Intergenerational practice in the community: A focused ethnographic evaluation

An intergenerational community intervention based on contact theory and using ‘photovoice’ methods was designed to change negative age‐group stereotypes and promote sense of community. A focused ethnographic approach was adopted. Participants were 18 young people and 13 older adults. Data from focus groups, carried out with each generation separately, and observational field notes were analysed using thematic analysis; credibility checks were carried out by auditing and respondent validation. Before the intergenerational intervention, both generations presented age‐group stereotypes and both experienced only a weak sense of community. After the intervention, both generations felt that intergenerational contact had reduced age‐group stereotypes and enhanced recognition of intergenerational similarity; many also articulated a positive sense of community. The intervention has promise for helping young people and older adults to feel more socially included. Copyright © 2011 John Wiley & Sons, Ltd.     

Communication of Genetic Information by Other Health Professionals: The Role of the Genetic Counsellor in Specialist Clinics

Many children with chronic genetic diseases are followed by specialty clinics that provide genetic information as part of the care. Health services restrictions in the Republic of Ireland (ROI) can make the wait for an appointment with a genetic counsellor long. We examined whether genetic information was being adequately understood when presented by medical, but non-genetics staff to long term patients, using our national metabolic service as an example. The aim was to inform health professionals about the need or role of a genetic counsellor in a specialist setting. A questionnaire was used to assess knowledge among parents and patients affected by galactosaemia and Maple Syrup Urine Disease (MSUD). Twenty seven families with galactosemia and 10 with MSUD were interviewed in clinic. Comparative analysis showed significant differences in knowledge between parents of children with galactosemia and adult patients (p = 0.001) and between ethnicities (p > 0.05). While parents are well informed, the majority expressed a wish for more information about the condition and its transmission. Adult patients with galactosemia and parents from certain ethnic backgrounds could especially benefit from genetic counselling. This study highlights the need for a genetic counsellor in specialist clinics.