Whose Gene Is It? A Case Discussion About Familial Conflict over Genetic Testing for Breast Cancer

A multidisciplinary group of genetic and other professionals discuss a complex case of familial conflict over access to genetic information. One twin wishes to know the results of her deceased mother's tests for BRCA1 mutations; a second twin objects to researchers making this information available. As the case discussion unfolds, the apparent facts of this case are called into question and the lines of ethical certainty become less clear.     

Knowledge of Breast Cancer Genetics Among Breast Cancer Patients and First-Degree Relatives of Affected Individuals

The cloning of BRCA1, a susceptibility gene for inherited breast cancer, has made genetic screening possible for individuals and families whose medical histories are suggestive of an inherited predisposition to breast cancer. To date, few systematic attempts have been made to determine the level of knowledge about breast cancer genetics among women who are likely to seek BRCA1 screening when it becomes widely available. The present study attempted to assess the general knowledge about BRCA1 mutations in two groups: (1) first-degree relatives (FDRs) of breast cancer patients; and (2) women with a previous diagnosis of breast cancer. A self-administered, thirty-item questionnaire was developed through a pilot study. Ten of the items were objective, factual questions about breast cancer genetics. Responses to these questions were used to generate an overall knowledge score for each respondent. The study population was moderately knowledgeable about breast cancer genetics, with an average score of 5.35 out of 10. Counselors should not underestimate the importance of evaluating each counselee's existing knowledge about breast cancer, which can affect the provision and reception of genetic information. In particular, specific areas of knowledge that may be confusing or misunderstood were identified and these topics are discussed in detail.     

The Conditions of Philosophy in Totalitarian and Post-Totalitarian Poland

This compound paper presents the views of two Polish philosophers on the strong international pressures influencing the development of Polish philosophy in recent times. The first part, by Leszek Koczanowicz, treats the philosophical situation and problems of totalitarian Poland under the influence of Soviet Marxism, while the second part, by Adam Chmielewski, focuses on the main trends and difficulties of post-totalitarian Poland, dominated by Western influence.     

Passport to Duke

Editor’s Introduction The following text was prepared by Pierre Bourdieu for delivery at a conference on his work held at Duke University, April 21–23, 1995. Entitled “Pierre Bourdieu: Fieldwork in Culture,” the conference was sponsored by the Duke Graduate Program in Literature and included such well-known literary scholars as Barbara Herrnstein Smith, Jonathan Culler, and Fredric Jameson. Bourdieu, of course, was the invited guest of honor, but was uncertain as to whether he should make the effort of attending, particularly since he was recovering from a short period of poor health. As I too had been invited (and seemed more familiar with the American scene), Bourdieu discussed the question with me in Paris. He was rather concerned about wrongheaded, trendy applications of his theories by American literary scholars, who often misunderstand his work because they simply do not know the intellectual landscape to which it relates. Reading such conference paper titles as “Cross-Dressing for Success: The Scramble for Symbolic Power in Tabitha Sweeney’s Female Quixotism,” Bourdieu confessed his fear of being taken as simply the French intellectual flavor of the month, one whose theory is used simply as grist for the American academy’s industrious mills of literary interpretation. He ultimately decided to send the following text to be read at the conference in his absence. It treats, with polite frankness, his worries about being misinterpreted through importation into the American theoretical field with its peculiar conception of French philosophy; Bourdieu’s paper situates these particular worries within a more general account of “allodoxic”distortions caused by the international travel of theory; but it also tries to prevent further misunderstanding by offering a brief contextualization of his theory and a brief summary of his method of analysis through fields. The translation of Bourdieu’s text was prepared by Loïc Wacquant, and is presented here with only minor adjustments.     

DIE MARXISMUS – DEBATTE IM “SILBERNEN ZEITALTER”

Im Anfang des 20.Jahrhunderts unterzog eine Reihe von jungen, später berühmt gewordenen Philosophen den Marxismus einer tiefen Kritik. Ihnen ist es gelungen, wichtige Defekte der revolutionären Doktrinen aufzudecken und ihre verhängnivsollen Konsequenzen vorwegzunehmen. Diese Kritik ist auch für die gegenwärtige geistig-politische Situation aktuell.     

Marcel's “availability” in existential psychotherapy with couples and families

Gabriel Marcel was a French, Catholic, existential philosopher who first presented the concept of human availability as a central way of strengthening the self and facilitating the experience of human freedom. In this article Marcel's ideas about availability are described, reviewed, and examined for their implications for the practice of existential psychotherapy with couples and families.     

Teamwork makes the dream work: Testing for shared perceptions on psycho-behavioural skills between athletes,coaches and parents

Psycho-behavioural skills play a key role in optimising progression through talent development, and this study investigated to what extent athlete’s self-perceptions align with those of their coaches and parents. Firstly, we examined if levels of alignment between these three raters differ across age of the athlete. To this end, 122 athletes between 9 and 18 years old (12.17 ± 2.41 years old; 47 gymnasts, 13 cyclists and 62 badminton players) completed a psycho-behavioural questionnaire. The ANOVA’s indicated low levels of correspondence between the ratings of the athlete, the coach and the parents during childhood, while better levels of shared perceptions were found in adolescence. Secondly, we investigated to what extent coaches and parents believed their own perception of the athlete’s and the perception of the athlete’s psycho-behavioural skills were accurate. Parents appeared to be more confident in accurately perceiving the psycho-behavioural skills of the athlete than coaches. Parents and coaches also believed that older athletes would be more honest on their psycho-behavioural shortcomings than younger athletes. Altogether, these findings highlight that athletes and other stakeholders in the talent development environment should strive for better alignment in perceptions on psycho-behavioural skills during the talent development pathway. With better integrated perceptions, a more functional and efficient talent development system for the athlete targeting the psycho-behavioural skills can be created.     

The effects of situational performance constraints on intrinsic motivation and satisfaction: The role of perceived competence and self-determination

Situational performance constraints, task interest, and pay contingencies were manipulated in a laboratory study in order to investigate the cognitive mechanisms associated with the previously observed detrimental effects of constraints on affective task reactions. It was hypothesized that feelings of task competence and self-determination would account for both the direct and the interactive effects of constraints on motivation and satisfaction. The results of the study indicated that despite the fact that participants' performance was being constrained and they were aware of these constraints, the mere presence of the constraints alone failed to result in lower levels of satisfaction or motivation on a proofreading task. Post hoc analyses suggested that the constraints, in fact, led to negative affective task reactions when they also reduced participants' feelings of competence and self-determination. Interestingly, participants' generalized locus of control was associated with such effects. Internals tended to maintain stronger feelings of competence and self-determination than externals in the presence of constraints, thereby also maintaining greater motivation and satisfaction.