in the ID group. After the fatiguing exercise, this group showed higher MVC decrease and higher percentage of increase of the mean CoP velocity. In conclusion, men with ID are more vulnerable to the disturbing effects of fatigue during the unipedal stance compared to men without ID.     

A systematic review of the effectiveness of psychoanalysis,psychoanalytic and psychodynamic psychotherapy with adults with intellectual and developmental disabilities: progress and challenges

Objectives: This systematic review aimed to critically appraise the literature on the efficacy and effectiveness of psychoanalysis, psychoanalytic and psychodynamic psychotherapy in adults with intellectual and developmental disabilities (IDD). Method: A systematic search of electronic databases was carried out. The methodological quality of the studies was assessed using a quality assessment tool and comparisons were made with a review of the quality of research on the effectiveness of cognitive behavioural therapy (CBT) for people with IDD. Results: The search yielded 13 papers which provided evidence for the effectiveness but not efficacy of psychoanalytic and psychodynamic psychotherapy; but none were found for psychoanalysis. The quality of the research was generally poor compared to the current research on the effectiveness of CBT. Conclusions: Positive outcomes have been indicated for psychoanalytic and psychodynamic psychotherapy with people with IDD. Larger scale, more controlled research is necessary to advance the evidence base.     

学习困难的ERP研究

事件相关脑电位（Event—related potentials,ERPs）是研究心理学和认知神经科学的重要技术手段,将该技术用于学习困难的脑机制的研究,有助于发现学习困难的神经机制。研究表明,学习困难者的P300波幅较小,潜伏期较长。学习困难者的MMN波幅比控制组小,在信息的自动加工方面存在缺陷。在单词命名任务中,学习困难者的N400较小,而且不同类型学习困难者的波幅和潜伏期存在明显差异。