The protection of patients’ rights in clinical trials

The Helsinki Declaration is a very important document regarding the protection of patients’ rights in clinical trials and one of the fundamental sources of operational principles for every ethics committee. Although they have been updated, the international guidelines for ethics committees continually fail to address certain issues pertaining to the protection of patients’ rights in clinical trials. These issues include, most significantly, the method of electing ethics committees (a free, secret ballot should be preferred to direct appointment), the avoidance of conflict of interest during the election of ethics committee members, and the necessary insurance coverage for the participants of clinical trials. Polish law should, on the other hand, be developed in such way as to not limit the effectiveness of ethics committees in protecting patients’ rights in clinical trials. The ideal solution would be to draft a uniform law concerning not only clinical trials, but all medical experiments. The opinions of experts who have been reviewing medical research projects for several years may prove to be especially valuable in this setting. This paper was presented at the 6th International Bioethics Conference on the subject of ‘The Responsible Conduct of Basic and Clinical Research’, held in Warsaw, Poland, 3–4 June 2005. The author is Chairman, Bioethics Committee of the Warsaw Regional Chamber of Physicians and Dentists.     

Property rights, genes, and common good

This paper applies aspects of Hugo Grotius's theologically informed theory of property to contemporary issues concerning access to the human DNA sequence and patenting practices. It argues that Christians who contribute to public debate in these areas might beneficially employ some of the concepts with which he worked--notably "common right," the "right of necessity," and "use right." In the seventeenth century, wars were fought over trading rights and access to the sea. In the twenty-first century, information and intellectual property are the issues of the day. Grotius's writings serve to correct the overemphasis in modern liberalism on individual rights, and have practical application to the debate concerning the reduction of the human genome to the status of private property.     

Are Human Rights Redundant in the Ethical Codes of Psychologists?

The codes of ethics and conduct of a number of psychology bodies explicitly refer to human rights, and the American Psychological Association recently expanded the use of the construct when it amended standard 1.02 of the Ethical Principles of Psychologists and Code of Conduct. What is unclear is how these references to human rights should be interpreted. In this article I examine the historical development of human rights and associated constructs and the contemporary meaning of human rights. As human rights are generally associated with law, morality, or religion, I consider to which of forms of these references most likely refer. I conclude that these references in ethical codes are redundant and that it would be preferable not to refer to human rights in codes. Instead, the profession should acknowledge human rights as a separate and complimentary norm system that governs the behavior of psychologists and should ensure that they have adequate knowledge of human rights and encourage them to promote human rights.     

Common future and personal responsibilities: A comparison between Italian and Burundian students

The political, social, and cultural history of a nation modulates the representations of rights and duties. The aim of this research is to compare students from two countries (Italy and Burundi) in terms of how they define their rights and duties. In the two countries, there are differences both in the legal protection of fundamental rights and in regard to material conditions, which in turn ensure the effectiveness of rights. Focus groups structured around nine questions were conducted in Burundi and in Italy. The discussions with Italian and Burundian students showed some clear differences. Although both groups speak of rights as something to be safeguarded and something that everyone is born with, Italian students do not recognize the complementarity of rights and duties and consider the latter simply as a limit and an obstacle to individual enhancement. On the contrary, Burundian adolescents seem more aware of their personal responsibilities and their role in protecting human rights.     

Locked Up,Then Locked Out

SUMMARY

Women prisoners face tremendous psychological, emotional, and physical hardships inside prison. These include isolation, separation from their families and children, lack of medical care and general abuse of their basic human rights. When they are released from prison, women confront institutional as well as psychological barriers to a successful return to their communities     

Perceiving vocal age and gender: An adaptation approach

Aftereffects of adaptation have revealed both independent and interactive coding of facial signals including identity and expression or gender and age. By contrast, interactive processing of non-linguistic features in voices has rarely been investigated. Here we studied bidirectional cross-categorical aftereffects of adaptation to vocal age and gender. Prolonged exposure to young (~ 20 yrs) or old (~ 70 yrs) male or female voices biased perception of subsequent test voices away from the adapting age (Exp. 1) and the adapting gender (Exp. 2). Relative to gender-congruent adaptor-test pairings, vocal age aftereffects (VAAEs) were reduced but remained significant when voice gender changed between adaptation and test. This suggests that the VAAE relies on both gender-specific and gender-independent age representations for male and female voices. By contrast, voice gender aftereffects (VGAEs) were not modulated by age-congruency of adaptor and test voices (Exp. 2). Instead, young voice adaptors generally induced larger VGAEs than old voice adaptors. This suggests that young voices are particularly efficient gender adaptors, likely reflecting more pronounced sexual dimorphism in these voices. In sum, our findings demonstrate how high-level processing of vocal age and gender is partially intertwined.     

Generational forgiveness and historical injustices: perspectives of descendants of victims of Apartheid-era gross human rights violations in South Africa

This study explored the issue of generational forgiveness in the political sphere in contemporary South Africa. It is based on qualitative interviews conducted with 20 children and grandchildren (females?=?10, males?=?10) of victims of Apartheidera gross human rights violations. The interview data were interpretively analysed to uncover underlying meaning. The results yielded three main themes namely: the myth of forgiveness in politics; political forgiveness as an inherently difficult human enterprise; and the intrinsic value of political forgiveness. Findings suggest that political forgiveness is likely if solutions are found to persistent poverty and inequality, which are structural legacies of the past.     

Origin Stories: Same-Sex Sexuality and Christian Right Politics

In this paper, we examine dominant Christian conservative narratives of the origins of same-sex sexuality. Critics of the Christian right usually focus on a narrative of choice that Christian right organisations and activists use to explain the origins of same-sex sexuality. A choice narrative grounds a range of political positions and, in many contexts, effectively neutralises both claims of discrimination and public support for potential legal remedies. On the other hand, a narrative of development receives less attention from critics of the Christian right. Although it cannot be reduced to its political efficacy, the narrative of development has a political as well as therapeutic function. Indeed, this narrative circulates tacitly through a different set of public debates than those usually associated with the narrative of choice, including debates over programmes geared to eliminate antigay harassment in public schools. The two narratives create tensions within Christian conservative thought that can destabilise antigay social and political projects.     

Policing,profiling and discrimination law: US and European approaches compared

Counter-terrorism officials in the USA and the UK responded to the events of 11 September 2001 and 7 July 2005 with an increasing resort to the use of ‘intelligence-led policing’ methods such as racial and religious profiling. Reliance on intelligence, to the effect that most people who commit a certain crime have a certain ethnicity, can lead to less favourable treatment of an individual with that ethnicity because of his membership in that group, not because of any act he is suspected or known to have committed. This paper explains the context in which intelligence-led policing flourishes, and how this discussion contributes to the profiling debate in both the USA and the UK, and then sets out two key contentions. First, we argue that Article 14 ECHR as applied under the UK Human Rights Act has a more protective, and less ‘prosecutorial’, conception of discrimination than has the US Equal Protection Clause, meaning that judges need not find a discriminatory motive to find that discrimination has occurred. Second, we contend that Article 14 provides the judiciary with the key tool of proportionality, which, when properly applied, makes it harder for discrimination to stand up to scrutiny.