Recherche sur données : aspects juridiques et éthiques à travers l’expérience de l’hôpital Foch

Health data is the object of covetousness by many actors, of course by the healthcare industry, in particular the drug and medical device industry, by hospitals and research institutes, but also by all types of merchant companies which would like to derive substantial benefits from it. Faced with this phenomenon, the European Commission, within the framework of the replacement of the European Directive on health data of 1995, by the General Data Protection Regulation of 2016 (GDPR) has strengthened the protection of health data which is particularly sensitive data for everyone and, consequently, carrying out studies on health data. Researches that does not involve human beings, improperly called “Data studies”, are closely regulated by the GDPR and, for France, by the Data Protection Act, which has been amended accordingly. This article describes the steps to be taken for the implementation of data studies and what are the rights of participants/patients in the context of these researchs. Ethical vigilance would require that such research be reviewed by an ad hoc committee.     

基于过程数据的问题解决能力测量及数据分析方法

问题解决能力是指在没有明显解决方法的情况下个体从事认知加工以理解和解决问题情境的能力。对问题解决能力的测量需要借助相对更复杂、更真实、具有可交互性的问题情境来诱导问题解决行为的呈现。使用虚拟测评抓取问题解决的过程数据并分析其中所蕴含的潜在信息是当前心理计量学中测量问题解决能力的新趋势。首先, 回顾问题解决能力测量方式的发展：从纸笔测验到虚拟测评。然后, 总结对比两类过程数据的分析方法：统计建模法和数据挖掘法。最后, 从非认知因素的影响、多模态数据的利用、问题解决能力发展的测量、其他高阶思维能力的测量和问题解决能力概念及结构的界定五个方面展望未来可能的研究方向。     

Association rule learning in neuropsychological data analysis for Alzheimer’s disease

Efficient methods of analysis readily available for clinicians continue to be limited within neuropsychological assessment at the raw data level. Here, a novel approach for generating predictive response patterns and analysing neuropsychological raw data is offered. In order to assess the usefulness of association rule learning as an analysis tool for neuropsychological raw data, Frequent Pattern Growth (FP-Growth) was used to mine patterns from the Consortium to Establish a Registry for Alzheimer’s Disease Neuropsychological Battery (CERAD-NB) database. Complete assessment data for 84 post-mortem confirmed Alzheimer’s disease (AD) cases and 294 age, race, and education matched controls were analysed across baseline and one-year follow-up using FP-Growth, for the purpose of assessing the clinical utility of a finer analysis at the raw data level and the feasibility of predicting response patterns for clinical/control groups. Output from FP-Growth, in terms of the number of frequent itemsets retained across both evaluation timepoints, was discernable between controls, mild, and moderate to severe Alzheimer’s disease cases (p < .001, and η² = .488). Patterns within raw data scores, both in terms of frequent itemsets and predictive association rules, appear to be differentiable across groups within neuropsychological analysis, which indicates that FP-Growth is applicable as a supplementary analysis tool for neuropsychological assessment by means of offering an additional level of data analysis, predictive item response capabilities, and aiding in clinical decision making.     

Mediation analysis and categorical variables: Some further frontiers

Iacobucci (2012) provides a conceptually appealing, readily implemented measure to assess mediation for a far wider range of data type combinations than traditional OLS-based analyses permit. Here, we consider potential applications and extensions along several lines, particularly in terms of random utility models, simulation-based estimation, and potential nonlinearities, as well as some methodological and cultural impediments.     

Effects of (un)employment on young couples’ health and life satisfaction

This study investigated effects of employed and unemployed job status on health outcomes with questionnaires in 50 young couples. Analysis of variance revealed higher pessimism, higher stress levels, and lower life satisfaction in couples in which one partner was unemployed. These couples also exhibited more health risk behaviours compared to couples in which both partners were working. The dyadic analysis of data, using an actor–partner interdependence model, demonstrated strong actor and partner effects for male partner's job status. Being unemployed was significantly associated not only with male partner's life satisfaction but also with the life satisfaction of his female partner. In addition, male partner's pessimism was identified as a significant variable which mediates between male partner's job status and female partner's life satisfaction. The study highlights the relevance of the accomplishment of tasks in the domains of work and partnership during young adulthood and it emphasises the gender specific importance.     

On the development of perfectionism in adolescence: Perceived parental expectations predict longitudinal increases in socially prescribed perfectionism

Adolescence is regarded a key period when individual differences in perfectionism develop. Yet, so far only a few longitudinal studies have investigated the development of perfectionism in adolescents. Using a longitudinal correlational design with 381 adolescents aged 15–19 years, the present study investigated whether perceived parental expectations and criticism predicted longitudinal increases in self-oriented and socially prescribed perfectionism over 7–9 months. Results showed that perceived parental expectations predicted longitudinal increases in socially prescribed perfectionism: Adolescents who perceived that their parents had high expectations of them at Time 1, showed increased socially prescribed perfectionism from Time 1 to Time 2 compared to adolescents who did not perceive their parents having such high expectations. No such effect was found for self-oriented perfectionism. The findings provide supportive evidence for the social expectations model of the development of perfectionism regarding socially prescribed perfectionism, but not self-oriented perfectionism. Implications of this finding for the understanding of the development of perfectionism and future studies are discussed.     

Determinants of the shape of emotion intensity profiles

It has been shown that variability in the shape of emotion intensity profiles can be described in terms of three functional features, namely steepness at onset, skewness and number of peaks. However, it remains unclear which factors account for variability in each of these features. In the present study participants were asked to report intensity profiles of positive and negative emotions on a daily basis. Information was further collected regarding potential determinants of the functional features of the intensity profiles at three levels: trait-, episode-, and moment-determinants. Regarding steepness at onset, it was found for positive and negative emotions that intensity profiles have an especially explosive start when the eliciting stimulus is important, when the stimulus is still present during the beginning of the episode, and, in case of positive emotions, when the participant is an extravert. Concerning skewness, it was found for positive and negative emotions that profiles reach their peak more often towards the end when the eliciting stimulus is important, when the stimulus is absent during the beginning of the episode but present towards the end, and, in case of negative emotions, when the stimulus is uncontrollable. Regarding the number of peaks, it was found that profiles more often have multiple peaks when the eliciting stimulus is absent during the middle of the emotional episode.     

A set of high quality colour images with Spanish norms for seven relevant psycholinguistic variables: The Nombela naming test

ABSTRACT

This paper presents a new corpus of 140 high quality colour images belonging to 14 subcategories and covering a range of naming difficulty. One hundred and six Spanish speakers named the items and provided data for several psycholinguistic variables: age of acquisition, familiarity, manipulability, name agreement, typicality and visual complexity. Furthermore, we also present lexical frequency data derived internet search hits. Apart from the large number of variables evaluated, these stimuli present an important advantage with respect to other comparable image corpora in so far as naming performance in healthy individuals is less prone to ceiling effect problems. Reliability and validity indexes showed that our items display similar psycholinguistic characteristics to those of other corpora. In sum, this set of ecologically valid stimuli provides a useful tool for scientists engaged in cognitive and neuroscience-based research.     

Competence and control orientations as predictors of test anxiety in students: Longitudinal results

Abstract

The hypothesis that domain-specific self-related cognitions (self-concept of own competence and control orientations) are predictors of text anxiety in students is tested by longitudinal data. At the beginning and at the end of a school year the following variables were measured twice in a sample of 346 secondary school students (grades six to ten): (1) self-concept of own competence in mathematics, (2) three aspects of locus of control for problem-solving behavior (internality, powerful others control, and chance control), (3) generalized locus of control of reinforcement, (4) test anxiety as well as manifest anxiety. The cross-sequential developmental gradients point toward symmetries in the development of self-related cognitions and test anxiety. The results of cross-lagged correlation analyses show that the null hypothesis (no causal relations exist between the self-related cognitions and test anxiety) can be rejected for the domain-specific aspects of (a low) self-concept of own competence and locus of control (low internality and high chance control), which are confirmed as preceding test anxiety. However, longitudinal results also show that findings of cross-sectional studies tend to overestimate the relations between self-related cognitions and test anxiety in a developmental perspective.     

“I have undergone some metamorphosis!” The Impact of REds on South African Educators Affected by the Hiv/Aids Pandemic. A Pilot Study

The study investigated the efficacy of Resilient Educators (REds), a group intervention program, designed to empower educators affected by the HIV/Aids pandemic and in research in progress. Fifteen participants (three male; twelve female) from various primary schools in two different South African communities were involved. Participant ages ranged from early thirties to mid-fifties. A pre-test, post-test design was conducted. Visual data were collected in the form of symbolic drawings: participants drew symbols of their perception of the pandemic and explained the meaning of their chosen symbols either in writing or verbally. A qualitative comparison of these visual data suggested transformed perception and concomitant teacher empowerment. Prior to participation in REds, participants projected vulnerability. Following their participation, participant projections suggested self-empowerment and community mindedness. Participants perceived themselves capable of coping with the challenges of the pandemic.