Parenting a Child with Phenylketonuria (PKU): an Interpretative Phenomenological Analysis (IPA) of the Experience of Parents

Phenylketonuria (PKU) is a rare inherited metabolic disorder which can cause neurological damage if left untreated. PKU is identified through newborn screening in developed countries, and treatment begins immediately to prevent these severe consequences. When a child is diagnosed, parents must assume immediate responsibility for the management of PKU and prevention of neurological damage. Quantitative studies have identified significant psychosocial stressors for parents, but little is known about how the parents experience this process. This study aimed to explore the experiences of parents of children with PKU under the age of two. It is the first study to examine these experiences in this way. Seven parents were interviewed about their experiences, and interpretative phenomenological analysis was used to analyse the data. Three main themes were identified: control, striving for normality and acceptance of PKU as a continuum. Links between the themes and processes underpinning the results were explored with relation to existing literature and theories from a clinical psychology perspective. The role of acceptance of PKU was central to the parent’s experiences. Clinical implications and suggestions for further research are discussed.     

Bad times are not good times for revolutions: Collective deprivation and the mobilization level of French radical movements (1882–1980)

Contrary to a popular belief, research has generally found no relationship between collective economic deprivation and the rise of radical political movements. On the other hand, various studies show that collective economic deprivation generates societal surges of conservatism. I therefore hypothesize that the absence of a relationship between collective deprivation and radical movements covers up opposite effects of collective deprivation depending on the ideology of radical movements: Reactionary (i.e., conservative radical) movements should mobilize more in times of collective deprivation, whereas revolutionary (i.e., progressive radical) movements should mobilize more in times of collective improvement. This paper tests this hypothesis via a new database measuring the level of mobilization of French radical organizations from 1882 to 1980. Statistical analyses confirm that collective deprivation, operationalized by long‐term economic recession and long‐term growth of inequality, increases the mobilization of reactionary movements and decreases the mobilization of revolutionary movements. These results contradict the view that economic conditions have no role in triggering radical movements and support recent development of system justification theory implying that ideology matters in the explanation of collective action.     

Rummage search by expert dyads,novice dyads and novice individuals for objects hidden in houses

Rummage search is the visual and haptic search of complex environments for targets. In this study, rummage search was explored using a novel analytic framework with expert dyads and novice dyads, as well as novice individuals. Participants sought an unknown number of targets placed in four rooms of a residential house. Some targets were plainly visible whereas others were hidden and could only be found through haptic examination. Expert dyads were very good at the task, conducting a slowed, double-checking exhaustive search, while novices both failed to fixate potential target locations and failed to carry out the appropriate action required to search those locations exhaustively. The novice dyads examined more than the novice individuals, but became more superficial in their search. We conclude that effective rummage searching is a skill enhanced by training.     

Phonological processing during silent reading in teenagers who are deaf/hard of hearing: an eye movement investigation

There has been considerable variability within the literature concerning the extent to which deaf/hard of hearing individuals are able to process phonological codes during reading. Two experiments are reported in which participants’ eye movements were recorded as they read sentences containing correctly spelled words (e.g., church), pseudohomophones (e.g., cherch), and spelling controls (e.g., charch). We examined both foveal processing and parafoveal pre‐processing of phonology for three participant groups—teenagers with permanent childhood hearing loss (PCHL), chronological age‐matched controls, and reading age‐matched controls. The teenagers with PCHL showed a pseudohomophone advantage from both directly fixated words and parafoveal preview, similar to their hearing peers. These data provide strong evidence for phonological recoding during silent reading in teenagers with PCHL.     

Habermas in the Lab: A Study of Deliberation in an Experimental Setting

This study outlines a new paradigm for the investigation of the effects of deliberation on political decisions. Specifically, it uses the ultimatum game as a situation in which the opportunity to deliberate and the placement of this opportunity are experimentally manipulated. Structural factors, such as the players' roles and their ability to vote on the proposal being offered, are also manipulated as a basis for comparison. Two outcomes are examined: the games' allocations, and players' perceptions of fairness. After controlling for structural factors, deliberative opportunity creates a more equitable distribution of money and enhances fairness perceptions. However, these results hold only when such an opportunity occurs before the proposal stage. Deliberative opportunity after the proposal stage has no discernible impact. A survey of participants found that their personal characteristics and political predispositions influence perceptions of fairness for proposers, but not for acceptors. These findings demonstrate the potential benefits of deliberation while highlighting the importance of the nature of its implementation in determining its level of success.     

Impaired conditional task performance in a high schizotypy population: relation to cognitive deficits

Cognitive impairments in schizophrenia have been characterized as reflecting a core deficit in the maintenance or use of task-setting cues to mediate appropriate ongoing behaviour. This analysis suggests that cognitive deficits in schizophrenia will be particularly evident when different task-setting cues dictate when different responses are required by the same stimuli. One simple task in which task-setting cues are required is a biconditional discrimination. Here we examined the performance of participants with high and low schizotypy scores (Mason, Claridge, & Jackson, 1995) on a biconditional discrimination and an otherwise equivalent, control discrimination that did not require the use of task-setting cues. Participants scoring highly on the Introvertive Anhedonia subscale (which has been allied to the negative and cognitive symptoms of schizophrenia) performed poorly on the biconditional, but not on the control, discrimination. No other subscales demonstrated a significant influence on either biconditional or control performance.     

The motivation to diet in young women: Fear is stronger than hope

This research examined the relative impact of a hoped‐for, thin body and a feared, overweight body on weight‐loss dieting (WLD) motivation. We hypothesised that the women most motivated to engage in WLD would report a higher similarity to, and a higher cognitive availability of, a feared, overweight body. In study 1, WLD motivation was operationalized as WLD intention and in study 2 as a food choice (chocolate bar versus low‐fat snack bar). As expected, those most similar to the feared body and who had a highly available overweight body had the greatest intention to engage in WLD, and were more likely to choose a low‐fat snack over a chocolate bar. The implications of our findings for future research as well as the development of eating pathology in college women are discussed. Copyright © 2011 John Wiley & Sons, Ltd.     

Yielding to (cyber)-temptation: Exploring the buffering role of self-control in the relationship between organizational justice and cyberloafing behavior in the workplace

Guided by the Strength Model of Self-control (Muraven & Baumeister, 2000) and the General Theory of Crime (Gottfredson & Hirschi, 1990), we examined the role of self-control in buffering the negative relationship between perceived organizational justice and cyberloafing behavior. Two hundred thirty-eight employee and co-worker dyads participated in the study. Organizational justice negatively predicted cyberloafing behavior, though this relationship had ceased to be statistically significant after controlling for gender, age, and hours of internet use for work-related activities. In addition, self-control moderated this relationship. Specifically, there was a stronger negative relationship between perceived organizational justice and cyberloafing for employees with high as opposed to low levels of self-control.     

Trends in timing of sleep in the general population of Norway: 1980 to 20001

The aim of the current study was to examine whether the timing of sleep have changed over the last two decades. As part of a general survey of activities throughout the 24-hr. cycle, collected in 1980, 1990, and 2000 by Statistics Norway, information on sleep timing was obtained for every 15-min. interval for 1 wk. All three samples were representative of Norwegians. The age span was from 16 to 74 years. Timing of sleep was significantly delayed in 2000 compared to 1990 and especially so in 1980, but with no change in total amount of sleep. From 1980 to 2000, there was an increasing discrepancy in sleep or wake timing between weekdays and weekends. The current analyses show that people sleep as much as before but do so at different times. The increased discrepancy between weekdays and weekends indicates that overall sleep habits are poorer now than previously.