Developing an understanding of the literature relating to the moral development of people with intellectual disabilities

Recent reviews of moral development theory (Gibbs, Basinger, Grime, & Snarey, 2007) demonstrate that revisionist theoretical perspectives have cross cultural validity, but moral development in relation to people with intellectual disabilities (IDs) has not been considered within this literature. A structured review of the published literature relating to children, adolescents and adults with IDs, and moral development was carried out. Twenty studies meeting the inclusion criteria were found. The review indicated that people with IDs may not progress through the developmental stages of moral reasoning as quickly as typically developing peers, or reach the more advanced stages. This difference from non-disabled peers tends to disappear if groups are matched on some measure of cognitive ability. However, the studies are fraught with methodological problems and there is a need for further research, given the theoretical developments within the area of moral development, including the evidence of a relationship between moral development and anti-social behaviour amongst typically developing children and adolescents.     

The rise and fall of IQ in special ed: Historical trends and their implications

Using IQ records from 10 sites around the country, we examined longitudinal trends in IQ among mental retardation (MR) students during the Wechsler Intelligence Scale for Children (WISC) to WISC-Revised (R) transition in the 1970s and learning disability (LD) students during the WISC-R to WISC-3rd Revision (III) transition in the 1990s. Based on the work by Flynn [American Journal of Mental Deficiency 90 (1985) 236; Psychology, Public Policy, and Law 6 (2000) 191], we predicted a rise in IQ followed by a fall each time a newly normed IQ test is introduced into the schools and used to diagnose children as MR or LD. As expected, we found that mean IQs of MR and LD students followed a nearly identical parabolic trajectory, and differed depending on what year they were tested. IQs from the older norms were higher than IQs from the newly introduced norms. This systematic shift had a significant impact on the likelihood of a MR diagnosis. The broader implications of this pattern are discussed.     

Can I Make a Difference? Efficacy,Employment, and Disability

Political efficacy is a widely studied phenomenon and an important predictor of political participation, but little is known about the political efficacy of the millions of people with disabilities in the United States. This paper reports the results of a nationally representative telephone survey of 1,240 people—stratified to include 700 people with disabilities—following the November 1998 elections. Several measures of efficacy that help predict political activity were found to be significantly lower among people with disabilities than among otherwise similar people without disabilities. Although lower levels of internal efficacy and civic skills could largely be explained by educational and employment gaps, lower levels of other variables (external efficacy, perceived influence of people with disabilities, and perceived treatment of people with disabilities) remained after applying a wide range of controls, indicating that people with disabilities are less likely to see the political system as responsive to them. This perception is concentrated among non–employed people with disabilities. The lower efficacy levels linked to "disability gaps" in employment, income, education, and group attendance appear to account for as much as half of the disability political participation gap; hence, policies intended to increase employment and educational opportunities for people with disabilities have potentially important political effects.     

‘They were brilliant,I don't know what I would've done if they hadn't been here’: the group concept problem revisited

This article concerns the group concept problem in people labelled as having learning disabilities, described in a series of papers by Gibbons and colleagues (Gibbons, 1981 , 1985a , 1985b ; Gibbons & Gibbons, 1980 ; Gibbons & Kassin, 1982 ). We argue that the interpretations of these studies are questionable, and alternative explanations for the patterns of results found are possible. Examples from a study in which people with the label talked about particular others who also have the label are presented. In these examples, the category was not represented as homogeneous, relationships with others were valued, and a desire for distance was only found when participants talked about people who behaved aggressively. The findings are discussed with reference to the social model of disability. Copyright © 2003 John Wiley & Sons, Ltd.     

Chickens or eggs? A follow‐up case study exploring links between physical and psychological impact of Tourette's syndrome and sexual abuse

This follow‐up case study highlights the complex relationship when working at the interface between physical and psychological symptoms. The paper draws upon conversations between an ex‐client and myself, held seven years after the end of our six year therapeutic relationship. Conversational interviews, based upon social constructionist beliefs, led to an unexpected exploration of the client's subsequent diagnosis of Tourette's syndrome (given several years after the end of therapy) and evolved into a struggle to reach a shared understanding of how she now makes connection between her problem with eating in public, her neck and facial tics, and childhood sexual abuse. Our research relationship provided both of us with a rare opportunity to reflect upon how she had made meaning of her counselling and its outcomes. The paper draws attention to the impact of counselling and therapy discourses concerning sexual abuse on the work we did at the time and asks how that work might be different today. It also helps us understand the layers of complexity and ambiguity contained within the client's stories. This multi‐layered case study represents the overlap and ‘messiness’ that mirrors the ‘lived experience’ of the persons involved, and provides an example of how co‐constructed research conversations can evoke stories that create meaning as they are told.     

People with intellectual disabilities on probation: an initial study

The two studies in this paper aim to investigate the prevalence and characteristics of people with intellectual disabilities in the probation service in England. Study one screened the abilities of a sample of 70 probationers in one single probation service. Study two compares a sub‐set of these to an equal number of control participants in order to further investigate the characteristics of those with intellectual disability on probation. Nearly 6% of service users appeared to have an intellectual disability, and 11% fell into the bottom 5% of the general population in terms of their intellectual and social functioning. We conclude that a significant minority of those in the probation service have an intellectual disability or similar needs. Copyright © 2002 John Wiley & Sons, Ltd.     

Using the Nominal Group Technique to Identify the Problems Experienced by Persons Living with Severe Physical Disabilities

Changes in health care have dramatically curtailed services to people with severe physical disability and their families. This has placed a greater burden of responsibility on those who live with these conditions and have ongoing care needs. Yet little is known about the subjective problems, challenges, and solutions reported by these people. We demonstrate how the nominal group technique can be used to obtain consumer-oriented information germane to these individuals and their concerns. We conducted nominal group technique meetings with 2 groups for persons with physical disability and a third with a group for family members in caregiving roles. We demonstrate how focus groups can be conducted with the nominal group technique to identify problems experienced by individuals who live with severe physical disability. Recommendations for using the nominal group technique with client populations are presented, and implications for clinical practice are discussed.     

Paul’s “Thorn in the Flesh” and Christian Mission to People with Disabilities

This article attempts a holistic theological analysis of what the mission of the church to people living with disabilities (PLWDs) should be. The article pays attention to Paul’s reference to a “thorn in his flesh” using the theory of complex embodiment. It counters the emphasis in some churches on healing as the proper response to the needs of PLWDs. Rather, the article seek to present a theology that gives PLWDs greater knowledge of and control over their bodies to live meaningful lives even with their disabilities. The article argues that Paul lived with a disability and that although he sought to have it healed, he later accepted it and lived fully and meaningfully with it. It concludes that, from the example of Paul, the church’s mission to PLWDs should not necessarily be the healing of disabilities but their empowerment and integration in our societies.     

Is disability really an obstacle to success? Impact of a disability simulation on motivation and performance

In Western societies, statistics on the integration of people with disabilities into the labor market consistently indicate that this category of workers faces serious discrimination. Research has evidenced negative perceptions about their occupational skills, despite positive beliefs about their personal qualities. The main purpose of this study was to show how these subjective beliefs about disability can shape performance (speed and accuracy, Studies 1, 3, and 4) and self‐reported motivation (Studies 2, 3, and 4) of able‐bodied persons simulating a disability. Participants were 281 French students without disabilities who carried out a task either with or without a simulated disability. This simulated disability constituted an actual handicap to perform the task (Studies 1 and 2) or not (Studies 3 and 4). The first three studies were focused on cognitive abilities, whereas Study 4 introduced a job interview component. Results consistently showed that participants in the simulated disability situation completed the task more accurately than controls, but took more time to do so. Higher degrees of motivation and perseverance are found for participants in the simulated disability situation, except in a job interview setting. These results are important for understanding how subjective beliefs about persons with disabilities can constitute objective barriers to social participation, and more specifically, to access to the labor market.     

Delayed disclosure of disability related needs: Experiences of “at-risk” students in a South African university

The present study explored disability disclosure influences on university students, and specifically the types of supports the students perceive to need. Informants were three differently abled students (female = 1 and males = 2). They participated in semi-structured and focus group interviews on their delayed disability disclosure. Thematic analysis of the data revealed students to contend with inaccessibility of information on support mechanisms, low self-confidence, stigma and doubt, and embarrassment to negotiate support. To best support students with disabilities in their disability disclosure, student counselling services should prioritise dealing with their anxieties and follow this up by supporting them in balancing their disability and academic needs.