Visioning Family-Centered Care in Genetics: What Parents and Providers Have to Say

The purpose of this multisite exploratory research study involving focus groups of consumers and service providers was to generate stakeholder input for a statewide strategic plan for genetic services in the southwestern region of the United States. This article describes the qualitative methods by which the data were collected and summarizes major themes in participants’ perceptions about genetic services. It also describes processes related to obtaining genetic services and characteristics of an ideal service delivery system for children affected by genetic disorders and the families that care for them. Implications for practice and policy are also reviewed.     

Women’s Attitudes Toward Testing for Fragile X Carrier Status: A Qualitative Analysis

Fragile X syndrome (FXS) is primarily due to a repeat expansion mutation found in the FMR1 X-linked gene. We have conducted a qualitative analysis of responses from women concerning their attitudes toward testing for carrier status of the fragile X mutation among reproductive-age women. We obtained responses from focus groups including women with and without FXS in their families. We found the following themes: (1) mothers of children with FXS have difficulty formulating their opinions on population screening because of their unique experiences surrounding their own carrier diagnosis and their relationship with their children with FXS, (2) the motivation for carrier testing and need for information differ by family history of FXS and parental status, and (3) the timing of carrier testing with respect to a woman’s life stage dictates whether carrier information will be viewed as beneficial or detrimental. There was evidence that non-carrier women from the general population would be wholly unprepared for positive carrier results. These findings have significant implications for genetic counseling as well as for population screening.     

Future time perspective drives younger and older adults to continue investing in failing activities

Inspired by socioemotional selectivity theory, we investigated age differences in further investment in failing situations by considering goal type and future time perspective. In Experiment 1, 32 younger and 30 older adults reported their likelihood of continued investing following an unsuccessful investment. Older adults were more willing to invest with emotional goals as opposed to knowledge and unspecified goals, while younger adults showed a greater willingness to invest with emotional and knowledge goals rather than unspecified goals. In Experiment 2, another sample of 32 younger and 34 older adults completed the same decision tasks as those in Experiment 1. After future time perspective restriction, the younger adults made decisions resembling Experiment 1's older adults, while after future time perspective expansion, the older adults behaved like Experiment 1's younger adults. These results indicate that future time perspective modification could reverse participants' goal prioritisation, manifesting in differential willingness to pursue further investment in decision scenarios with different goals. Our results represent important steps towards understanding the mechanism of older and younger adults' further investment in failing situations and illustrate that forging connections between the lifespan theory of motivation and further investment decision is critical for understanding adults' decision behaviours.     

The Effect of Researchers' Focus on Interpretation of Diversity Data

Abstract

The tendency for intercultural researchers to focus primarily on cultural differences instead of both differences and similarities may reflect the emphasis of current statistical methodology toward cultural distance instead of cultural overlap. The authors proposed the cultural similarity index as a way of assessing the extent of communalities between 2 groups. The authors (a) analyzed research (T. Cox, S. Lobel, & P. L. McLeod, 1991; Y. F. Niemann & J. Dovidio, 1998) that placed a primary emphasis on differences, (b) presented alternative insights gained from a focus on similarities, and (c) explored the implications of a research focus on both cultural differences and similarities.     

Asymmetric Perception of Gains versus Non‐losses and Losses versus Non‐gains: The Causal Role of Regulatory Focus

Recent studies show that, while losses loom larger than equivalent non‐gains, gains loom larger than equivalent non‐losses. This finding has been interpreted within the framework of regulatory focus theory. In this study, we highlight the importance of considering the motivational focus independently of the framing and the valence of outcome, thus exploring the causal effect of regulatory focus on the asymmetric perception of gains versus non‐losses and losses versus non‐gains. In two studies, we examine the perceived effects of either actual or hypothetical changes in monetary wealth, while orthogonally manipulating framing, valence, and regulatory focus. We find a significant interaction between the three factors. The gain versus non‐loss asymmetry in perceived satisfaction is stronger in promotion focus, whereas the loss versus non‐gain asymmetry in perceived dissatisfaction is stronger in prevention focus. The results suggest that the effects of incentives framed in terms of (non)gains and (non)losses depend on their congruence with the individual's motivational state. Copyright © 2013 John Wiley & Sons, Ltd.     

Eye movements during mental time travel follow a diagonal line

Recent research showed that past events are associated with the back and left side, whereas future events are associated with the front and right side of space. These spatial–temporal associations have an impact on our sensorimotor system: thinking about one’s past and future leads to subtle body sways in the sagittal dimension of space (Miles, Nind, & Macrae, 2010). In this study we investigated whether mental time travel leads to sensorimotor correlates in the horizontal dimension of space. Participants were asked to mentally displace themselves into the past or future while measuring their spontaneous eye movements on a blank screen. Eye gaze was directed more rightward and upward when thinking about the future than when thinking about the past. Our results provide further insight into the spatial nature of temporal thoughts, and show that not only body, but also eye movements follow a (diagonal) “time line” during mental time travel.     

论元结构的焦点和重音关系对话语理解的影响

本研究采用韵律合适度判断和理解任务,通过两个实验探讨论元结构的焦点和重音之间的关系对话语理解的影响。实验通过操纵答句中的论元是否出现在问句中,变化问句的信息状态;通过操纵答句不同句子成份重读,变化答句的重读位置。实验结果发现:新论元负载焦点必须重读;重读论元将焦点投射到句子的高一级单元上,但动词必须重读;旧论元不负载焦点不必重读,但负载焦点的动词必须重读。     

Freud

The author explores the evidence-base and selection criteria for a short-term supportive dynamic approach for patients whose psychological mindedness and quality of object relationships is low. Illustrating this approach with a case example he outlines the central features of Supportive Dynamic Therapy. He describes a psychodynamic conceptual and developmental framework that can be used to guide the therapist's interventions and responses, and modulate the patient's anxiety. A dynamic focus presented in the form of a central issue is shown to have a significant function both in containing the patient's anxiety, and in giving shape to the therapist's efforts to support the patient's ego-strengths and adaptive abilities. The therapeutic work can be seen to result in an alteration in the trajectory or reiterating pattern of the patient's life.     

The motivational benefits of specific versus general optimism

This study addresses the question whether a specific, work-related form of optimistic thinking has motivational consequences in terms of work engagement above and beyond general optimism over time. A specific form of optimistic thinking is focus on opportunities. Focus on opportunities is a future-oriented belief that describes how many plans, goals, and possibilities people expect to have in their future at work. Based on a cross-lagged panel design with a two-year time lag and data from a sample of 124 German business owners, results of structural equation modeling showed that focus on opportunities positively predicted changes in work engagement over time, even when controlling for general optimism. This finding supports propositions of social cognition and self-regulation theories that emphasize the importance of a specific form of optimism that has motivating potential by referring to future work goals and opportunities.     

Don't Predict the Future–Direct it! Comments on the intellectual history,the Logical and Applicative Visibility,and the Underlying Assumptions of Directed Evolution (DE)

The best way to predict the future is to invent it.

—Alan Kay ¹ 1. Alan Kay is one of the inventors of the Smalltalk programming language and one of the originators of the idea of Object Oriented Programming. He is the conceiver of the laptop computer and the architect of the modern windowing GUI.

It is obvious that there are patterns of cultural change—evolution in the neutral sense—and any theory of cultural change worth more than a moment's consideration will have to be Darwinian in the minimal sense of being consistent with the theory of evolution by natural selection of Homo sapiens.

—Daniel Dennett ² 2. Daniel C. Dennett is a Professor of Philosophy and Director of the Center for Cognitive Studies at Tufts University. He is the author of several books, including Consciousness Explained (1991), Darwin's Dangerous Idea (1995), and Kinds of Minds (1996). This quote is taken from his forward to Darwinizing Culture (Aunger 2000 Aunger, R. 2000. Darwinizing culture: The status of memetics as a science, Oxford and New York: Oxford University Press.  [Google Scholar], ix).

The future is here. It's just not widely distributed yet.

—William Gibson ³ 3. In the early 1980s William Gibson wrote Neuromancer, coining the term “cyberspace” to describe computer-generated virtual realities long before we saw the similarities with today's Internet.

It is the magician's wand, by means of which he may summon into life whatever form and mould he pleases.

—Charles Darwin commenting on the power of artificial selection ⁴ 4. Here Darwin is explaining the power of artificial selection and its potential for the directed evolution of biological systems (domestication and commercially oriented breeding) in his Origin of Species (1859, 68).