The Cultural Education of Academic Evaluators: Lessons from a University-Hmong Community Partnership

This article explores some of the lessons a university-based evaluation team learned while attempting to hire, retain, and work with staff members from a local Hmong community. These staff members were hired to assist a federally-funded community collaborative with implementing and evaluating a family strengthening program for Hmong families with adolescents. Over the course of two years, a succession of individuals were hired and resigned from a key staff position. These resignations occurred at critical points in the project, undermining a critical component of the program's evaluation. Through interviews, observations, self-reflection, and feedback from colleagues and reviewers, a better understanding of the reasons for these difficulties began to emerge. The challenges examined in this article help to illustrate some of the complexities faced by academics when conducting a community-based project with an underserved racial ethnic population. The article concludes by discussing some of the lessons learned and what they might suggest for others doing similar types of work.     

What Predicts the Use of Genetic Counseling Services After the Birth of a Child with Down Syndrome?

In the state of Victoria, Australia, a government funded genetic counseling service exists to meet the needs of families. An audit showed that many families do not use this service after the birth of a child with a genetic problem. To investigate this we surveyed families of children born with Down syndrome over 2 years in Victoria. Questionnaires were completed by 74 mothers, of whom only 18 had received genetic counseling between the birth and the time of the study (mean 3.5 years). Of those not receiving genetic counseling, 71% said they were not offered or had not heard of it. Mothers who had genetic counseling were younger than those who had not, and were more likely to have attended University. Those who had genetic counseling indicated less satisfaction with care at the diagnosis and were more likely to perceive their child as unwell at birth than those who were aware of genetic counseling but did not have it. Of those who did not have genetic counseling, over half were unclear about what it is, although 74% agreed with the statement genetic counseling is most useful when planning to have another child. Of those who had heard of genetic counseling, 73% said they were not sure how it could help. Many families with children with Down syndrome are not aware of the existence or functions of genetic counseling. With greater awareness, some may still choose not to have genetic counseling, but others enunciated needs that could be met by this service if it were offered to them.     

How parents introduce new words to young children: The influence of development and developmental disorders

This study documents how parents weave new words into on-going interactions with children who are just beginning to speak. Dyads with typically developing toddlers and with young children with autism spectrum disorder and Down syndrome (n = 56, 23, and 29) were observed using a Communication Play Protocol during which parents could use novel words to refer to novel objects. Parents readily introduced both labels and sound words even when their child did not respond expressively or produce the words. Results highlight both how parents act in ways that may facilitate their child's appreciation of the relation between a new word and its referent and how they subtly adjust their actions to suit their child's level of word learning and specific learning challenges.     

Anomalous experiences and schizotypy: which comes first? The Hermit Crab syndrome hypothesis

This study confirms findings of previous research as they state that some triggering events or anomalous experiences can give rise to a disruption of cognitive processes and emotional changes in a predisposed person. Furthermore, our research states that the cognitive process and change of world view (paradigm shift (PS)) accompanying some paranormal experiences (PEs) could facilitate the development of a schizotypal personality structure. For the purposes of this study, 675 young people aged between 13 and 25 years old (M?=?16.8, SD?=?1.9) completed the Schizotypal Personality Questionnaire, the Revised and Modified Paranormal Belief Scales, the measurement of eight kinds of PE and a self-reported measurement of change of world view. The results confirm the mediating role of PS between paranormal practices and schizotypy as the cognitive process contributing to symptom formation as well as to symptom maintenance. The said results also confirm the existence of cognitive–emotional stages, also called Hermit Crab syndrome, in the process of the “paranormalisation” of reality.     

Taxonomy of moderators that govern explicit memory in individuals with intellectual disability: Integrative research review

This integrative research review aims to discover moderators that influence explicit memory performance of individuals with intellectual disability (ID). We reviewed 47 explicit memory studies (since 1990) that were conducted in populations with ID. We suggest a taxonomy of moderators related to the participants, encoding and retrieval stages, where only an interrelation between the three dictates memory performance. We found that individuals with nonspecific ID can achieve the same level of recognition as individuals with typical development (TD) with the same chronological age when all encoding moderators are favorable. Recognition tests facilitate recollection more than free recall in all etiologies. The performance of individuals with ID was poorer than that of individuals with TD in all auditory memory tasks. Spatial location memory varied with task demands, practice, intention, age and intelligence. We conclude with suggestions for further research and educational implications.     

An Occupational Therapy Support Service for University Students With Asperger's Syndrome (AS)

Students with Asperger's Syndrome (AS) face challenges, within third-level education, related to the person, environment, and occupation. This study describes an occupational therapy (OT) service that aims to enhance the interplay between the person (i.e., the student) and his/her occupation within a given context (i.e., college environment). A chart review and Student Satisfaction Survey was used to identify the demographics, concerns, and goals of the students using it. It was found that goals and concerns shift according to students' stage in college and recommends that services employ a student-centered, flexible approach responsive to the particular concerns of these students.     

Parents of children with Down Syndrome: Do resilience and social support matter to their experience of carer stress?

The study investigated personal resilience influences on the relationship between social support and parenting-stress among parents of children with Down syndrome (DS) in a Nigerian sample. One hundred and ninety three parent-carers of children with DS participated in the study (mothers?=?59%; mean age?=?46.47, age range?=?21 to 67, SD?=?10.42). The parent-carers responded to the measures of parenting-stress, perceived social support, and resilience. The result of the moderated multiple linear regression showed that parents with high social support and resilience have lower level of parenting-stress. Higher personal resilience significantly moderated the relationship between social support and parenting-stress so that parent-carers with low level of social support and higher personal resilience had lower level of parenting-stress. Resilience and social support oriented therapy appears to have efficacy for helping parent-carers of children with DS to manage their stress arising from raising such children.     

Equivalence‐based instruction to establish a textual activity schedule in an adult with Down syndrome

Transfer of control from picture to text‐based activity schedules has been shown to occur following conditional discrimination training in children with autism. This study extended this research by evaluating if conditional discrimination training could promote transfer of control in an adult with Down syndrome. The participant was taught to select photographs and pictures of kitchen tools when provided with dictated names. Then, he completed a text‐based activity schedule, matched printed words to photographs, and orally named printed words without direct training.     

HIV: How Science Shaped the Ethics

AIDS is a debilitating and fatal disease that was first identified as an infectious disease syndrome in the 1970s. The discovery of a nearly universally fatal infectious and rapidly spreading disease in the post–antibiotics era created apprehension in the medical community and alarm in the general population. Questions about how patients should be handled in medical and nonmedical settings resulted in the ostracizing of many AIDS patients and inappropriate patient management. Scientific investigation into modes of disease transmission and control helped to shape the management of AIDS patient care in such a way that ethical and protective practices could be developed. In this article I discuss some of the ethical questions that were addressed by appropriate scientific inquiry.