The subjective experience of subjects diagnosed with celiac disease in adulthood

Introduction

Celiac disease is estimated to affect between 1 in 100 and 1 in 300 Caucasian subjects. Many quantitative studies have explored the issues encountered by these subjects; however, few studies have addressed the subjective and experiential dimensions of celiac disease.

Pratiquer l’analyse interprétative phénoménologique : intérêts et illustration dans le cadre de l’enquête psychosociale par entretiens de recherche

Introduction

Interpretative phenomenological analysis is a qualitative discourse analysis method that has sprung up much research in psychology over the past 20 years. Grounded in phenomenology, idiography and hermeneutics, this research strategy strongly suits the understanding of individuals lived experience and their sense making of life events.

Modelling the effect of worship attendance and personal prayer on spiritual well-being among 9- to 11-year-old students attending Anglican church schools in Wales

This study employs a modified form of the Fisher 16-item Feeling Good, Living Life measure of spiritual well-being (assessing quality of relationships across four domains: self, family, nature and God) among a sample of 1,328 students drawn from year five and year six classes within Church in Wales primary schools, alongside measures of frequency of worship attendance and frequency of personal prayer. The data demonstrate frequency of personal prayer is a much stronger predictor than frequency of worship attendance in respect of spiritual well-being. This finding is consistent with the view that personal prayer is a key factor in the formation of individual spirituality.     

From “Longshot” to “Fantasy”: Obligations to Pediatric Patients and Families When Last-Ditch Medical Efforts Fail

Clinicians at quaternary centers see part of their mission as providing hope when others cannot. They tend to see sicker patients with more complex disease processes. Part of this mission is offering longshot treatment modalities that are unlikely to achieve their stated goal, but conceivably could. When patients embark on such a treatment plan, it may fail. Often treatment toward an initial goal continues beyond the point at which such a goal is feasible. We explore the progression of care from longshot to fantasy using two pediatric cases. This progression may be differentiated into four distinct stages of care related to the potential of achieving the initial goals of care. Physicians are often ill prepared for the progression of treatments from a longshot hope to an unfeasible and, therefore, typically unjustified intervention. We present a structured approach to guide clinicians at referral institutions where these situations may be common. The transition of care from “longshot” to “fantasy” is an inherent part of quaternary care for the sickest of patients that has been underexplored. Physicians are often poorly equipped to approach that transition. We advocate this approach to the shift from longshot to fantasy with the belief that such a structured method will have multiple benefits, including: reduced suffering for the patient; decreased emotional burden on patient and family; decreased provider moral distress; increased likelihood of seeking high quality palliative care earlier; and provision of honest and straightforward information to patients and their families.     

Feminist Relational Discourse Analysis: putting the personal in the political in feminist research

Discourse analysis is a useful and flexible method for exploring power and identity. While there are many forms of discourse analysis, all agree that discourse is the central site of identity construction. However, recent feminist concerns over power, agency, and resistance have drawn attention to the absence of participants’ first-hand experiences within broad discursive accounts (Lafrance &; McKenzie-Mohr 2014 Boonzaier, F 2014, ‘Talking against dominance: South African women resisting dominant discourse in narratives of violence’, in S McKenzie-Mohr &; MN Lafrance (eds.), Women voicing resistance: discursive and narrative explorations, Routledge, Hove, pp. 102–20.[Crossref] , [Google Scholar]; Saukko 2008 Saukko, P 2008, The anorexic self: a personal, political analysis of a diagnostic discourse, State University of New York Press, Albany. [Google Scholar]). For those with an interest in power relations, such as feminist researchers, this is a problematic silence which renders the personal functions of discourse invisible. In this article, we argue that the “personal” and “political” are inextricable, and we make a case for putting the “personal” into broader discursive frameworks of understanding. Further, we assert that feminist research seeking to account for identity must more explicitly aim to capture this interplay. To this end, we argue that voice is the key site of meaning where this interplay can be captured, but that no clear analytical framework currently exists for producing such an account. In response, we propose Feminist Relational Discourse Analysis (FRDA) as a voice-centered analytical approach for engaging with experience and discourse in talk. We then set out clear guidance on how to do FRDA, as applied in the context of women working in U.K. policing. Finally, we conclude that by prioritizing voice, FRDA invites new and politicized feminist readings of power, agency, and resistance, where the voices of participants remain central to the discursive accounts of researchers.     

青少年早期同伴拒绝、同伴侵害与抑郁的关系：交叉滞后分析

采用间隔1年的追踪设计,使用结构方程建模对1068名青少年早期个体的同伴拒绝、同伴侵害与抑郁间的关系进行交叉滞后分析。结果发现,（1）在不同时间点上,同伴拒绝、同伴侵害和青少年抑郁之间存在显著正相关;（2）先前的抑郁水平对随后个体遭受的身体侵害和关系侵害均有显著预测作用,而先前的同伴侵害不能显著预测随后青少年的抑郁水平。抑郁对同伴拒绝、以及同伴拒绝对抑郁的预测作用均不显著。（3）同伴拒绝、同伴侵害与抑郁间的关系具有跨性别的一致性。这表明,青少年早期同伴侵害和抑郁间存在单向预测关系,抑郁导致同伴侵害。     

Perceived stigma of caregivers: Psychometric evaluation for Devaluation of Consumer Families Scale

Background/Objective: The Devaluation of Consumer Families Scale (DCFS) is commonly used to measure perceived stigma towards family members of people with mental illness. However, its factorial structure has never been confirmed using confirmatory factor analysis (CFA). This study aimed to test the psychometric properties of the DCFS Taiwan version (DCFS-TW). Method: Family caregivers (N=511) completed the DCFS-TW (97 completed the DCFS again after 2 to 4 weeks) and other instruments. CFA, test-retest reliability, internal consistency, concurrent validity, and known-group validity were analyzed. Results: The three-factor structure of the DCFS-TW performed better than the one-factor structure. Test-retest reliability (r = .66) and internal consistency were satisfactory (α = .85); concurrent validity (absolute r = .20 to .58) was acceptable; known-group validity was supported by the significantly different DCFS-TW scores in clinical characteristics (had been vs. had not been hospitalized; had been vs. had not been compulsorily admitted). Conclusions: The DCFS-TW has decent psychometric properties and is suitable for health professionals to measure perceived stigma towards family members of people with mental illness.     

Citizenship’s tangled web: Associations,gaps and tensions in formulations of European youth active citizenship across disciplines

Abstract

How does academic literature across various disciplines conceptualize and empirically address active citizenship? What are the potential benefits and dangers of dominant epistemological and ideological perspectives on ‘good citizenship’? Our paper engages with these questions by drawing on literature across 12 disciplines. We used textual analysis software T-LAB to quantify and visualize co-occurrences, word associations and thematic clusters in the abstracts of 770 texts gathered by eight country teams and original in-depth qualitative analyses of ideological positions and discourses taken up in a selection of key texts across the corpus. Our paper elaborates the findings: that many of the key themes surrounding young people and citizenship in the literature share little or no connection with European citizenship; that there is a significant gap in the literature on young European citizens; and that studies connected to internal, status-based factors connected to citizenship are far more prevalent than those examining external, practice-based factors or dissidence and dissent. Our conclusions examine the potential normative implications of the disjuncture between dominant conceptions and critical accounts of youth active citizenship.