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Rebecca R. Moultrie Megan A. Lewis Ryan S. Paquin Ann Lucas Jill Jarecki Holly L. Peay 《Journal of genetic counseling》2018,27(2):416-425
Duchenne/Becker muscular dystrophy (DBMD) and spinal muscular atrophy (SMA) are rare neuromuscular disorders that present challenges to therapeutic and clinical trial decision making. We developed an interactive, evidence-based online tool designed to encourage thoughtful deliberation of the pros and cons of trial participation and to inform meaningful discussions with healthcare providers. Prior research demonstrates the importance of tool availability at the time each family is considering trial participation, which may be prior to the informed consent process. The tool is intended to be easily modified to other pediatric disease communities. Tool development was informed by prior qualitative research, literature reviews, and stakeholder input. Specific items were derived based on an online exploratory questionnaire of parents whose children participated in a trial for DBMD or SMA to understand motivations for participation. Parent participants in the exploratory survey reported strong impact of altruistic and individual benefit motivations and placed much greater emphasis on anticipated trial benefits than on harms when making participation decisions. We used this data to develop the evidence-based deliberation tool using a community-engaged approach. We initially targeted the tool for DBMD while using SMA survey data to evaluate ease of transition to that population. We conducted two iterative sets of activities to inform development and refinement of the tool: (1) community engagement of key stakeholders and (2) user experience testing. These activities suggest that the tool may increase deliberation and the weighing of benefits and harms. Ongoing evaluation will determine the acceptability and efficacy of this online intervention. 相似文献
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Drawing from the intimacy process model and data from 5,042 individuals who remained partnered across Waves 1 and 2 of the German Panel Analysis of Intimate Relationships and Family Dynamics (pairfam), this study examined the contributions of traditional gender role attitudes and relationship efficacy in predicting levels of self-disclosure within an intimate relationship. Independent samples t-tests demonstrated females scored higher than males on self-disclosure and relationship efficacy measures but lower on traditional gender role attitudes. An ordinary least squares regression analysis revealed relationship efficacy was a stronger predictor of self-disclosure compared to traditional gender role attitudes, which were not associated with self-disclosure. The findings suggest attitudes with an interpersonal motivational system may be especially important for setting the intimacy process into motion within an intimate union. 相似文献
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Tori L. Crain Rebecca M. Brossoit Gwenith G. Fisher 《Journal of business and psychology》2018,33(6):675-697
The current paper expands on traditional views of the work-nonwork interface to incorporate the critical component of sleep. We integrate past theoretical and empirical work from the sleep and organizational science literatures to inform a novel framework that will facilitate research evaluating associations among work, nonwork, and sleep, the three major areas of life. We propose that attitudes, behaviors, and states emerging in work and nonwork domains cannot be fully understood without taking into account upstream and downstream sleep quantity and quality effects. Rather, periods of sleep bookend engagement in work and nonwork roles. Thus, we propose the work, nonwork, and sleep (WNS) conceptual framework and, in doing so, identify specific, underlying resource mechanisms (i.e., human energy and time) operating both intra-individually and inter-individually. We also discuss contextual factors that act as predictors and moderators of these relationships. We suggest that a unifying framework explaining connections and underlying processes among work, nonwork, and sleep is necessary for applied psychology and management disciplines to significantly contribute to future research, intervention development and dissemination, and ultimately policy change. We provide a number of avenues for future investigation, including relevant special populations and methodological approaches. Although a plethora of work-nonwork theoretical frameworks exist, none have incorporated the third major area of life: sleep. We call for the expansion and acknowledgement of sleep, an important source of variance in everyday attitudes, behaviors, and states, and ultimately in long-term organizational, family, and individual health and well-being. 相似文献
146.
Rebecca B. Bays Brianna C. M. Wellen Katherine S. Greenberg 《Memory (Hove, England)》2018,26(4):493-502
Future episodic thinking relies on the reconstruction of remembered experiences. Photographs provide one means of remembering, acting as a “cognitive springboard” for generating related memory qualities. We wondered whether photographs would also invite embellishment of future thought qualities, particularly in the presence (or absence) of associated memories. In two studies participants generated future events in familiar (associated memories) and novel (no associated memories) locations. Half of the participants viewed scene location photographs during event generation. All participants then imagined the events for one minute and completed a self-report measure of content qualities. Results of the current set of studies suggested that for novel locations, no differences in qualities emerged; however, for familiar locations, photographs did not enhance qualities and, in some cases, actually constrained perceptual (Experiments 1 and 2) and sensory (Experiment 1) detail ratings of future thoughts. Thus, photographs did not invite embellishment of future thought details. 相似文献
147.
Sarah A. O. Gray Rebecca S. Lipschutz Mike S. Scheeringa 《Journal of abnormal child psychology》2018,46(4):871-880
Autonomic reactivity is implicated in stress response and social engagement – both key components of posttraumatic stress disorder (PTSD) – but few studies have examined autonomic reactivity in pediatric samples, and no known studies have examined physiological synchrony among children with PTSD and caregivers. In a sample of 247 young children (94 girls, 153 boys), most (85%) of whom had exposure to trauma and 40% who met criteria for PTSD, we examined children’s patterns of respiratory sinus arrhythmia (RSA) at baseline and in response to a memory recall task, as well as correspondence between parents’ and children’s RSA. Children with PTSD demonstrated significantly higher reactivity than other groups during their recollection of a traumatic memory, but not during other memory tasks. Regarding synchrony, caregivers’ and children’s RSA were more significantly and positively correlated during the trauma recall task among children who had had exposure to a potentially traumatic event but did not meet PTSD criteria, suggesting physiological synchrony may be protective in contexts of trauma. Overall, findings demonstrate physiological reactivity differences among young children with PTSD. While more work is needed to understand the meaning of parent-child physiological synchrony, these data suggest that children’s psychopathology is associated with physiological synchrony processes among young children with exposure to trauma. 相似文献
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Tim Aubry Rebecca Cherner John Ecker Jonathan Jetté Jennifer Rae Stephanie Yamin John Sylvestre Jimmy Bourque Nancy McWilliams 《American journal of community psychology》2015,55(3-4):292-303
The rental of housing units by landlords to participants in Housing First (HF) programs is critical to the success of these programs. Therefore, it is important to understand the experiences of landlords with having these individuals as tenants. The paper presents findings of qualitative interviews with 23 landlords who rented to tenants from a HF program located in a small city and adjoining rural area in eastern Canada and in which approximately 75 % of tenants had been housed for at least six consecutive months at 2 years in the program. Findings showed that landlords are motivated to rent to HF tenants for financial and pro‐social reasons. They reported holding a range of positive, neutral, and negative perceptions of these tenants. They identified problems encountered with some HF tenants that included disruptive visitors, conflict with other tenants, constant presence in their apartments, and poor upkeep of units. On the other hand, landlords perceived HF tenants as being mostly good tenants who are similar to their other tenants. Implications for practice in the context of HF programs are discussed. 相似文献