Development of a Measure of Coping with Multiple Sclerosis Caregiving

Development of a self-report measure of coping specific to multiple sclerosis (MS) caregiving is needed to advance our understanding of the role of coping in adaptation to caring for a person with MS and to contribute to a lack of empirical data on MS caregiving. A total of 213 MS caregivers and their care recipients completed a Coping with MS Caregiving Inventory (CMSCI) and measures of adjustment (psychological distress), appraisal and illness. A subsample ( n = 64) also completed the Ways of Coping Checklist (WCC) and additional adjustment measures (depression, caregiving impact, dyadic adjustment, and relationship conflict and reciprocity). Factor analyses revealed 5 factors: Supportive Engagement, Criticism and Coercion, Practical Assistance, Avoidance, and Positive Reframing. Subscales had internal reliabilities comparable to similar scales and were empirically distinct. Preliminary construct validation data are consistent with recent MS caregiving research that links passive avoidant emotion-focused coping with poorer adjustment, and relationship-focused coping caregiving research that links greater reliance on positive relationship-focused coping and less reliance on criticism with better adjustment. Results extend this research by revealing new relations between coping and adaptation to MS caregiving. Convergent validation data suggest that although the inventory differs from the WCC, it does share certain conceptual similarities with this scale.     

Eye movements across viewpoint changes in multiple object tracking

Observers can visually track multiple objects that move independently even if the scene containing the moving objects is rotated in a smooth way. Abrupt scene rotations yield tracking more difficult but not impossible. For nonrotated, stable dynamic displays, the strategy of looking at the targets' centroid has been shown to be of importance for visual tracking. But which factors determine successful visual tracking in a nonstable dynamic display? We report two eye tracking experiments that present evidence for centroid looking. Across abrupt viewpoint changes, gaze on the centroid is more stable than gaze on targets indicating a process of realigning targets as a group. Further, we show that the relative importance of centroid looking increases with object speed.     

Psychometric properties of a revised Spanish 20-item Toronto Alexithymia Scale adaptation in multiple sclerosis patients

There have been a small number of investigations of alexithymia in multiple sclerosis (MS) using the 20-item Toronto Alexithymia Scale (TAS-20). However, the TAS-20 factor structure has not yet been evaluated in a MS patient sample, and earlier Spanish translations of this instrument require some improvement. We aimed to evaluate the factorial validity and reliability of an improved Spanish translation of the TAS-20 (the TAS-20-S). The TAS-20-S was completed by 221 MS patients. Confirmatory factor analysis was used to compare the fit of six different factor models. Internal consistency and retest reliability coefficients were also computed. The correlated three-factor model and the higher-order factor model made up of Difficulty Identifying Feelings, Difficulty Describing Feelings, and Externally Oriented Thinking achieved the best fit. Alpha coefficients ranged between .87 and .67; mean inter-item correlations ranged between .48 and .20; and retest correlations after 6 months ranged between .61 and .52. A high degree of alexithymia was present in 18.1% of the sample. Reliability and the traditional three-factor structure were demonstrated for the TAS-20-S, which can now be recommended for assessing an aspect of emotional processing in MS patients.     

Spatial distinctiveness effect in categorisation

The aim of the present study was to show that the probability of an item being retrieved is proportional to its spatial distinctiveness, and that this distinctiveness effect can be obtained in an implicit memory task. The participants were presented with two phases in which they had to categorise pictures of objects as either “kitchen utensils” or “do-it-yourself tools”. In our encoding phase, the pictures were successively presented in different positions on the screen. The positions were arranged in one of two different configurations: a “distinctive condition” in which the pictures were placed in two circles, one central and one peripheral, such that the distance between the pictures was greater when they were in a peripheral position than in a central position, and a “nondistinctive” condition, in which the distance between the pictures was constant irrespective of their central or peripheral position. In the test phase, the same pictures were presented for categorisation, mixed with new pictures at the centre of the screen. The results clearly confirmed our expectations.     

Transforming roles to support student development of academic literacies: a reflection on one team’s experience

Social work is a discipline that attracts students from diverse academic backgrounds. Many are first in family to attend university, and come to university through alternative pathways such as vocational education. As a result, there are higher levels of attrition compared to other disciplines, especially in the first year. To address this, and in keeping with a commitment to provide accessible education, one school of social work undertook a project to embed academic literacies into the curriculum. This paper used Gibb’s reflective process to explore how this was experienced by team members. Data were collected via staff focus groups at two different points in time across the project and compared. The reflection unpacked a number of tensions experienced by team members, including concerns about potential loss of resources as a result of academics adopting new roles, and concerns about implementing what was seen as Westernised academic skills which may not fit with students’ ways of thinking and creating knowledge. Overfull curricula and constant change also appeared to be of concern. The reflection highlighted that to achieve effective and sustainable change, action was required at multiple levels.     

多目标追踪在各类人群评价与训练中的应用

多目标追踪范式主要用来探讨动态情景下对多个目标的视觉注意和记忆加工过程, 早期研究侧重于追踪过程中的影响因素及加工机制。近年来, 越来越多的研究应用多目标追踪范式对各类人群进行评价与训练, 包括儿童、老年人、神经发育障碍患者、驾驶员、运动员、电子游戏玩家以及一些其他职业群体。总体来看, 多目标追踪表现越好, 在复杂快速的动态情境中的专业表现越好; 反之, 多目标追踪表现差, 标志着认知功能可能发育不成熟或出现衰退。并且, 多目标追踪还可作为认知训练的手段, 改善老年人和神经发育障碍患者的认知功能, 提高各职业人群的专业表现。未来, 多目标追踪作为评价和训练的方法还有很大的发展空间, 包括加强特殊职业人群的模拟训练, 扩展目标人群, 结合立体视觉和真实场景, 结合身体活动, 探索多人合作的多目标追踪, 拓展用于进行情绪和社会功能的评价与训练等。     

负性情绪刺激对大学生多目标追踪能力的影响

探讨了负性情绪对大学生多目标追踪能力的影响以及其影响机制。实验要求被试在观看国际情绪图库中的负性或中性图片后,完成多目标追踪和点探测任务,同时设置基线条件作为对照。采用状态-特质焦虑量表和贝克抑郁自评量表考察不同情绪图片条件下被试的诱发情绪状态。研究结果发现：（1）被试观看负性情绪图片后状态焦虑程度和抑郁量表评分显著提高,观看情绪图片有效诱发了被试的负性情绪;（2）基线条件下的被试追踪正确率显著低于中性条件,基线条件和负性图片条件下的追踪正确率无差异,说明训练可以提高被试的多目标追踪能力,但负性情绪抑制了被试在基线追踪任务中的训练效果;（3）负性图片条件下的点探测觉察率显著低于中性图片条件,说明负性情绪影响了被试的注意资源分配。研究结果表明：负性情绪可能干扰了被试目标导向的注意系统,使得个体更易受刺激驱动的注意系统影响,并且在追踪过程中影响被试中央执行系统的抑制和转移功能。     

影响儿童至老年人“位置法”记忆训练效果的因素探析

１１８名儿童、少年、青年、中年和老年被试参加＂位置法＂记忆训练,在训练前后对被试进行了一些认知功能的测查,以探讨被试的年龄及认知能力诸因素对记忆训练效果的影响及其预测性。结果表明：①训练前字词和图形记忆成绩、＂数字符号＂测验成绩与训练后记忆成绩相关极其显著,＂词汇＂测验成绩和想象力与训练后记忆成绩的相关也达到显著性水平;②年龄与训练后记忆效果的关系是非线性的;③除＂词汇＂成绩外,各项认知成绩均可预测训练后字词记忆成绩,训练后的图形记忆迁移效果可由＂数字符号＂测验成绩预测。     

Giving meaning to illness: An investigation of self-defining memories in patients with relapsing-remitting multiple sclerosis patients

Multiple sclerosis (MS) patients are often unable to adequately fulfill their established roles due to physical disabilities and cognitive changes, making this chronic illness particularly threatening to personal identity. Twenty-five MS patients and 25 healthy controls were asked to recall five self-defining memories (SDM). Overall characteristics of SDM did not differ between patients and controls; MS patients displayed preserved capacity to draw meaning upon past events. Moreover, almost two-thirds of MS patients mentioned at least one illness related SDM and about 25% of patients’ SDM referred to MS. These memories were experienced as more negative and associated with more tension than other SDM but led toward more positive emotion and less negative emotion over time; they were also more central and more integrated to the personal identity. We concluded that self-challenging events due to MS may trigger both cognitive and emotional processes enabling the integration of illness in patients’ self-representations.     

Plenary address – A year of living ‘dangerously’: Reflections on risk,trust, trauma and change

This paper examines the role of emotions in the construction and performance of mis/trustful relations; with medical professionals, their technologies, and ultimately, with oneself. Using personal experience of two common conditions as illustrative examples, it questions what it means and feels like to trust, and how, where and by whom such feelings can be enhanced or undermined. It explores some of the ways in which discourses of risk are mobilized and embodied to create a crisis of trust, asking; what kind of selves and emotionalities surface, and what are the health outcomes, when bodies are viewed as ‘at risk’? Visualizing technologies that probe the interior for data play an increasingly prominent role in healthcare, and are typically considered more trustworthy sources of knowledge about the body than anything that might be produced by the tech-free sensing self. However, not all (even ‘physical’) trauma can be seen or quantified, and not all information is equal. The paper reflects on the emotional dissonance that ensues when one's own perceptions and representations are at odds with those of medical experts for whom one is supposed to perform trust. It examines the feeling rules that are broken when we fail to appreciate our treatment at their hands, and asks: What happens when we resist expert author-ity by telling different stories about our embodied selves, ones that make space for emotions in contexts where they are rarely seen to count, and where only what can be measured matters?