Cancer survivors’ and partners’ key concerns and quality of life

Objective: Understanding the concerns of cancer survivors is essential for effective interventions. This study was designed to identify the primary concerns of dyads coping with cancer, how concerns differed by role and sex, and whether concerns expressed during counselling were associated with survivors’ psychosocial well-being and adjustment.

Design: Forty-three dyads with breast and prostate cancer (N = 86 participants) were enrolled in an interpersonal telephone counselling intervention. Audio recordings of 228 counselling sessions were transcribed and content analysed qualitatively to identify major themes and key concerns. A total of three 30-min sessions were coded for each study participant. Quantitative data and statistical analyses were used to predict changes in survivors’ quality of life.

Main Outcome Measures: Participants completed psychosocial well-being measures (depression, positive/negative affect, and relationship satisfaction), pre- and post-counselling.

Results: Survivors’ concerns focused on cancer- and treatment-related issues, whereas partners’ concerns centred on the well-being of their spouse/partner with cancer, and what they were doing to help their loved one cope with his/her illness. Key concerns for all consisted of relationship maintenance and communication issues. Further, discussion of these concerns was predictive of significant improvements in adjustment post-counselling for women with breast cancer.

Conclusion: Discussion of interpersonal concerns may play a more important role in the well-being of women, than men, coping with cancer.     

Citizenship’s tangled web: Associations,gaps and tensions in formulations of European youth active citizenship across disciplines

Abstract

How does academic literature across various disciplines conceptualize and empirically address active citizenship? What are the potential benefits and dangers of dominant epistemological and ideological perspectives on ‘good citizenship’? Our paper engages with these questions by drawing on literature across 12 disciplines. We used textual analysis software T-LAB to quantify and visualize co-occurrences, word associations and thematic clusters in the abstracts of 770 texts gathered by eight country teams and original in-depth qualitative analyses of ideological positions and discourses taken up in a selection of key texts across the corpus. Our paper elaborates the findings: that many of the key themes surrounding young people and citizenship in the literature share little or no connection with European citizenship; that there is a significant gap in the literature on young European citizens; and that studies connected to internal, status-based factors connected to citizenship are far more prevalent than those examining external, practice-based factors or dissidence and dissent. Our conclusions examine the potential normative implications of the disjuncture between dominant conceptions and critical accounts of youth active citizenship.