Caregiving in multiple sclerosis and quality of life: A meta-synthesis of qualitative research

Objective: The lack of adequate conceptualisation and operationalisation of quality of life (QoL) limits the ability to have a consistent body of evidence to improve QoL research and practice in informal caregiving for people with multiple sclerosis (MS). Thus, we conducted a meta-synthesis of qualitative research to improve the conceptual understanding of the experiences of MS carers and to identify factors that affect carers’ QoL.

Design: Systematic searches of five electronic databases yielded 17 qualitative studies which were synthesised using the principles of meta-ethnography.

Results: The synthesis resulted in nine inter-linking themes: Changes and losses; challenges revolving around MS; caregiving demands; burden of care; future concerns; external stressors; experiences of support; strategies used in managing the caregiving role; and motivating factors. Our findings suggest that MS carers can have both positive and negative experiences which may bring challenges and rewards to the carers.

Conclusion: We present a proposed QoL model for MS caregiving which can be used to inform the development of interventions for MS carers to improve their QoL. However, further empirical research is needed to examine the utility of this model and to explore the concept of QoL in MS carers in more detail.     

‘Infinity Means it Goes on Forever’: Siblings' Informal Teaching of Mathematics

Sibling‐directed teaching of mathematical topics during naturalistic home interactions was investigated in 39 middle‐class sibling dyads at two time points. At time 1 (T1), siblings were 2 and 4 years of age, and at time 2 (T2), siblings were 4 and 6 years of age. Intentional sequences of sibling‐directed mathematical teaching were coded for (i) topics (e.g., number), (ii) contexts (e.g., play with materials/toys), and (iii) type of knowledge (conceptual and procedural). Siblings engaged in teaching number, geometry, and measurement at T1 and demonstrated preliminary evidence of teaching of grouping, relations, and operations at T2. Regarding context, at T1, mathematical teaching occurred most frequently during play with materials/toys, while at T2, games with rules were prominent. Teaching of conceptual or procedural knowledge varied over time and by topic and context. Findings are discussed in light of recent work on understanding children's mathematical knowledge as it develops in the informal family context. Copyright © 2015 John Wiley & Sons, Ltd.     

Antecedents of consumer loyalty in ride-hailing

The rise of the sharing economy has remarkedly shifted consumers’ traffic behaviour, which gave rise to successful start-up businesses, such as Uber and Grab, that offer innovative transport alternatives through car and ride sharing. This study investigates consumers’ traffic attitudes and behavioural responses to on-demand ride-hailing. Using structural equation modelling, our survey findings showed that price consciousness, perceived usefulness, ease of use, safety risk and customer value exert significant influences on word-of-mouth (WOM), a manifestation of attitudinal loyalty towards ride-hailing. Contrary to findings in previous studies, our study found insignificant effects of personal innovativeness, subjective norm and perceived privacy security on WOM. In addition, although environmental consciousness is a predictor of WOM, its significant effect on WOM is negative. WOM is found to significantly impact purchase intention which is an indicator of behavioural loyalty. By identifying the antecedents of consumer loyalty in ride-hailing, this study provides recommendations for the ride-hailing ecosystem to generate more sustainable urban transport solutions.     

共享经济背景下顾客公民行为和不当行为：基于社会困境理论的视角

共享经济(个体供方对个体顾客的共享模式如小猪短租平台)中顾客公民行为的促进和不当行为的治理, 成为保证共享经济可持续发展的重要议题。然而, 现有顾客行为相关研究更多是在传统经济背景下进行的探讨, 而涉及到共享经济背景下的研究难以体现共享经济的特色, 导致其未能很好地解决实践困境。上述顾客行为是在个人和集体利益发生冲突时的抉择, 即社会困境。社会困境理论可以帮助企业全面认识顾客公民行为和不当行为并有效解决困境问题。本研究拟基于社会困境理论, 探讨以下三个方面的问题: (1) 深入剖析共享经济中顾客公民行为和不当行为的概念、维度及其测量; (2) 揭示平台、供方和政府通过规则制定或社会影响策略来有效优化顾客行为的路径; (3) 阐明顾客公民和不当行为的差异性影响机制, 以及顾客社会价值导向和供方监督对顾客行为的调节作用。本研究有助于拓展现有顾客公民和不当行为的研究, 为平台、供方和政府管理提供重要参考。     

The Academic Productivist Regime: Affective Dynamics in the Moral-Political Economy of Publishing

With proliferating neoliberal modes of science governance, publishing has become more important. Recent studies point to researchers’ feeling of exhaustion and anxiety as responses to academic performance regimes. Yet how affects underpin publishing in scientific cultures and communities, and what this implies for STS scholarship has remained underexplored. Drawing on insights from ethnographic fieldwork and the cultural studies of affect, this article traces the role of emotions, including hope, contempt, and excitement for understanding the new academic productivist regime at a Czech research institution. While junior researchers’ orientations are fostered through rendering publications objects of hope, a moral-political economy intersects with geopolitical history and values of research organization to shape the publication practices of many senior scientists. An affective labor of combat and equanimity is necessary for managing these orientations that are corporeally energized by a dynamic of thrill. This four-pronged approach makes palpable how emotions render scientists’ bodies hopeful, combative and excited while intersecting with ideals of meritocratic research organization and assessment. Frustration and failure are never entirely absent but serve as an immanent driving force for a publishing culture that thrives on adrenaline, combativeness, and hope. This makes it difficult to leverage failures towards criticism of the academic productivist regime—both for the scientists differently affected within the institution and STS researchers. Different engagements with this regime require a more capacious accounting for the pleasure and thrill generated by the uncertainty of publication outcome as well as by unacknowledged practices of care.     

Endless Qualifications,Restless Consumption: The Governance of Novel Foods in Europe

Functional foods and foods derived from genetically modified organisms represent two forms of intervention in the design of foodstuffs that have given rise to distinct political and regulatory dynamics. In Europe, regulatory agencies have tried, unsuccessfully, to affix a definitive legal meaning to these categories of food artificiality. This incomplete process of legal disambiguation has gone hand in hand with the delegation of the responsibility for overseeing new products to consumers, who are asked to continuously consider and assess the qualities of foods when making their choices in the marketplace. In the case of genetically modified foods, we have witnessed strategies of avoidance premised on the consideration of genetic modification as a blemish on the conventional character of foodstuffs. Functional foods, on the other hand, are increasingly mobilized in practices of naturalistic enhancement. What both examples have in common is the open-ended character of their respective regulatory regimes, and the continuous prodding of consumers to involve themselves more intensely in the weighing of their food choices. The result is a particular mode of market activism that we describe as restless consumption.     

The Future Models of Arab Political Economy

Three distinct models of political economy are articulated in this article to chart out the possible politico-economic futures of the Arab World. Of these, the present predicaments of the revolutionizing Arab populace are argued to have been caused by the continuance of the wrong social choices. It depended for a long time now on the alienating model of differentiation and alienation of the Arab nations by their rulers, and by their uncritical immersing in the equally debilitating globalization agenda. Two models of the alienating and unfeasible types are formulated as the prevailing ones today. The arguments and empirical study of limited socioeconomic data with the examples of Egypt, Tunisia and Yemen, which are considered as exemplary of the revolutionary Arab World, point out that social factors based on the demand for participation and representation, self-reliant social change, and opportunities are the overwhelming factors of politico-economic change. These factors, as opposed to the purely economic factors, must be embedded in a synergistic way with the rest in a distinctive future model of Arab political economy. Three formal models of possible political economy of the future Arab World with their evolutionary futures are formalized. Necessary social and policy implications are drawn in reference to these three evolutionary Arab futures in political economy.     

Working in the hidden economy: Associations with the latent benefits and psychological health

Hidden economy working can provide income and cushion the financial hardship during unemployment; can it also substitute for some latent functions of regular employment? According to Jahoda's theory, the latent functions include the time structure, regular shared experience, information about personal identity, a link with the collective purpose, and enforced regular activity. This article explores whether the undeclared working reduces the degree of deprivation of these functions during unemployment and, consequently, improves the psychological health of a person. The data were collected from a sample of unemployed persons (N = 1138) registered with the Croatian Employment Bureau. A series of questions about their day-to-day activities were used to estimate the amount of undeclared working, an ad hoc developed scale to assess the extent of their latent deprivation, and the SF-36 Health Survey to measure their psychological health. The ANCOVA revealed that the participants who were often engaged in the hidden economy working exhibited reduced latent deprivation and improved psychological health compared to those who were sometimes engaged. Hierarchical regression analysis indicated that their better psychological health was partially mediated through reduced latent deprivation. However, the unemployed who were never engaged in undeclared working exhibited a relatively high psychological health as well.     

Karma accounts: supplementary thoughts on Theravāda,Madhyamaka, theosophy,and Protestant Buddhism

This article supplements Jens Schlieter's discussion of the cognitive metaphor of a karmic bank-account, adding selected points on karma monetary/fiscal metaphors as preserved chiefly in Pāli and Sanskrit sources. It explores various strands of the history of South Asian religions where distinct economic metaphors for karma come closer to the late ‘bank-account of karma’: i.e., the Vedic ‘three debts,’ a Hindu concept of God as accountant, the varieties of weighing the (mis)deeds, the Buddhist monastic status of debt and fiscal transactions, the equivalence of karma and debt as discussed by Madhyamaka thinkers, and others. While endorsing Schlieter's point, it also takes into account such modern Western sources as early theosophical discourse and ‘Protestant Buddhism.’     

Affective economies of Beyoglu in Istanbul: The construction of ‘Disgust’ and ‘Fear’ in neoliberalization of nightlife

This study contributes to understanding neoliberalism in Beyoglu, by examining how neoliberal discourses create and circulate normative meanings in nightlife. I suggest that neoliberal discourses and practices inform a value structure in everyday life which identifies subject positions in terms of affiliation and marginalization in Beyoglu's nightlife scene, based on the affective economies of Beyoglu. Affiliation/marginalization distil through moments of contact, imbued with various affective dispositions. I argue that spaces of affiliation shape and are shaped by the affective dispositions of (middle-)classed night-time euphoria. Conforming to norms of desirability, attractiveness and safety, they present a cultural and economic model attuned to neoliberal rationalities. Two dominant stereotypes of ‘undesirability’ emerge in affective terms: (i) those of ‘ineligible’ dispositions which produce emotions of ‘disgust’, and (ii) those of ‘fearful’ bodies constantly moving across the night-time leisure places of Beyoglu. By examining the relationship between neoliberalism and affective economies in Beyoglu's nightlife, this study contributes to research on night-time leisure places, providing insight into linkages between emotional subjectivities and rational thinking.