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John M. Quillin Oluwabunmi Emidio Brittany Ma Lauryn Bailey Thomas J. Smith In Guk Kang Brandon J. Yu Oluwafemi Patrick Owodunni Mohammed Abusamaan Rab Razzak Joann N. Bodurtha 《Journal of genetic counseling》2018,27(4):834-843
Even at the end of life, testing cancer patients for inherited susceptibility may provide life-saving information to their relatives. Prior research suggests palliative care inpatients have suboptimal understanding of genetic importance, and testing may be underutilized in this clinical setting. These conclusions are based on limited research. This study aimed to estimate genetic testing prevalence among high-risk palliative care patients in a National Cancer Institute-designated comprehensive cancer center. We also aimed to understand these patients’ understanding of, and attitudes toward, hereditary cancer testing and DNA banking. Palliative care in-patients with cancer completed structured interviews, and their medical records were reviewed. Among patients at high risk for hereditary cancer, we assessed history of genetic testing/DNA banking; and related knowledge and attitudes. Among 24 high-risk patients, 14 (58.3%) said they/their relatives had genetic testing or they had been referred for a genetics consultation. Of the remaining 10 patients, seven (70%) said they would “probably” or “definitely” get tested. Patients who had not had testing were least concerned about the impact of future testing on their family relationships; two (20%) said they were “extremely concerned” about privacy related to genetic testing. Of patients without prior testing, five (50%) said they had heard or read “a fair amount” about genetic testing. No high-risk patients had banked DNA. Overall, 23 (95.8%) said they had heard or read “almost nothing” or “relatively little” about DNA banking. Written materials and clinician discussion were most preferred ways to learn about genetic testing and DNA banking. Overall, this study demonstrates underutilization of genetics services at the end of life continues to be problematic, despite high patient interest. 相似文献
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Psychometrika - Estimation of the large Q-matrix in cognitive diagnosis models (CDMs) with many items and latent attributes from observational data has been a huge challenge due to its high... 相似文献
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Studia Logica - A cut-free Gentzen sequent calculus for Ewald’s intuitionistic tense logic $$\mathsf {IK}_t$$ is established. By the proof-theoretic method, we prove that, for every set of... 相似文献
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De Luca Cinzia R. Mulraney Melissa Anderson Vicki Downie Peter Ma Winn McCarthy Maria C. 《Journal of clinical psychology in medical settings》2022,29(2):421-431
Journal of Clinical Psychology in Medical Settings - This study describes the behavioral and emotional adjustment of 77 children and adolescents 3 months post-treatment for acute lymphoblastic... 相似文献
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Zawadzka Anna Maria Kasser Tim Niesiobędzka Małgorzata Lewandowska-Walter Aleksandra Górnik-Durose Małgorzata 《Journal of child and family studies》2022,31(5):1427-1440
Journal of Child and Family Studies - The present study examined how adolescents’ materialism relates to interpersonal materialism role models (i.e., mothers’, fathers’,... 相似文献
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为探讨童年期不良经历对中学生良心的影响及作用机制,基于生物生态学理论和自我控制资源模型,采用整群取样法抽取湖南省7所城市7所中学初一到高三学生共3648名,使用童年期不良经历问卷、青少年良心问卷、特质自我控制量表和自我调节疲劳量表进行问卷调查。结果发现:(1)童年期不良经历负向预测中学生良心;(2)特质自我控制和自我损耗在童年期不良经历和中学生良心间起部分中介作用;(3)特质自我控制和自我损耗在童年期不良经历和中学生良心间起链式中介作用。研究结果表明,童年期不良经历不仅是影响中学生良心的重要外部因素,而且还会通过影响特质自我控制和经由自我损耗对中学生良心产生间接作用;减少和避免童年期不良经历对中学生心理的冲击,提升其特质自我控制水平,降低其自我损耗,是预防中学生良心失守和提升良心水平的重要途径。 相似文献
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This research note investigates the association between mobile payment adoption and happiness. We employ the conditional mixed process model to address the selection bias and estimate the open-access 2017 Chinese General Social Survey data. Our findings reveal that mobile payment adoption significantly improves rural residents’ happiness but does not significantly influence urban residents’ happiness. Exploring gendered differences finds that regardless of urban or rural residence, females are happier than males when adopting mobile payment. Our findings suggest that promoting mobile payment adoption could bring favourable well-being returns.
相似文献760.