Parents’ Experiences of Receiving the Initial Positive Newborn Screening (NBS) Result for Cystic Fibrosis and Sickle Cell Disease

The clinical advantages of the newborn screening programme (NBS) in the UK are well described in the literature. However, there has been little exploration of the psychosocial impact on the family. This study followed the principles of grounded theory to explore parents’ experiences of receiving the initial positive NBS result for their child with cystic fibrosis (CF) or sickle cell disease (SCD). Semi-structured, qualitative interviews were conducted with 22 parents (12 mothers and 10 fathers) whose children had been diagnosed with CF or SCD via NBS and were under the age of 1 year at the time of interview. The main themes that arose from the data were; parents previous knowledge of the condition and the NBS programme, the method of delivery and parental reactions to the result, sharing the results with others, the impact on parental relationships and support strategies. Study conclusions indicate that most parents thought initial positive NBS results should be delivered by a health professional with condition specific knowledge, preferably with both parents present. Genetic counselling needs to include a focus on the impact of NBS results on parental relationships. Careful consideration needs to be given to strategies to support parents of babies who have positive NBS results both in terms of the psychological health and to assist them in sharing the diagnosis.     

Development and Psychometric Evaluation of an Item Bank for Computerized Adaptive Testing of the EORTC Insomnia Dimension in Cancer Patients (EORTC CAT-SL)

To further advance assessment of patient-reported outcomes, the European Organisation of Research and Treatment of Cancer (EORTC) Quality of Life Group has developed computerized adaptive test (CAT) versions of all EORTC Quality of Life Core Questionnaire (QLQ-C30) scales/items. The aim of this study was to develop and evaluate an item bank for CAT measurement of insomnia (CAT-SL). In line with the EORTC guidelines, the developmental process comprised four phases: (I) defining the concept insomnia and literature search, (II) selection and formulation of new items, (III) pre-testing and (IV) field-testing, including psychometric analyses of the final item bank. In phase I, the literature search identified 155 items that were compatible with our conceptualisation of insomnia, including both quantity and quality of sleep. In phase II, following a multistep-approach, this number was reduced to 15 candidate items. Pre-testing of these items in cancer patients (phase III) resulted in an item list of 14 items, which were field-tested among 1094 patients in phase IV. Psychometric evaluations showed that eight items could be retained in a unidimensional model. The final item bank yielded greater measurement precision than the original QLQ-C30 insomnia item. It was estimated that administering two or more items from the insomnia item bank with CAT results in a saving in sample size between approximately 15–25%. The 8-item EORTC CAT-SL item bank facilitates precise and efficient measurement of insomnia as part of the EORTC CAT system of health-related quality life assessment in both clinical research and practice.

     

Theory of mind and joint action in Parkinson’s disease

It has been suggested that the Theory of Mind (ToM) may rely on more basic processes of social cognition, such as action control (e.g., joint action), even if little is known about this relationship. The relationship between ToM and joint action can be studied in patients with Parkinson’s disease (PD), because they are characterized not only by a deficit in ToM (and in its cognitive and affective subcomponents) but also by a deficit in the inhibition of competing responses. Sixty PD patients and 60 matched healthy controls (HCs) performed a go/no-go Flanker task in both joint and individual conditions. Cognitive (Advanced Test or AT) and affective (Emotion Attribution Task or EAT) ToM also were measured. Thirty-five PD patients and matched HCs also performed the standard Flanker task, as a control measure. In patients, only individuals with high AT scores exhibited a joint Flanker effect, whereas in HCs the joint effect was found irrespectively of AT score. Patients with low EAT scores showed a greater interference effect than patients with high scores, whereas the opposite pattern was found for HCs. In regression analysis AT and EAT scores predicted the Flanker effect in the joint condition only. In the standard task, both groups showed a Flanker effect. The role of different fronto-striatal circuits, especially in PD patients, could explain the different involvement of cognitive and affective ToM in joint tasks. The Flanker effect is discussed considering the referential coding account and the attention-focus account as possible candidates to explain joint action effects.     

Emotional Intelligence Profiles in College Students and Their Fathers’ and Mothers’ Parenting Practices

The present study has two objectives: first, to analyze whether the dimensions that make up emotional intelligence (attention, clarity, and repair) give rise to different profiles of university students, and secondly, to determine whether these different profiles are differentially associated with the parenting practices that students report with regard to their fathers and mothers. Results obtained indicate the existence of different profiles of college students. The profile that corresponds to adequate emotional skills presents a lower score in attention, but higher scores in clarity, and especially in mood repair. The other two profiles are inadequate, in the first case because a higher score in emotional attention is accompanied by low scores in mood repair, and in the second case because low scores are presented in all three dimensions. Likewise, we verified the existence of significant differences in the educational practices of parents, the adequate profile is characterized by greater use of parenting dimensions considered to be positive, and at the same time, lower scores on dimensions considered to be negative. One of the dysfunctional profiles is associated with higher scores in positive practices, and is also associated with higher scores in practices considered to produce a negative effect. The second dysfunctional profile is associated with higher scores on the dimensions considered to be negative and lower scores on positive dimensions.     

The Emotion Regulation Strategies of Adolescents and their Parents: An Experience Sampling Study

Parents are the main socialization agents in the development of emotion regulation (ER). In this study, we evaluated adolescents’ and their respective parents’ perspectives about their use of two ER strategies (cognitive reappraisal and expressive suppression) in daily life. In addition, we evaluated the within-family associations between adolescents’ and their parents’ use of strategies. We controlled for adolescents’ gender and age and the perceived quality of their relationships with their parents (mothers and fathers). The sample consisted of 33 12- to 18-year-old adolescent–father–mother triads, totaling 99 participants. Parents and adolescents reported their use of ER strategies in response to eight random prompts throughout the day, by means of the experience sampling method for 1 week. Participants provided 4082 reports on their momentary experiences. The data were analyzed using multilevel modeling to account for the hierarchical structure of the repeated daily assessments. The significant association between parents’ and adolescents’ use of ER strategies was specific to mother–adolescent dyads. The significant association between adolescents’ and their mothers’ ER strategies varied as a function of the adolescents’ age and the quality of their relationship with their mothers according to adolescents’ reports, but not as a function of adolescent gender. These findings suggest that mothers have a role in their adolescents’ emotion regulation in a developmental period characterized by autonomy from parental guidance.     

Cognitive Behavioral Training Using a Mobile Application Reduces Body Image-Related Symptoms in High-Risk Female University Students: A Randomized Controlled Study

Body dissatisfaction is prevalent in young women, and is associated with symptoms of body dysmorphic disorder (BDD) and eating disorders (EDs). The aim of the study was to assess the efficacy of a mobile application, based on cognitive behavioral principles, in reducing body dissatisfaction and BDD/ED symptoms in female university students considered at high-risk of developing body image disorders (BIDs). Fifty university students at high-risk of developing BIDs (using self-report questionnaires assessing BIDs and the Structured Clinical Interview for DSM-5 Clinical Version) were randomized in two groups: immediate-use App group (iApp group; n = 25) and delayed-use App group (dApp group; n = 25). The iApp group started using the app at baseline for 16 days (T0 to T1). The dApp group waited for 16 days before starting to use the app (T1 to T2). Participants completed questionnaires at baseline (T0), 16 days from baseline (T1), and 32 days from baseline (T2). Repeated measure Analyses of Variance (ANOVAs) showed a Group (iApp vs. dApp) × Time (T0 vs. T1) interaction on BDD symptoms indicating medium effect size (partial eta squared) reductions in the iApp group compared to dApp group at T1; post-intervention means for BDD symptoms were under the cut-off for extreme body dissatisfaction/BDD symptoms in both groups. Pertaining to ED symptoms, no significant Group × Time interaction was detected. Training 3 minutes a day for 16 days with a CBT-based mobile application may lead to reductions in some forms of body dissatisfaction, including BDD symptoms in female university students at high-risk of developing BIDs. On the other hand, effects of the intervention on ED symptoms seem more limited.     

Additivity pretraining and cue competition effects: developmental evidence for a reasoning-based account of causal learning

The effect of additivity pretraining on blocking has been taken as evidence for a reasoning account of human and animal causal learning. If inferential reasoning underpins this effect, then developmental differences in the magnitude of this effect in children would be expected. Experiment 1 examined cue competition effects in children's (4- to 5-year-olds and 6- to 7-year-olds) causal learning using a new paradigm analogous to the food allergy task used in studies of human adult causal learning. Blocking was stronger in the older than the younger children, and additivity pretraining only affected blocking in the older group. Unovershadowing was not affected by age or by pretraining. In experiment 2, levels of blocking were found to be correlated with the ability to answer questions that required children to reason about additivity. Our results support an inferential reasoning explanation of cue competition effects.     

El proceso de contar: una perspectiva cognitiva

Resumen

Durante la pasada década la psicología cognitiva ha estudiado profunda y extensamente los conocimientos matemáticos tempranos, especialmente la habilidad de contar debido a su papel en el desarrollo de habilidades numéricas más sofisticadas. Esta investigación se ha enfocado desde distintas perspectivas aunque todas ellas pueden enmarcarse en la teoría general del desarrollo de integración de habilidades. En este trabajo se analizan los modelos de contar aparecidos en la literatura, agrupados en dos categorías: 1) modelos de ejecución, centrados en el aspecto procesual y 2) modelos de competencia, con mayor énfasis en el conocimiento conceptual subyacente a los procedimientos de contar.

Los diferentes enfoques en el estudio de esta habilidad cognitiva han contribuido a que se produzca un cambio importante en el área de los conocimientos numéricos tempranos así como una nueva orientación en la instrucción temprana. No obstante, existen todavía limitaciones tales como dificultades en la formalización del cambio de un nivel de la habilidad a otro, el limitarse a tareas específicas o la no inclusión de componentes perceptuales y creativos en los modelos de simulación de la tarea de contar.     

Religiosity and Adolescents’ Involvement with Both Drugs and Sex

Previous research has shown that religion reduces adolescents’ risk of substance use, while having little impact on sexual risk-taking. However, few studies have examined how religion might mitigate adolescents’ involvement with both drugs and sex. Using the Child Development Supplement (CDS) in combination with the Panel Study of Income Dynamics (PSID), we fill this gap by determining how adolescents’ involvement with both drugs and sex is related to religiosity. We find the statistically significant relationship between religiosity and adolescents’ involvement in both risk behaviors is accounted for by school attachment, but the relationship between religiosity and drugs is robust.