Diverse Perceptions of the Informed Consent Process: Implications for the Recruitment and Participation of Diverse Communities in the National Children’s Study

We examined the experiences, perceptions, and values that are brought to bear when individuals from different ethnic and cultural backgrounds consider participating in health research. Fifty-three women from Latino, Asian American, Middle Eastern, or Non-Latino, White backgrounds participated in seven English or Spanish focus groups facilitated by trained investigators using a standard protocol. Investigators described the National Children’s Study (NCS) and then asked questions to elicit potential concerns, expectations, and informational needs. Group sessions were audio-recorded, transcribed verbatim, and analyzed using qualitative thematic methods. A major theme that emerged during focus groups was participant self-identification as a member of a cultural group or community when raising issues that would influence their decision to participate in research. A related theme was the belief by some that communities may differ in the ease of participation in the NCS. Identified themes related to the informed consent process included perceived risks, anticipated burden, perceived benefits, informational needs, and decision-making strategies. Although themes were shared across groups, there were cultural differences within themes. Findings indicated that individuals from diverse backgrounds may have different perspectives on and expectations for the research process. To effectively recruit representative samples, it will be important to address a range of issues relevant for informed consent and to consider the impact of participation on both individuals and communities.     

“We Hardly Ever Talk about It”: Emotional Responsive Attunement in Couples after a Child's Death

Within Western cultural traditions, the idea that parents should talk about the death of their child with each other is deeply rooted. However, across bereaved parent couples there are wide variations in communication about their grief with each other. In this study, we explored the experiences of bereaved couples related to the process of talking and not talking. We used a thematic coding approach to analyze 20 interviews with 26 bereaved parents (11 interviewed as couples, four as individuals). Four main meanings emerged out of our analysis: not talking because of the inadequacy and pointlessness of words in grief, not talking as a way to regulate emotions in daily life, not talking as an expression of a personal, intimate process, and not talking because the partner has the same loss but a different grief process. In addition, we found that the process of talking and not talking can partly be understood as an emotional responsive process on an intrapersonal and interpersonal level. In this process partners search for a bearable distance from their own grief and their partner's, and attune with their relational context. A better understanding of this process is sought in a dialectical approach, emphasizing the value of both talking and not talking in a tense relationship with each other. Implications for clinical work are described.     

Dyadic Coping in Couple Therapy Process: An Exploratory Study

This study aimed at moving beyond previous research on couple therapy efficacy by examining moment‐by‐moment proximal couple and therapist interactions as well as final treatment outcomes and their reciprocal association. Seven hundred four episodes of dyadic coping within 56 early therapy sessions, taken from 28 married couples in treatment, were intensively analyzed and processed using a mixed‐methods software (T‐LAB). Results showed that negative dyadic coping was self‐perpetuating, and therapists tended to passively observe the negative couple interaction; on the contrary, positive dyadic coping appeared to require a therapist's intervention to be maintained, and successful interventions mainly included information gathering as well as interpreting. Couples who dropped out of treatment were not actively engaged from the outset of therapy, and they used more negative dyadic coping, whereas couples who successfully completed treatment showed more positive dyadic coping very early in therapy. Results highlight the role of therapist action and control as critical to establishing rapport and credibility in couple therapy and suggest that dyadic coping patterns early in therapy may contribute to variable treatment response.     

Developmental changes in the linguistic performance correlates of reading achievement

The present study evaluated the hypothesis that measures of linguistic skills differentially contribute to the variability in reading achievement at different ages. Linguistic skills that develop earlier and are more important for earlier phases of reading were predicted to contribute more to the variability of reading achievement at earlier ages (5–7) than at older ages (10–12). Conversely, linguistic skills that develop later and are more important for later phases of reading were predicted to contribute more to the variability in reading achievement at older ages (10–12) than at younger ages (5–7). To test these developmental hypotheses, measures of language skills with different developmental rates were administered to cross-sectional samples of disabled and nondisabled readers at three mean ages: 5.5, 8.5, and 11 years. Reading group differences were apparent at each age on measures assumed to develop earlier, thus failing to confirm the first prediction. However, these measures may not have been sensitive to linguistic skills important for beginning reading. Reading group differences on measures of later developing language skills were apparent only for older readers, thus confirming the second prediction. The latter age-dependent relationships provided additional evidence for developmental changes in the linguistic correlates of reading achievement.     

COVID-19 : quel rôle pour les comités d’éthique ?

Let us take advantage of this state of health crisis to promote within the committees a real ethics of the discussion on research practices.     

Semantic categorization and event-related potentials

The N400 component of the event-related brain potential (ERP) was examined by presenting subjects with a series of words belonging to the same category and a series of declarative sentences. Half of the word series ended with a semantically unrelated word, while half of the sentences ended with a semantically inappropriate word. In the first experiment, subjects were instructed to read the word series and sentences, while in the second experiment they were instructed to indicate whether the word series or sentences ended appropriately or not with a button-press response. Word series and sentences with semantically incongruous endings produced a robust negative component at 400 msec followed by a positive-going wave for both the reading and decision tasks. When the subjects were required to categorize the word series and sentences endings, the negative component was followed by a robust P3 in both conditions. Analysis of scalp amplitude distributions for each task taken in conjunction with previous findings suggests that the semantically induced N400 component is most likely a "generic" N2. The relationship between the N2, N400, and P3 is discussed.     

A physiologically motivated model for change detection in audition

Burbeck & Luce (Perception & Psychophysics, 1982, 32 (2), 117–133) argue that their simple reaction time data is best accounted for by the parallel operation of a change and a level detector. Here a specific example of such a compound model is tested. The primary focus is on the change detector which is modeled after a post inhibitory rebound (PIR) neuron. PIR neurons are plausible candidates for the “off” units found throughout the auditory system. The level detector is assumed to be a simple leaky integrator. Computer simulations of the compound model are compared to simple reaction time data. The results, although not without some deficiencies, support the model.     

Spouse involvement and a possible long-term follow-up trap in weight loss

The present study was conducted to determine if husband attendance at treatment sessions and participation in behavioral contracting would produce greater weight losses than two other levels of spouse involvement. The three treatment groups investigated did not significantly differ at post-treatment but by 1-yr follow-up female Ss who attended treatment sessions alone and contracted with the counselor (HA) lost significantly more weight than women who attended sessions with their husbands and also contracted with the counselor (HNC). The Ss who attended sessions with their husbands and contracted with them (HC) did not significantly differ from Ss in the other two conditions. The total amount lost by Ss in the HA, HNC and HC conditions by 1-yr follow-up was 16.4, 4.4 and 15.5 lb, respectively. The study was also conducted to collect preliminary data about procedures Ss used during long-term follow-up to ascertain if weight losses during follow-up could be attributed to the behavioral weight-loss techniques learned during the treatment program. At all follow-up periods, many Ss reported using behavioral weight-loss techniques but 4 of the 36 Ss (11.1%) at 1-yr follow-up, 15 of the 23 (65.2%) and 24 of the 25 (96.0%) who responded, respectively, at 3- and 4-yr follow-up had used other weight-loss programs or methods. A possible confound for follow-up data was identified and suggestions for future research were presented.     

Incidental learning in preschool children as a function of level of cognitive analysis

Preschool children's recall and clustering of organized lists of pictures were examined under deliberate instructions to remember or in incidental learning situations. The incidental tasks either required comprehension (categorization, or a rating of pleasantness-unpleasantness) or were formal orienting tasks involving processing in terms of physical features.Explicit instruction to remember and formal incidental instructions did not differ, and both lead to poorer performance than the comprehension activities. Categorization, whether accompanied by explicit instructions to recall, or occurring in the context of a meaningful activity, was no more efficient than categorization in and for itself. With children as with adults, it is the activity of the children which determines depth of processing and subsequent retention, not the intent to remember per se.