Parent Perspectives of Support Received from Physicians and/or Genetic Counselors Following a Decision to Continue a Pregnancy with a Prenatal Diagnosis of Trisomy 13/18

Families that choose to continue a pregnancy with a prenatal diagnosis of Trisomy 13/18 are a minority that present unique challenges for those in charge of their care. This study investigated the extent to which these patients felt supported by their healthcare providers, and any differences in the perceived level of support experienced by those working with a physician versus those working with a genetic counselor. Two online support groups, SOFT and Hope for Trisomy, distributed an online survey to their members. Means, standard deviations and chi-square analysis were calculated to describe their responses. One-hundred fourteen surveys were included in the final analysis. Respondents were more likely to agree that genetic counselors provided unbiased information in a way that they understood, compared to physicians. Review of qualitative responses found that portrayal of Trisomy 13/18 by healthcare providers used directive language when describing the lethality, morbidity and burden of the condition. Language included terms such as “incompatible with life” and comments on burden to other family members. Healthcare providers can assist families that receive a prenatal diagnosis of Trisomy 13 or 18 by providing up-to-date written resources and connecting them with support groups for parents who have received a similar diagnosis. Our study found that involving genetic counselors in the prenatal care of these patients is likely beneficial.     

“You are Not Qualified—Leave it to us”: Obstetric Violence as Testimonial Injustice

Human Studies - This paper addresses epistemic aspects of the phenomenon of obstetric violence—which has been described as a kind of gender violence—mainly from the perspective of...     

You Wouldn’t Like Me When I’m Angry: A Daily Diary Study of Displaced Online Aggression in Dual-Earner Couples

Modern technologies can aid working processes as well as provide individuals with an opportunity to connect and form interpersonal relationships. However, they can also create a context for displaced aggression. In this study, we examine whether people experiencing work stressors may engage in online antisocial behavioral as a means of venting their negative emotions. Specifically, we investigate whether experiencing stressors at work fuels anger in the private context and whether this anger triggers subsequent displaced aggression in the form of antisocial online behavior (AOB) throughout the evening. Additionally, we examine the crossover of anger to AOB in couples in their private context. We conducted a diary study amongst 95 dual-earner couples, twice a day, during five consecutive working days. Results confirmed that men’s daily work stressors spilled over to their private context in the form of anger after work and AOB throughout the evening. No crossover effects were found from their partner. For women, a crossover effect was found of their partner’s work stressors and anger on their own AOB. These results demonstrate gender differences in displaced online aggression.     

Resilience Factors in Paediatric Inflammatory Bowel Disease: Health Care Provider,Parent and Youth Perspectives

Journal of Child and Family Studies - Exploring factors related to resilience in youth with inflammatory bowel disease may elucidate modifiable risk factors and inform interventions. Yet, how...     

Searching for nothing: placing zero on the temporal continuum

Animal Cognition - Generalization allows responses acquired in one situation to be transferred to similar situations. For temporal stimuli, a discontinuity has been found between zero and non-zero...